Mom is sending everyone a Happy New Year with good health and happiness. She looks forward to 2010 and entering and then staying in remission. She plans on taking a family cruise, traveling and going back to overseeing Poppie with an eagle eye.
Overall, Mom continues to baffle her Medical Team with how well she is responding to her re-induction of Chemo. She received an extremely aggressive Chemo treatment 9 days ago to address her AML and new findings of skin leukemia that surfaced 15 days ago. This Chemo focuses on crossing the blood brain barrier so it can reach cancer cells in the bone, spinal cord, brain and skin. In other words, this will address the entire body and system. We hope for the best.
Mom is on day 9 and is exhibiting fatigue when in locomotion. This is due to her counts are decreasing, as expected. Mom's red blood cells were below normal today. In result she received an IV for a red blood cell transfusion. Shortly after 3 hours of transfusion, she was up and walking with me for a good 40 minutes. Mom continues to receive preventative medication for viral infections, bacteria infections and fungal infections.
Today was a busy day. From early morning to after New Years Mom's staff revolved in and out of her room. Many of them wanted to see her New Year decorations and simply chat. Poppie came by with lots of goodies for us to bring in the New Year. He stayed for dinner and headed home around 8pm.
Mom and I watched the ball drop in Time Square on TV, spoke with Kimmy in San Diego on Skype to celebrate the East Coast New Year. Poppie, Mike, Brian and Reece all called to wish Mom a wonderful New Year. In addition, Mom received calls from around the country to wish her the best. It was wonderful. Mom and I stayed up to Skype Kimmy, Shayna Punum and our dear friends Brenna and Mindy to help celebrate the West Coast New Year. Yup, Mom and I are pulling an all nighter in her "dorm" room in the hospital.
We trust you had a safe and memorable New Year. We surely did.
Good Night or should we say Good Morning, wink.
Karen and Momma Ruthie
Thursday, December 31, 2009
Wednesday, December 30, 2009
Day 8 of Treatment
Mom the past three days is doing well. Her last Chemo induction was Monday. Daily her energy levels have been dropping as her overall numbers. Mom is not in any pain nor showing any adverse side effects yet. Her doctors are expecting some symptoms around day 9 or 10. They continue to be amazed with her ability to compact the Chemo.
I flew into Rochester at 1 am. Yes, Poppie picked me up and had a hot meal waiting at the house for me. What a surprise?, not. I actually called Mom and she too was having a nibble at the hospital so we chatted and then both went to bed.
Mom and I had a wonderful reunion this morning. All her staff came up to me with big hugs and welcomed me back. It felt as if I was visiting Mom at her dorm room and all her floor mates stopped in to hang out. Mom and I just finished decorating her "dorm room" with Happy New Year decorations that I brought in.
More to come to tomorrow.
Happy New Year to all,
Karen and Momma Ruthie
I flew into Rochester at 1 am. Yes, Poppie picked me up and had a hot meal waiting at the house for me. What a surprise?, not. I actually called Mom and she too was having a nibble at the hospital so we chatted and then both went to bed.
Mom and I had a wonderful reunion this morning. All her staff came up to me with big hugs and welcomed me back. It felt as if I was visiting Mom at her dorm room and all her floor mates stopped in to hang out. Mom and I just finished decorating her "dorm room" with Happy New Year decorations that I brought in.
More to come to tomorrow.
Happy New Year to all,
Karen and Momma Ruthie
Sunday, December 27, 2009
Day 5 of Chemo and going well
Mom continues to impress her medical team. She is maintaining her strength, energy, and focus on fighting her leukemia. Mom is not showing any symptoms from her Chemo induction yet. :) She is taking advantage of feeling well. She is eating every meal and then some, walking many times in the day and is exercising her upper and lower body. She wants to maintain her present muscle tone to help herself fight the Chemo treatment. Yes, Mom still incredibly self motivated to get into remission.
Everyday, since being admitted last Tuesday, Brian and Poppie visit for hours to keep Mom company. They are so touched, though not surprised, too how many of her medical team and other medical professionals visit her daily. Mom so enjoys the visits, the conversations and getting to know others.
She has one more induction to go. She and all of us pray her symptoms are not impacting on her in the days to follow. I am flying back to Rochester this Tuesday, December 29th, to again assist with Mom during the next 3-4 weeks post Chemo induction. Sadly Kimmy will not be able to join me on this trip. We are both happy that I will be home to celebrate with Mom and Poppie to bring in the New Year.
I will post again if anything changes for Mom. Other from that I will post again after I arrive in Rochester.
Happy Holidays and Happy New Year,
Karen
Everyday, since being admitted last Tuesday, Brian and Poppie visit for hours to keep Mom company. They are so touched, though not surprised, too how many of her medical team and other medical professionals visit her daily. Mom so enjoys the visits, the conversations and getting to know others.
She has one more induction to go. She and all of us pray her symptoms are not impacting on her in the days to follow. I am flying back to Rochester this Tuesday, December 29th, to again assist with Mom during the next 3-4 weeks post Chemo induction. Sadly Kimmy will not be able to join me on this trip. We are both happy that I will be home to celebrate with Mom and Poppie to bring in the New Year.
I will post again if anything changes for Mom. Other from that I will post again after I arrive in Rochester.
Happy Holidays and Happy New Year,
Karen
Friday, December 25, 2009
Happy Holidays From Momma Ruthie
Mom had a good night sleep and continues to impress her Doctors, Nurses and staff. Her medical team is so pleased that Mom is NOT showing any ill effects from the Chemo treatment yet. Mom took herself on 8 long walks yesterday around the Oncology floor. Today, she has already zipped around several times. She is feeling "like herself" though tires quickly.
It is wonderful how Mom's medical support team, on the Oncology floor, relate with her and treat her. Since arriving last Tuesday, Mom has had NON-STOP staff that visit her. Yes, I mean from 5 minutes to 60 minutes. It is so heart warming to see, though Mom is submerged in her most challenging experience, her unconditional love surround each person she meets and draws him/her in towards her. Mom is still in misbelief that she carries this special gift.
Mom and I were talking about all the people she has met since the beginning of November at the hospital. It is wonderful to hear her giggle in misbelief that so many people like her, instantly feel safe with her and yearn to share their life with her. I deeply believe all the expression of affection, conversation, company, and love for Mom will be her strongest "medication" to support her through this horrifying fight for her quality of life and longevity. As we know, Lil' Ruthie is all heart and will. If anyone is to become an anomaly, it will be MOM!
New experiences continue to be presented to Mom. This morning, Mom had her very first Christmas. Many of the staff brought her holiday gifts. It is wonderful how showered Mom is by all whom meet her.
Have a Fabulous Day to all,
Karen
It is wonderful how Mom's medical support team, on the Oncology floor, relate with her and treat her. Since arriving last Tuesday, Mom has had NON-STOP staff that visit her. Yes, I mean from 5 minutes to 60 minutes. It is so heart warming to see, though Mom is submerged in her most challenging experience, her unconditional love surround each person she meets and draws him/her in towards her. Mom is still in misbelief that she carries this special gift.
Mom and I were talking about all the people she has met since the beginning of November at the hospital. It is wonderful to hear her giggle in misbelief that so many people like her, instantly feel safe with her and yearn to share their life with her. I deeply believe all the expression of affection, conversation, company, and love for Mom will be her strongest "medication" to support her through this horrifying fight for her quality of life and longevity. As we know, Lil' Ruthie is all heart and will. If anyone is to become an anomaly, it will be MOM!
New experiences continue to be presented to Mom. This morning, Mom had her very first Christmas. Many of the staff brought her holiday gifts. It is wonderful how showered Mom is by all whom meet her.
Have a Fabulous Day to all,
Karen
Thursday, December 24, 2009
Mom is determined to get into remission
Mom awoke yesterday in her private room for the month. It was a bitter sweet feeling for her. The Welcome Back message on her wall written from the Oncolocy staff put a warm feeling throughout her body and a smile on her face. Mom began her agressive Chemo treatment yesterday at 12pm.. This course of Chemo is more aggressive than last month. She is receiving Cytarabine for the next week. This Chemo is known to affect the Cerebellum. She is contstantly having her balance and coordination checked in result of this.
Mom is also being pro-active. Every 2 hours about, she is getting out of bed and taking herself for a spin around the nurses station and around the hallways. She and I were laughing when she told me this. We know the real reason for crusing around. She wants to know what is going on, offer assistance with anything, and chat up a storm with everyone while she is able.
She is receiving preventative medication for a variety of possible symptoms that are common to appear. To prevent Karitosis, she started receiving medicated drops in her eyes 3x/day. She is also is receiving anti-nauseau pills 2x/day, and stomach pills for discomforts and pain. Mom's numbers are still in the low but normal ranges. When these numbers begin to drop she immediately is given antibiotics, anti-viral and anti-fungal medication.
Mom is in good spirits and is focusing on a successful month of treatment. She is very aware of the seriousness of this second Chemo induction. She has had non stop visitors since being settled in her private room. Besides my Poppie and brothers, these visitors consist of her Chemo staff from last month. Many Doctors, Nurses, Therapists, Technical Assistants and even her primary Dr. outside the hospital all are stopping by her room to welcome her with big hugs of strength and healing thoughts. This, alone, has helped to slightly drop her fears and anger to what is truly happening to her from time to time in the past two days.
More to come with Mom,
Love and hugs to all. Happy Holidays,
Karen
Mom is also being pro-active. Every 2 hours about, she is getting out of bed and taking herself for a spin around the nurses station and around the hallways. She and I were laughing when she told me this. We know the real reason for crusing around. She wants to know what is going on, offer assistance with anything, and chat up a storm with everyone while she is able.
She is receiving preventative medication for a variety of possible symptoms that are common to appear. To prevent Karitosis, she started receiving medicated drops in her eyes 3x/day. She is also is receiving anti-nauseau pills 2x/day, and stomach pills for discomforts and pain. Mom's numbers are still in the low but normal ranges. When these numbers begin to drop she immediately is given antibiotics, anti-viral and anti-fungal medication.
Mom is in good spirits and is focusing on a successful month of treatment. She is very aware of the seriousness of this second Chemo induction. She has had non stop visitors since being settled in her private room. Besides my Poppie and brothers, these visitors consist of her Chemo staff from last month. Many Doctors, Nurses, Therapists, Technical Assistants and even her primary Dr. outside the hospital all are stopping by her room to welcome her with big hugs of strength and healing thoughts. This, alone, has helped to slightly drop her fears and anger to what is truly happening to her from time to time in the past two days.
More to come with Mom,
Love and hugs to all. Happy Holidays,
Karen
Tuesday, December 22, 2009
A Difficult Day, Tuesday, All Around
4:00 am this morning, East Coast time, Kimmy and I said our "See you Soon" to Mom and Poppie. It was SO difficult to leave knowing Mom was to have yet another follow up appointment today with her Oncologist, find out about her head biopsy's, and to be admitted into the hospital for yet another treatment induction of Chemo. Poppie and Brian took Mom this afternoon for her appointment and stayed with her till she was settled into her hospital room.
Mom's Oncologist told her the results from the head biopsy's. It was not good. Mom now is challenged with yet another symptom form of Leukemia. This changed the original treatment plan we were given last week. Today, Mom was presented with several optional treatment plans. Mom, of-course, chose the plan that would be most aggressive and hopefully the quickest to kill the cancer cells. She decided to face, head on, the symptoms that may follow in result from the Chemo.
Mom was admitted into the hospital this evening. Mom will receive Chemo for 6 days starting tomorrow. She will be in the hospital and closely watched for 30 days. She was informed that a variety of risks may surface with this Chemo treatment as with last months. The positive statement from her Dr. was that most patients her age with AML would not be a candidate to receive the treatment she is about to receive. The direct compliment goes to Mom. In result to how well Mom has maintained optimal health over the past several decades Mom has a very strong heart, healthy organs. She also is stronger today than even last month pre Chemo. Last month she responded very well to the Chemo treatments. Her Oncology team feels her overall present health and strength places her as a very good candidate for the treatment she is soon to begin depsite her age.
I will be returning back to Rochester this coming Monday or Tuesday. I am planning on staying "home" through the month of January to assist in keeping our Energizer Momma Ruthie as comfortable as possible, to spoil her with body work and rehab. and to be a guiding light of strength. Kimmy will return to Rochester mid January to support me, Mom and the family.
Please continue to send Mom your prayers, good health and healing energy.
All Our Deepest Gratitude and appreciation for the endless support,
Karen
Mom's Oncologist told her the results from the head biopsy's. It was not good. Mom now is challenged with yet another symptom form of Leukemia. This changed the original treatment plan we were given last week. Today, Mom was presented with several optional treatment plans. Mom, of-course, chose the plan that would be most aggressive and hopefully the quickest to kill the cancer cells. She decided to face, head on, the symptoms that may follow in result from the Chemo.
Mom was admitted into the hospital this evening. Mom will receive Chemo for 6 days starting tomorrow. She will be in the hospital and closely watched for 30 days. She was informed that a variety of risks may surface with this Chemo treatment as with last months. The positive statement from her Dr. was that most patients her age with AML would not be a candidate to receive the treatment she is about to receive. The direct compliment goes to Mom. In result to how well Mom has maintained optimal health over the past several decades Mom has a very strong heart, healthy organs. She also is stronger today than even last month pre Chemo. Last month she responded very well to the Chemo treatments. Her Oncology team feels her overall present health and strength places her as a very good candidate for the treatment she is soon to begin depsite her age.
I will be returning back to Rochester this coming Monday or Tuesday. I am planning on staying "home" through the month of January to assist in keeping our Energizer Momma Ruthie as comfortable as possible, to spoil her with body work and rehab. and to be a guiding light of strength. Kimmy will return to Rochester mid January to support me, Mom and the family.
Please continue to send Mom your prayers, good health and healing energy.
All Our Deepest Gratitude and appreciation for the endless support,
Karen
Monday, December 21, 2009
A Long Weekend of Joy
To begin, last Friday we did did not receive the details on Mom's biopsy's from her head. We do know the results were sent over to her Oncologist last Friday. We will find out today when we call or when Mom is admitted into the hospital tomorrow at 3:00 PM for her second round of Chemo treatment. To reiterate from last Thursday's blog, Mom will be in the hospital for 5 days starting on Tuesday, December 22nd. If her body accepts the Chemo well, she is sent home on Monday, December 28th. She then is home to cope with any and all side effects from the Chemo. Unfortunately, Kimmy and I need to return to SD tomorrow. I have a few things to tighten up before the New Year. Mom, Poppie and I believe the hospital visit, for a week, will be palatable for Mom without my presence. I will be returning to Rochester around the time she is to return home to assist Poppie with Mom. Yes, we take everything in stride lately.
Her treatment plan for the following two weeks post returning home is as follows; Mondays and Thursdays the Visiting Nurse comes to the house to check Mom's vitals, the condition of her Hickman and to draw blood. Tuesday and Friday Mom returns to the hospital to be examined by her Oncologist and receive an IV of whatever she needs in reflection to the blood drawn the previous day by the Visiting Nurse. I am sure, this may become a challenge to travel if the weather dumps a lot of snow and cold onto Rochester. Remember, two weeks ago a 16 minute drive form the house to the hospital took 90 minutes in a white out. Wow, sunny SD sounds great.
Since last Thursday, Mom has been able to relax with no medical interventions. Yes, emotions of anxiousness, fear, anger, and simply feeling this "AML" is unfair did surface its ugly face over the past several days. Mom has been able to recollect herself to enjoy most of each day.
Thankfully, the weather has been kind to us in Rochester. The past several days has challenged, Kimmy and I not the natives of Rochester New York. The intermittent light flurry's, contending with the single digit cold, the bone chilling windshield factor and light winds were quite biting for us. There is still a beautiful blanket of snow running over the landscape of Rochester. It is gorgeous. This weather surely brings in the Holiday Spirit for Kimmy and I, wink. I think the "Rochesterians" would like a change of pace and have a San Diego Holiday Season.
OK, the fun update for the past weekend. The mornings were spent by Mom and I getting her ready for the day. The afternoons were spent with Mom, Poppie, Kimmy, Me, and whomever stopped by chatting, reading, doing exercises, and simply relaxing. Friday night, Mom and Poppie enjoyed vicariously hearing about the Magic Show Kimmy and I went to see. Yup, Brian had a show and as always it was FANTASTIC! The entire audience, including Kimmy and I, had our jaws and eyes wide open with amazement througout the hour show. Brian's slide of hand tricks, ability to have abjects appear in all places around the room, and his escape acts are incrediable. A show all must see. :)
Saturday, Mom, Poppie, Kimmy and I drove 50 minutes out to Mike and Cindy's house in Naples. It is breathtaking to see their property and the 360 panoramic views. As far as the eye can see, one is onverwhlemed with gorgeous landscape, hills, and, if lucky, wild animals. Mom and Poppie had not seen the improvements Mike had done to the property nor to the house for the past two and half months. After several hours of a wonderful visit, Mom and Poppie heading back into the city. Kimmy and I stayed on for the night.
The four of us headed out to Cindy's Aunt and Uncles farm for a Solstice Party. Yes, it was an outside party. Though the windshield factor was kicking in and the cold was biting it was not snowing. Their was a large open faced shelter which held the food and drinks for all. What a spread it was! Unlimited, hot and cold drinks, several cooked turkeys, pulled pork, crock pots filled with different hot sides, many deserts and more. The highlight of the night, besides great company, was a 10 foot in diameter fire pit. The entire night the fire fueled with creative burning items. Most of the items were hooked up to a 12 foot pole. This created an incrediable inferno of flame. Yes, I am a pyro at heart and one who likes to stay warm too. Kimmy and I felt as if we were at a "Burning Man" event. We were not cold at all as long as we were near the fire pit. It was AWESOME and FUN!
Sunday, my cousin Jody and her husband Bruce hosted Poppies 80th Birthday and my Aunt Fayga's (Jody's Mom) 81st Birthday Party. Jody is an incredible and creative cook. There were 12 of us eating for at least 30 people. So much food, but we could not stop, wink. We all felt the need to recline after eating. I wounder why? The night was wonderful to share with the family. Once we could get ourselves upright, we went to burn a calorie. We took turns to play WII. Actually, Mom and Aunt Fayga enjoyed an exciting golf game. We headed home around 7pm. Mom, Kimmy and I settled in for the night in our PJ's and watched feel good holiday movies and went to bed late. Poppie was watching his "feel good" movies alone. Yup, all scary science fiction movies. We all slept well and are geared up for another relaxing and fun day together.
Today, is our last day together for this visit. It is snowing again. Kimmy and I can watch the snow for hours. Mom requested we have an all nighter tonight. She is trying to extend our time together. Poppie will be taking Kimmy and I to the airport tomorrow, Tuesday, at 4:30 am for a 6:00 am flight out. I will continue to blog from SD after catching up with Mom, Poppie or a family member each day. This be a challenge for me not to be by Mom's side.
Love, Good Health, and Happy Holidays to you,
Karen, Kimmy, Mom, Poppie, Brian, Reece, Mike and Cindy xoxoxo
Her treatment plan for the following two weeks post returning home is as follows; Mondays and Thursdays the Visiting Nurse comes to the house to check Mom's vitals, the condition of her Hickman and to draw blood. Tuesday and Friday Mom returns to the hospital to be examined by her Oncologist and receive an IV of whatever she needs in reflection to the blood drawn the previous day by the Visiting Nurse. I am sure, this may become a challenge to travel if the weather dumps a lot of snow and cold onto Rochester. Remember, two weeks ago a 16 minute drive form the house to the hospital took 90 minutes in a white out. Wow, sunny SD sounds great.
Since last Thursday, Mom has been able to relax with no medical interventions. Yes, emotions of anxiousness, fear, anger, and simply feeling this "AML" is unfair did surface its ugly face over the past several days. Mom has been able to recollect herself to enjoy most of each day.
Thankfully, the weather has been kind to us in Rochester. The past several days has challenged, Kimmy and I not the natives of Rochester New York. The intermittent light flurry's, contending with the single digit cold, the bone chilling windshield factor and light winds were quite biting for us. There is still a beautiful blanket of snow running over the landscape of Rochester. It is gorgeous. This weather surely brings in the Holiday Spirit for Kimmy and I, wink. I think the "Rochesterians" would like a change of pace and have a San Diego Holiday Season.
OK, the fun update for the past weekend. The mornings were spent by Mom and I getting her ready for the day. The afternoons were spent with Mom, Poppie, Kimmy, Me, and whomever stopped by chatting, reading, doing exercises, and simply relaxing. Friday night, Mom and Poppie enjoyed vicariously hearing about the Magic Show Kimmy and I went to see. Yup, Brian had a show and as always it was FANTASTIC! The entire audience, including Kimmy and I, had our jaws and eyes wide open with amazement througout the hour show. Brian's slide of hand tricks, ability to have abjects appear in all places around the room, and his escape acts are incrediable. A show all must see. :)
Saturday, Mom, Poppie, Kimmy and I drove 50 minutes out to Mike and Cindy's house in Naples. It is breathtaking to see their property and the 360 panoramic views. As far as the eye can see, one is onverwhlemed with gorgeous landscape, hills, and, if lucky, wild animals. Mom and Poppie had not seen the improvements Mike had done to the property nor to the house for the past two and half months. After several hours of a wonderful visit, Mom and Poppie heading back into the city. Kimmy and I stayed on for the night.
The four of us headed out to Cindy's Aunt and Uncles farm for a Solstice Party. Yes, it was an outside party. Though the windshield factor was kicking in and the cold was biting it was not snowing. Their was a large open faced shelter which held the food and drinks for all. What a spread it was! Unlimited, hot and cold drinks, several cooked turkeys, pulled pork, crock pots filled with different hot sides, many deserts and more. The highlight of the night, besides great company, was a 10 foot in diameter fire pit. The entire night the fire fueled with creative burning items. Most of the items were hooked up to a 12 foot pole. This created an incrediable inferno of flame. Yes, I am a pyro at heart and one who likes to stay warm too. Kimmy and I felt as if we were at a "Burning Man" event. We were not cold at all as long as we were near the fire pit. It was AWESOME and FUN!
Sunday, my cousin Jody and her husband Bruce hosted Poppies 80th Birthday and my Aunt Fayga's (Jody's Mom) 81st Birthday Party. Jody is an incredible and creative cook. There were 12 of us eating for at least 30 people. So much food, but we could not stop, wink. We all felt the need to recline after eating. I wounder why? The night was wonderful to share with the family. Once we could get ourselves upright, we went to burn a calorie. We took turns to play WII. Actually, Mom and Aunt Fayga enjoyed an exciting golf game. We headed home around 7pm. Mom, Kimmy and I settled in for the night in our PJ's and watched feel good holiday movies and went to bed late. Poppie was watching his "feel good" movies alone. Yup, all scary science fiction movies. We all slept well and are geared up for another relaxing and fun day together.
Today, is our last day together for this visit. It is snowing again. Kimmy and I can watch the snow for hours. Mom requested we have an all nighter tonight. She is trying to extend our time together. Poppie will be taking Kimmy and I to the airport tomorrow, Tuesday, at 4:30 am for a 6:00 am flight out. I will continue to blog from SD after catching up with Mom, Poppie or a family member each day. This be a challenge for me not to be by Mom's side.
Love, Good Health, and Happy Holidays to you,
Karen, Kimmy, Mom, Poppie, Brian, Reece, Mike and Cindy xoxoxo
Thursday, December 17, 2009
More biopsies awaiting results
This past Wednesday, Mom had an appointment with a dermatologist specialist that is connected with her Oncologist Dr. Mom developed several bumps with redness on the top of her scalp and a bluish/green spot. The dermatologist gave Mom a complete evaluation and biopsied the locations on her head. We hope to hear the results today Friday.
This past Tuesday, Wednesday, and Thursday, Mom was having a difficult time emotionally. She kept thinking about the questionable areas biopsied and about next Tuesday, December 22nd, starting her second round of Chemo. All her fear, anger, frustrations, and feelings "Why Me this is so unfair" all came back in full force. I and Kimmy will be leaving on December 22 on a 6 am flight. I again, need to be back in SD for some personal medical.
Mom, Poppie, Kimmy and I spoke and I will be returning a week and half later to care take Mom when she returns home from the hospital. Mom doesn't "fight" me too badly to get her to eat,to walk and to do her movement exercises. This is most needed when the Chemo symptoms really show its ugly face. Mom is being strong about this, but is SOOOO frightened. She and I spoke about the fact these emotions will never get easier to cope with regarding this disease. The emotions just become more familiar with each step of the treatment. Mom is working on taking everything in stride and to embrace and treasure each day.
Mom has a new Visiting Nurse on her case, Sarah. She and Mom get a long beautifully. Sarah is athletically minded, quit witted, tender and direct, and immediately sized up Mom's personality. She is having Mom focus on Loving each day to its fullest.
The past several days it has been snowing. Yesterday, we made more Hanukkah cookies, Kimmy and I played in the snow, we made snow angels, and we (Kimmy ran for her life) had a snowball fight. OK, I guess I still am a bit competative. The rest of the day we hung out with the family.
It is great to hear everyone chatting, laughing and caring on together. It keeps in the moment and enjoying. Last night, one of Mom's doctors from the Oncology floor whom she befriended as her own son, came over for dinner with his wife and nine year old son. We had a great evening together. Poppie gave a wonderful explanation of Hanukkah to them and we shared lots of cookies together. Reece, Kimmy, Mom and Poppie and I watched a late movie together and then crashed from a long day.
This am, Mom is feeling emotionally stronger and relaxed. She has regrouped herself and is again thinking one step at a time. She is trying to block out the unknown. Here is where Aunt Carol's relaxation and breathing tapes she made for Mom are so helpful. This afternoon, Mom is going to supervise Kimmy and I in the kitchen. We have gobbled up almost all the cookies and potato latkes that we made earlier in the week.
More to come in the next few days.
Hugs to all,
Karen
This past Tuesday, Wednesday, and Thursday, Mom was having a difficult time emotionally. She kept thinking about the questionable areas biopsied and about next Tuesday, December 22nd, starting her second round of Chemo. All her fear, anger, frustrations, and feelings "Why Me this is so unfair" all came back in full force. I and Kimmy will be leaving on December 22 on a 6 am flight. I again, need to be back in SD for some personal medical.
Mom, Poppie, Kimmy and I spoke and I will be returning a week and half later to care take Mom when she returns home from the hospital. Mom doesn't "fight" me too badly to get her to eat,to walk and to do her movement exercises. This is most needed when the Chemo symptoms really show its ugly face. Mom is being strong about this, but is SOOOO frightened. She and I spoke about the fact these emotions will never get easier to cope with regarding this disease. The emotions just become more familiar with each step of the treatment. Mom is working on taking everything in stride and to embrace and treasure each day.
Mom has a new Visiting Nurse on her case, Sarah. She and Mom get a long beautifully. Sarah is athletically minded, quit witted, tender and direct, and immediately sized up Mom's personality. She is having Mom focus on Loving each day to its fullest.
The past several days it has been snowing. Yesterday, we made more Hanukkah cookies, Kimmy and I played in the snow, we made snow angels, and we (Kimmy ran for her life) had a snowball fight. OK, I guess I still am a bit competative. The rest of the day we hung out with the family.
It is great to hear everyone chatting, laughing and caring on together. It keeps in the moment and enjoying. Last night, one of Mom's doctors from the Oncology floor whom she befriended as her own son, came over for dinner with his wife and nine year old son. We had a great evening together. Poppie gave a wonderful explanation of Hanukkah to them and we shared lots of cookies together. Reece, Kimmy, Mom and Poppie and I watched a late movie together and then crashed from a long day.
This am, Mom is feeling emotionally stronger and relaxed. She has regrouped herself and is again thinking one step at a time. She is trying to block out the unknown. Here is where Aunt Carol's relaxation and breathing tapes she made for Mom are so helpful. This afternoon, Mom is going to supervise Kimmy and I in the kitchen. We have gobbled up almost all the cookies and potato latkes that we made earlier in the week.
More to come in the next few days.
Hugs to all,
Karen
Tuesday, December 15, 2009
Gearing Up for Round Two of Chemo
Kimmy and I arrived in Rochester Monday early morning. Though I was only back in SD for a week, we had so much to catch up on. Mom is doing well physically and mentally. We spent the day talking, telling stories, decorating the house for Hanukkah, laughing, and of course, eating. The highlight was when I gave Mom and Poppie two big bags of homemade Mondale Bread. A dear friend of ours in SD, Jill, surprised them. Mom struggled to keep up with Poppie as he quickly ate nearly a bag himself.
Today,we went for Mom's follow up appointment with her Oncologist. We were anxious, though felt positive. We were informed about Mom's biopsy, blood results and what and when her new treatment plan would begin. Unfortunately, the biopsy only offered information from her bone results. Again, they were unable to draw out any fluid from the bone. This is called a "dry tap." Not uncommon, though this was disappointing. With the present information, they have diagnosed that Mom has Acute Myelogenous Leukemia. Mom's blood tests are looking good at this point. Her Doctors are very pleased. They are optimistic that the next round of Chemo will go well for Mom as last month.
Mom is being re-admitted into the hospital next Tuesday. She will start her second round of Chemo. This Chemo induction is for 5 days. If she does not have a fever and is symptom free, Mom will be returning home on day 6 or 7. At home, for the next two weeks, Mom will have the visiting nurse 2 days a week drawing blood. The day after each blood drawing Mom returns to the hospital for a Dr. visit. If needed, Mom will receive an IV to support her system. Week 3, the Dr. will determine again her status and will evaluate the next course of treatment.
Oh, Mom has an appointment with her dermatologist tomorrow. We found several lumps that developed on her scalp yesterday. We will keep you posted. Her Oncologist is sure it is not anything to worry about.
This evening we had a wonderful Hanukkah dinner, great treats and simply chatted up a storm. All night it has been snowing. Prior to bedtime, there was a beautiful white blanket covering the yards, the streets, the trees etc. It is so beautiful. The snow really brings in the holidays.
Tomorrow am, Mom, Kimmy and I will make Hanukkah cookies and potato latkes.
Happy Holidays. It is wonderful being home with Mom, Poppie and the rest of the family. We went to bed with a steady snow that had already covering the ground. It is gorgeous outside.
Lots of love and good health,
Karen, Kimmy, Lil-Ruthie, and Poppie
Today,we went for Mom's follow up appointment with her Oncologist. We were anxious, though felt positive. We were informed about Mom's biopsy, blood results and what and when her new treatment plan would begin. Unfortunately, the biopsy only offered information from her bone results. Again, they were unable to draw out any fluid from the bone. This is called a "dry tap." Not uncommon, though this was disappointing. With the present information, they have diagnosed that Mom has Acute Myelogenous Leukemia. Mom's blood tests are looking good at this point. Her Doctors are very pleased. They are optimistic that the next round of Chemo will go well for Mom as last month.
Mom is being re-admitted into the hospital next Tuesday. She will start her second round of Chemo. This Chemo induction is for 5 days. If she does not have a fever and is symptom free, Mom will be returning home on day 6 or 7. At home, for the next two weeks, Mom will have the visiting nurse 2 days a week drawing blood. The day after each blood drawing Mom returns to the hospital for a Dr. visit. If needed, Mom will receive an IV to support her system. Week 3, the Dr. will determine again her status and will evaluate the next course of treatment.
Oh, Mom has an appointment with her dermatologist tomorrow. We found several lumps that developed on her scalp yesterday. We will keep you posted. Her Oncologist is sure it is not anything to worry about.
This evening we had a wonderful Hanukkah dinner, great treats and simply chatted up a storm. All night it has been snowing. Prior to bedtime, there was a beautiful white blanket covering the yards, the streets, the trees etc. It is so beautiful. The snow really brings in the holidays.
Tomorrow am, Mom, Kimmy and I will make Hanukkah cookies and potato latkes.
Happy Holidays. It is wonderful being home with Mom, Poppie and the rest of the family. We went to bed with a steady snow that had already covering the ground. It is gorgeous outside.
Lots of love and good health,
Karen, Kimmy, Lil-Ruthie, and Poppie
Thursday, December 10, 2009
A White Out couldn't stop Mom's Bone Biopsy
Despite a white out in Rochester, Brian, Aunt Carol, Poppie and Mom made it to and from the Strong Hospital. What normally takes 16-18 minutes door to door took them an 90 minutes to get home this evening. The Biopsy procedure went as well as could be. The Dr. could not, once again, extract fluid from the bone. The good news is that the Dr. took another bone chip to send to the lab and Mom's overall numbers are continuously elevating.
Next Tuesday, December 15th, Mom has an appointment with her Chemo Dr. Mom will find out what her Biopsy and blood results are. Her Dr. will tell us what her next Chemo treatment plan will be. Kimmy and I return to Rochester on the 14th, Monday. We are happy that we are able to be home to support Mom and the family.
Aunt Carol leaves tomorrow back to Boston if weather permits. She will be greatly missed. Besides her wonderful cooking, her witty and loving self, they will miss greatly her TLC and support.
Mom's attitude, spirit, and mental strength is great.
Happy Chanukah tomorrow night to all,
Karen
Next Tuesday, December 15th, Mom has an appointment with her Chemo Dr. Mom will find out what her Biopsy and blood results are. Her Dr. will tell us what her next Chemo treatment plan will be. Kimmy and I return to Rochester on the 14th, Monday. We are happy that we are able to be home to support Mom and the family.
Aunt Carol leaves tomorrow back to Boston if weather permits. She will be greatly missed. Besides her wonderful cooking, her witty and loving self, they will miss greatly her TLC and support.
Mom's attitude, spirit, and mental strength is great.
Happy Chanukah tomorrow night to all,
Karen
Tuesday, December 8, 2009
"Living Life to Its Fullest"
Mom had a wonderful weekend. Her energy, strength and edurance are continue to increase. Mom, Poppie, and the rest of the family are being completely spoiled by Aunt Carol's culinary talents. They are all sleeping more soundly due to having happy and "full stomachs" these days. At least, Aunt Carol is making enough for left overs. Kimmy and I hope to enjoy some left-overs by the time we arrive next week. Unfortunely, Aunt Carol needs to get back to Boston on Friday this week. She and I once again will be passing the baton.
Mom is relaxing wonderfully since Aunt Carol arrived. Not just because of Aunt Carol's wonderful personality and awesome cooking. Aunt Carol began daily meditation, visualization, and imagery lessons with Mom. She recorded each session so Mom can access the sessions at any time. This will be a fun thing to do with Mom when Kimmy and I arrive next Monday, December 14th.
Mom, is progressing well medically. She is off her hard core medications now since last Saturday. Mom now is flushing her Hickman herself with some one standing by for assistance. What a shock,taking control, wink. We view this behaviour now as Mom is simply back to her normal self. Mom also is doing her exercises daily and is noticing her muscles are back. This makes Mom beam with excitement.
Well, today, Mom has a big day. She has her Visiting Nurse whom cleans & flushes the Hickman, checks all her vitals and draws blood today. The aid comes to assist with all Mom's personal hygene. Her Physical Therapist, Amy who is a dear friend of the family is over to keep Mom from overdoing it!
Mom is enjoying the next few days. This Thursday is her second Bone Biopsy. The results from this procedure and another blood drawing will supply her oncolocy Dr. enough information for Mom's next round of Chemo. Mom's attitude is excellent. She, as all of us, are anxious with the results. Mom knows and believes, no matter the results, she is strong physically and mentally and will be the one controlling her Leukemia.
I will post after Thursdays procedure for Mom. Until then, have a beautiful week.
Thank you for your endless loving support,
Karen
Mom is relaxing wonderfully since Aunt Carol arrived. Not just because of Aunt Carol's wonderful personality and awesome cooking. Aunt Carol began daily meditation, visualization, and imagery lessons with Mom. She recorded each session so Mom can access the sessions at any time. This will be a fun thing to do with Mom when Kimmy and I arrive next Monday, December 14th.
Mom, is progressing well medically. She is off her hard core medications now since last Saturday. Mom now is flushing her Hickman herself with some one standing by for assistance. What a shock,taking control, wink. We view this behaviour now as Mom is simply back to her normal self. Mom also is doing her exercises daily and is noticing her muscles are back. This makes Mom beam with excitement.
Well, today, Mom has a big day. She has her Visiting Nurse whom cleans & flushes the Hickman, checks all her vitals and draws blood today. The aid comes to assist with all Mom's personal hygene. Her Physical Therapist, Amy who is a dear friend of the family is over to keep Mom from overdoing it!
Mom is enjoying the next few days. This Thursday is her second Bone Biopsy. The results from this procedure and another blood drawing will supply her oncolocy Dr. enough information for Mom's next round of Chemo. Mom's attitude is excellent. She, as all of us, are anxious with the results. Mom knows and believes, no matter the results, she is strong physically and mentally and will be the one controlling her Leukemia.
I will post after Thursdays procedure for Mom. Until then, have a beautiful week.
Thank you for your endless loving support,
Karen
Friday, December 4, 2009
Enjoying Living Pain & Injury Free
SO sorry that I have not updated the blog since last Tuesday. Last Wednesday, Poppies sister, Carol flew in from Boston. I passed the baton off to her to help out Poppie and Mom until Kimmy and I return to Rochester on December 14th. I had to fly back to San Diego yesterday, Thursday. I need to address my own medical appointments and look forward to another colonoscopy with many biopsy's.
Mom and Poppie are so happy to see Aunt Carol for many reasons. Firstly, she has a fantastic uplifting energy and all around her lights up from simply being with her. I am so jazzed especially for Mom since Aunt Carol has a strong background in counseling, meditation, biofeedback and many other tricks in her bag to assist mom and Poppie through this frightening experience. To add, Aunt Carol is a fabulous cook. Now you know, this alone puts a smile ear to ear on Mom and Poppies face.
OK, for Mom and the medical status. Mom on Wednesday met with her primary doctor, Dr. Campbell. This was an extremely emotional and painful visit. Dr. Campbell, over the many years has become yet another son of Mom and Poppies. He explained he is available for social visits and support but no longer with be Moms doctor. This hit them both very hard. Tight hugs and tears strolled form their cheeks. This was the FIRST time Mom has spoken to anyone outside the oncology team or surrounded by family in her home. Reality hit Mom, like running in to a brick wall.
The beautiful though painful part of Moms awareness to her AML diagnosis is that she and Poppie are now talking freely together about the disease. They spend many special moments privately holding each other, talking about each others fears, anger, and fear of the unknown and much more. Mom is being extremely strong about her future. She encourages and allows herself to cry and shortly after she regroups and bounces up with "I am going to be an anomaly!" I am going to beat this! She and Poppie are presently planning their next cruise to include all whom want to join in 2010. She surely is a fighter! Most of the day she is the little Ruthie we know her to be.
Yesterday, Mom met with her Visiting Nurse and Physical Therapist. Both were very impressed with Moms attitude, alertness, clarity of her treatment, how to flush her own Hickman (though she is not doing this, she is happy she "could.", and her muscle strength overall. She is above average with her muscle testing though she fatigues extremely quickly. Mom was showing off her "GUNS" she still has. It is pretty impressive. Later in the afternoon, Mom had a house cleaner come as a gift from my Aunt Fayga. We all know Mom walked her cleaning lady around the house with Aunt Carol following to take notes for Mom. Actually, this is a wonderful gift. Mom, has always taken great pride in having her home look as a show home. Now since her energy is so limited, she is able to still have a spotless home to uplift her. Thank you Aunt Fayga. :)
Since receiving her first round of Chemo therapy, Mom has had no musculoskeletal pains. This is the first time in many years. Her spirits and outlook maintain strong and she focuses on becoming known as another "Lance Armstrong." She is geared up "no pun intended" to be an anomaly, as Lance has become. She too will be living with and eventually beating her AML as he did with his form of cancer.
Mom and Poppie are so thankful for you checking in, sending love, prayers and healing energy over the past month. They are overwhelmed with the amount of love they are receiving. They are also so grateful for having their children and relatives being such a support on a daily basis. Believe me, all of your love has kept Mom's optimism, belief and hope stronger than ever. Mom is stronger with all of our love together. THANK YOU! xoxoxo
Well more to come.
Have a fantastic weekend. I will post again on Monday.
All My Warmth and Gratefulness for having you in our lives,
Karen
Mom and Poppie are so happy to see Aunt Carol for many reasons. Firstly, she has a fantastic uplifting energy and all around her lights up from simply being with her. I am so jazzed especially for Mom since Aunt Carol has a strong background in counseling, meditation, biofeedback and many other tricks in her bag to assist mom and Poppie through this frightening experience. To add, Aunt Carol is a fabulous cook. Now you know, this alone puts a smile ear to ear on Mom and Poppies face.
OK, for Mom and the medical status. Mom on Wednesday met with her primary doctor, Dr. Campbell. This was an extremely emotional and painful visit. Dr. Campbell, over the many years has become yet another son of Mom and Poppies. He explained he is available for social visits and support but no longer with be Moms doctor. This hit them both very hard. Tight hugs and tears strolled form their cheeks. This was the FIRST time Mom has spoken to anyone outside the oncology team or surrounded by family in her home. Reality hit Mom, like running in to a brick wall.
The beautiful though painful part of Moms awareness to her AML diagnosis is that she and Poppie are now talking freely together about the disease. They spend many special moments privately holding each other, talking about each others fears, anger, and fear of the unknown and much more. Mom is being extremely strong about her future. She encourages and allows herself to cry and shortly after she regroups and bounces up with "I am going to be an anomaly!" I am going to beat this! She and Poppie are presently planning their next cruise to include all whom want to join in 2010. She surely is a fighter! Most of the day she is the little Ruthie we know her to be.
Yesterday, Mom met with her Visiting Nurse and Physical Therapist. Both were very impressed with Moms attitude, alertness, clarity of her treatment, how to flush her own Hickman (though she is not doing this, she is happy she "could.", and her muscle strength overall. She is above average with her muscle testing though she fatigues extremely quickly. Mom was showing off her "GUNS" she still has. It is pretty impressive. Later in the afternoon, Mom had a house cleaner come as a gift from my Aunt Fayga. We all know Mom walked her cleaning lady around the house with Aunt Carol following to take notes for Mom. Actually, this is a wonderful gift. Mom, has always taken great pride in having her home look as a show home. Now since her energy is so limited, she is able to still have a spotless home to uplift her. Thank you Aunt Fayga. :)
Since receiving her first round of Chemo therapy, Mom has had no musculoskeletal pains. This is the first time in many years. Her spirits and outlook maintain strong and she focuses on becoming known as another "Lance Armstrong." She is geared up "no pun intended" to be an anomaly, as Lance has become. She too will be living with and eventually beating her AML as he did with his form of cancer.
Mom and Poppie are so thankful for you checking in, sending love, prayers and healing energy over the past month. They are overwhelmed with the amount of love they are receiving. They are also so grateful for having their children and relatives being such a support on a daily basis. Believe me, all of your love has kept Mom's optimism, belief and hope stronger than ever. Mom is stronger with all of our love together. THANK YOU! xoxoxo
Well more to come.
Have a fantastic weekend. I will post again on Monday.
All My Warmth and Gratefulness for having you in our lives,
Karen
Tuesday, December 1, 2009
A Blanket of Snow
Momma Ruthie smiled this morning seeing a blanket a snow on the ground. Seeing the next season arrive helps her feel happy and alive. Mom is "planning on seeing the four seasons for years to come." Yes, despite all that is going on with Mom's health she is looking forward to enjoying life to its fullest with Poppie. Yesterday, they were looking through a Travel magazine to pick out their next cruise.
Yesterday, Mom, Poppie and I had an appointment with her primary Oncologist, Dr. Deborah Mulford. The visit went well and Mom felt very comfortable and at ease with her. Dr. Mulford gave Mom a thorough consult and physical. Mom had her blood drawn, and we were shown how to properly water proof her Hickman for showers. The Dr. went over all of Mom's present medications, explained what we can expect for the next several weeks and got a clear idea of Mom's personality.
Mom is having her second Bone Biopsy December 10th, Thursday at 3pm. The results of the procedure combined with Mom's blood results will determine the next course of treatment care. It is very clear that Mom is looking at repeated Chemo treatments. On December 15th, Tuesday at 3:30pm Mom has her follow up and Chemo Plan presented by Dr. Mulford. Thumbs up that we are moving forward to keep Mom around and as healthy as possible.
Today, I will be spoiling Mom with a spa day. She is so excited for her first shower at home, a pedicure, a manicure and a massage. We will also be starting a new breathing and exercise program today. I am sure she will sleep well tonight, wink.
Have a beautiful day. Please think of one way to spoil yourself today. You deserve it!
Lots of love and Hugs,
Karen
Yesterday, Mom, Poppie and I had an appointment with her primary Oncologist, Dr. Deborah Mulford. The visit went well and Mom felt very comfortable and at ease with her. Dr. Mulford gave Mom a thorough consult and physical. Mom had her blood drawn, and we were shown how to properly water proof her Hickman for showers. The Dr. went over all of Mom's present medications, explained what we can expect for the next several weeks and got a clear idea of Mom's personality.
Mom is having her second Bone Biopsy December 10th, Thursday at 3pm. The results of the procedure combined with Mom's blood results will determine the next course of treatment care. It is very clear that Mom is looking at repeated Chemo treatments. On December 15th, Tuesday at 3:30pm Mom has her follow up and Chemo Plan presented by Dr. Mulford. Thumbs up that we are moving forward to keep Mom around and as healthy as possible.
Today, I will be spoiling Mom with a spa day. She is so excited for her first shower at home, a pedicure, a manicure and a massage. We will also be starting a new breathing and exercise program today. I am sure she will sleep well tonight, wink.
Have a beautiful day. Please think of one way to spoil yourself today. You deserve it!
Lots of love and Hugs,
Karen
Monday, November 30, 2009
So Happy To Be Home
Mom came home Saturday and was so thrilled. She slept so well in her own bed and enjoyed not being awoken to have her vitals taken nor having to take a plethora of medications throughout the night. She is loving being in her own surroundings though is missing the "friends" medical staff hanging around and chatting with her.
Sunday was very relaxing for everyone. Mom has settled into a routine already. I wrote out a time schedule for all her meds and recorded on each bottle as well for her what to take and what time. She putzes around the house straightening picture frames, detail cleaning counter tops, the stove, pots and picking up light items to put away in "their proper place. Other from the light things to do, Mom continues to ask, "Will you do me a favor?" She has recruited all of us to be her side kick to keep her home tidy and organized. She sees things around the house that non of us see. Oy Vey, :).
Yesterday the Visiting Nurse came to open up her case. She stayed a good two hours. Yes, mom has a way to have people open up and hang out. The Nurse allowed me to flush all her Hickman lines. I wrote this out step by step so Mom will have the control to direct whomever does the flushing, wink. Mom spent the day taking naps, implementing her relaxation and breathing techniques I taught her. Mom continues to have a wonderful appetite and maintaining a positive attitude. Mom had another wonderful sleep last night.
This afternoon we have an appointment with her primary Oncologist. I will keep you posted on the plan and any additional information. Have a wonderful day and thank you again for all you love and support.
Tight Hugs,
Karen
Sunday was very relaxing for everyone. Mom has settled into a routine already. I wrote out a time schedule for all her meds and recorded on each bottle as well for her what to take and what time. She putzes around the house straightening picture frames, detail cleaning counter tops, the stove, pots and picking up light items to put away in "their proper place. Other from the light things to do, Mom continues to ask, "Will you do me a favor?" She has recruited all of us to be her side kick to keep her home tidy and organized. She sees things around the house that non of us see. Oy Vey, :).
Yesterday the Visiting Nurse came to open up her case. She stayed a good two hours. Yes, mom has a way to have people open up and hang out. The Nurse allowed me to flush all her Hickman lines. I wrote this out step by step so Mom will have the control to direct whomever does the flushing, wink. Mom spent the day taking naps, implementing her relaxation and breathing techniques I taught her. Mom continues to have a wonderful appetite and maintaining a positive attitude. Mom had another wonderful sleep last night.
This afternoon we have an appointment with her primary Oncologist. I will keep you posted on the plan and any additional information. Have a wonderful day and thank you again for all you love and support.
Tight Hugs,
Karen
Saturday, November 28, 2009
Mom is Home and Happy
Mom was discharged this morning at 11:30 am. It was bitter sweet for mom and her medical staff to see her go home. Mom brought so much to the cancer ward with her optimism and determination to fight her leukemia and get into remission. Her walking several times a day around the nurses station and the hallways, telling jokes, and sharing her loving self encouraged other patients and reminded the medical staff why they had chosen their careers.
Mom was discharged having Acute Myeloid Leukemia (AML). Her cells are not all matching completely and there are more tests to be run. She also is showing cells which identify Myelodysplastic Syndrome (MDS). Both are acute signs of leukemia. Both are serious, but Mom at this moment, is doing very well. Her head Oncologist told her today that she is leaving the hospital 9 days ahead of schedule and far healthier than many of his patients in their 20's and 30's with AML/MDS. This made Mom GLOW with satisfaction. Her Dr. also commented that her many decades of being fit and focusing on her nutrition is a direct reflection to her body dealing with the Chemo treatment so well. Mom was beaming hearing that. Of course she looked at Poppie, winked and said, see Seymour, you need to continue to listen to me about what to eat and exercise. You need your health at its best."
We got Mom in the car and as I was ready to drive away from the hospital, s uddenly, Mom, Poppie and I realized Mom was coming home. Tears of happiness were flowing down our cheeks. I had to compose myself to actually see the road. We arrived home to find Reece greeting Gramma with a big hug. Mom couldn't help herself, she immediately saw her home needing her loving touch. Her reflex was to grab a toothbrush and clean the grout around the sink, floors etc. Yes, she is the little energizer bunny that we all know she is. I managed to get her focused back on herself and into bed to relax while I put all her things away. Reece stayed home with Mom while Poppie and I went to pick up her 15 various medications and vitamins that she was discharged with. Brian surprised all of us with Mom's favorite Chinese food. Mom so indulged her first meal in her own home. We were stuffed as if it was "Thanksgiving." we are all now reclining.
The Visiting Home Nurse arrives tomorrow, Monday the Nurse returns again and the Physical Therapist comes over. Tuesday we meet with Moms primary Oncologist. The Oncologist will explain what the new plan of treatment care will be.
We are all so happy to see Mom home.
More to come tomorrow.
Keep your healing energy and prayers flowing our way,
Karen
Mom was discharged having Acute Myeloid Leukemia (AML). Her cells are not all matching completely and there are more tests to be run. She also is showing cells which identify Myelodysplastic Syndrome (MDS). Both are acute signs of leukemia. Both are serious, but Mom at this moment, is doing very well. Her head Oncologist told her today that she is leaving the hospital 9 days ahead of schedule and far healthier than many of his patients in their 20's and 30's with AML/MDS. This made Mom GLOW with satisfaction. Her Dr. also commented that her many decades of being fit and focusing on her nutrition is a direct reflection to her body dealing with the Chemo treatment so well. Mom was beaming hearing that. Of course she looked at Poppie, winked and said, see Seymour, you need to continue to listen to me about what to eat and exercise. You need your health at its best."
We got Mom in the car and as I was ready to drive away from the hospital, s uddenly, Mom, Poppie and I realized Mom was coming home. Tears of happiness were flowing down our cheeks. I had to compose myself to actually see the road. We arrived home to find Reece greeting Gramma with a big hug. Mom couldn't help herself, she immediately saw her home needing her loving touch. Her reflex was to grab a toothbrush and clean the grout around the sink, floors etc. Yes, she is the little energizer bunny that we all know she is. I managed to get her focused back on herself and into bed to relax while I put all her things away. Reece stayed home with Mom while Poppie and I went to pick up her 15 various medications and vitamins that she was discharged with. Brian surprised all of us with Mom's favorite Chinese food. Mom so indulged her first meal in her own home. We were stuffed as if it was "Thanksgiving." we are all now reclining.
The Visiting Home Nurse arrives tomorrow, Monday the Nurse returns again and the Physical Therapist comes over. Tuesday we meet with Moms primary Oncologist. The Oncologist will explain what the new plan of treatment care will be.
We are all so happy to see Mom home.
More to come tomorrow.
Keep your healing energy and prayers flowing our way,
Karen
Friday, November 27, 2009
Mom is being "Sprung" from the Hospital
Momma Ruthie is ahead of the game. She is heading home tomorrow afternoon. She is being discharged 9 days earlier than originally told. We met with her Dr.'s today and they are very pleased and excited how well she is responding to the Chemo treatment. Moms vitals, blood counts, appetite, bodily functions, etc. are all were they need to be able to discharge her. Today, Mom and I were shown again how to care for her Hickman, met with a Home Visiting Nurse Coordinator to review what to expect when discharged and the format for home care by Nurses, Aids, Physical Therapists and or an Occupational Therapist.
Mom is SO excited to come home. She had Poppie bring in a sheet cake today to feed 50 people. She wanted to express her thanks to all the medical staff that has taken care of her for the past 21 days in Chemo. Yes, tomorrow is day 22 since the treatment began and day 25 in the hospital. One of Moms favorite Dr.'s read the card she wrote out loud to about 12 other staff and almost all of them had tears in their eyes. It was extremely touching to see and feel so much affection, support and caring hearts for Mom.
Mom actually spent the morning, afternoon, and into the evening taking walks and visiting with her new found family. It really warms my heart to see all the Dr.'s, Nurses, Technicians to other helping staff call Mom either Mom or Gramma. When I left tonight there were several Nurses that said they will miss Mom very much on the floor. She made their shifts more pleasurable and interesting.
Tomorrow at 7am I am meeting with Moms Dr.'s to discharge her. This evening all the medical supplies needed to care for mom from the Upstate Home Care Services were delivered to the house. Here is the present plan as we know it. Mom is coming home tomorrow in the afternoon. Sunday the Visiting Nurse comes to the house to open Mom's case and give her a complete check up and flush her Hickman. Prior to leaving we discuss a complete plan of treatment, therapies that will be needed, and if an aid is to come to the house to assist with Mom.
Monday, the Nurse returns to again flush her Hickman, draw blood, and check all vitals. Physical Therapy starts on Monday as well. We are now all ready for mom to come home, :).
I will share the excitement of Mom's returning home tomorrow evening. Until then, THANK YOU for all your prayers, healing energy, positive thinking and strength over the past three and half weeks to help get Mom to this point in her journey. Here is to a several decades of Mom staying in remission! xoxoxoxo
All My Love,
Karen
Mom is SO excited to come home. She had Poppie bring in a sheet cake today to feed 50 people. She wanted to express her thanks to all the medical staff that has taken care of her for the past 21 days in Chemo. Yes, tomorrow is day 22 since the treatment began and day 25 in the hospital. One of Moms favorite Dr.'s read the card she wrote out loud to about 12 other staff and almost all of them had tears in their eyes. It was extremely touching to see and feel so much affection, support and caring hearts for Mom.
Mom actually spent the morning, afternoon, and into the evening taking walks and visiting with her new found family. It really warms my heart to see all the Dr.'s, Nurses, Technicians to other helping staff call Mom either Mom or Gramma. When I left tonight there were several Nurses that said they will miss Mom very much on the floor. She made their shifts more pleasurable and interesting.
Tomorrow at 7am I am meeting with Moms Dr.'s to discharge her. This evening all the medical supplies needed to care for mom from the Upstate Home Care Services were delivered to the house. Here is the present plan as we know it. Mom is coming home tomorrow in the afternoon. Sunday the Visiting Nurse comes to the house to open Mom's case and give her a complete check up and flush her Hickman. Prior to leaving we discuss a complete plan of treatment, therapies that will be needed, and if an aid is to come to the house to assist with Mom.
Monday, the Nurse returns to again flush her Hickman, draw blood, and check all vitals. Physical Therapy starts on Monday as well. We are now all ready for mom to come home, :).
I will share the excitement of Mom's returning home tomorrow evening. Until then, THANK YOU for all your prayers, healing energy, positive thinking and strength over the past three and half weeks to help get Mom to this point in her journey. Here is to a several decades of Mom staying in remission! xoxoxoxo
All My Love,
Karen
Thursday, November 26, 2009
Happy Turkey Day
We received wonderful news this morning. Mom's medical team took her off all medications through her IV. She is receiving her meds orally now. She will be monitored closely to make sure her body is absorbing and responding well to the medications. If all goes well through the weekend Mom may be discharged this coming Monday or Tuesday. Mom's numbers are increasing. Mom is on day three that she is eating a regular diet. This am all systems were a go for the first time is 3 weeks. If you know what I mean, wink? She is still on antibiotics and several other medications and vitamins.
Mom is focusing on being an "anomaly." She sates she is exceptional and will surprise her Dr.'s with new statistics. I know she will! This is the Little Ruthie we all know to be. When she puts her mind to something nothing can stop her! You Go Girl!
After breakfast, thick french toast & bacon, Mom was unhooked from the IV pole. She with excitement grabbed her walker and took herself for a walk around the nurses station. This was her first solo walk and she was in heaven. She walked 4 laps and chatted up a storm with all the staff. Mom completed a total of 20 laps today. She and I have an agreement after every meal and after every visit to the ladies room, she walks with me.
The hospital did it up for Thanksgiving. Mom for lunch ate turkey, mash potatoes, stuffing, peas and gravy. Mom enjoyed every last fork full. Mom ordered me steamed broccoli to add to my chicken I brought. For dinner Mom was a bit full but managed to put down a lemon chicken, steamed veggies, and ate half of a chocolate cake slice and a carrot cake slice. I am telling you it is wonderful to see Mom spoiling herself with all her temptations.Mom is focusing on being an "anomaly." She sates she is exceptional and will surprise her Dr.'s with new statistics. I know she will! This is the Little Ruthie we all know to be. When she puts her mind to something nothing can stop her! You Go Girl!
After breakfast, thick french toast & bacon, Mom was unhooked from the IV pole. She with excitement grabbed her walker and took herself for a walk around the nurses station. This was her first solo walk and she was in heaven. She walked 4 laps and chatted up a storm with all the staff. Mom completed a total of 20 laps today. She and I have an agreement after every meal and after every visit to the ladies room, she walks with me.
This evening Poppie and Brian dropped in with some scrumptious smoked turkey. Mike and Cindy created a wonderful holiday meal that Brian, Reece and Poppie went to. They stayed at the hospital for several hours reminiscing and chatting with Mom and I.
Before I left this evening, Mom received several nurses contact names and numbers. So many of the staff have fallen in love with Mom. Mom, of-course is already coordinating with the staff how to get onto the volunteer list to help others who have been diagnosed with cancer. She is planning her new calling of work when she gets into remission. It is wonderful to see her setting up goals and thinking of fun things to do as her strength and endurance increases more and more.
Happy Thanksgiving to all. I am sure at this point you are reclining back and have or are rubbing your stomach.
With all our love and thanks for having your continuous prayers and healing energy,
Karen, Kimmy, Ruthie, Seymour, Mike, Cindy, Brian and Reece xoxoxo
Wednesday, November 25, 2009
Feeling Peppy
Mom was chippy this am and again waiting for me in her chair. Her legs were up on a pillow and had a pillow on her lap for her arms to rest on. She has been educating all her staff about proper body mechanics. I think I have rubbed off on her, wink. The wonderful thing is that many of the nurses are placing their patients in more supportive positions. Mom is always sharing something.
The past several days since Mom is getting back into her groove has a constant flow of staff that visit her. They all have adopted Mom as their Gramma. It is wonderful to see Mom with nearly no discomfort. She has not suffered with the mouth blisters and we hope this doesn't begin. She continues to enjoy her baldness, has several skin issues that have surfaced, but nothing to be alarmed about.
Mom's appetite is kicking into gear now. She and I have all our meals together. She is not able to eat a full meal but eats at least half of everything. Today she had for breakfast - scrambled eggs, pancake and a bagel. Lunch - beef barley soup, crackers and a bland tasting cheese sandwich. Dinner - stir fry chicken, veggies and several desserts. Yes, Mom is indulging. This is great to see.
Mom continues to build her strength and endurance. She fatigues quickly, but she is on her way. She walked this am, afternoon and evening with me. This afternoon, Mom met with a Meditation Therapist. I use a lot of breathing techniques for my own healing and maintenance and this is one of them. Mom, surprisingly to herself, embraced learning how to "get out of her head" and into her breath. She actually felt a shift of relaxation and calmness after her session. I am sure this will become a useful tool for her. Mom, actually requested several sessions when she finally gets discharged.
This evening I learned how to flush Mom's Hickman. This will prepare us for when she gets discharged. At this point the Dr.'s are still tracking her blood counts and are waiting for them to rise daily. She is still receiving antibiotics and several other meds related to nausea and if needed to maintain full system functioning. PATIENCE is the name of the game.
Another wonderful day together. Stay Tuned - More to come tomorrow.
Hugs to all,
Karen
The past several days since Mom is getting back into her groove has a constant flow of staff that visit her. They all have adopted Mom as their Gramma. It is wonderful to see Mom with nearly no discomfort. She has not suffered with the mouth blisters and we hope this doesn't begin. She continues to enjoy her baldness, has several skin issues that have surfaced, but nothing to be alarmed about.
Mom's appetite is kicking into gear now. She and I have all our meals together. She is not able to eat a full meal but eats at least half of everything. Today she had for breakfast - scrambled eggs, pancake and a bagel. Lunch - beef barley soup, crackers and a bland tasting cheese sandwich. Dinner - stir fry chicken, veggies and several desserts. Yes, Mom is indulging. This is great to see.
Mom continues to build her strength and endurance. She fatigues quickly, but she is on her way. She walked this am, afternoon and evening with me. This afternoon, Mom met with a Meditation Therapist. I use a lot of breathing techniques for my own healing and maintenance and this is one of them. Mom, surprisingly to herself, embraced learning how to "get out of her head" and into her breath. She actually felt a shift of relaxation and calmness after her session. I am sure this will become a useful tool for her. Mom, actually requested several sessions when she finally gets discharged.
This evening I learned how to flush Mom's Hickman. This will prepare us for when she gets discharged. At this point the Dr.'s are still tracking her blood counts and are waiting for them to rise daily. She is still receiving antibiotics and several other meds related to nausea and if needed to maintain full system functioning. PATIENCE is the name of the game.
Another wonderful day together. Stay Tuned - More to come tomorrow.
Hugs to all,
Karen
Tuesday, November 24, 2009
Getting Stronger Day by Day
Today is day 18 of Chemo treatment. Moms blood counts are expected to rise in the next few days. She continues to receive antibiotics until her white blood cells fully recover. Mom is on her second day of eating a regular diet. Mom is now able to transfer from her bed and into the bathroom herself and back. Mom walked in the am 3 laps, in the pm 4 laps, and completed her lower extremity exercises with me. Today was her surprise from me. She received a full body massage instead of extremity only since I arrived nearly two weeks ago. Mom was in heaven. Her favorites are to have her feet massaged and now more than ever, her head massaged.
Mom was waiting for me this morning sitting up in her chair and anxious to walk and do some exercises. She first had to show me her "new doo". Yup, she is officially and proudly showing her "Baby Head" look. Her peach fuzz is soft and actually has a lot of light orange/red color and yes, grey. She has the cutest little head. Mom focuses on a positive attitude, being strong and clear of her goals, working on being in the present and simply getting better.
In the past three days, Mom has surprised her medical staff regarding her progress. They are very pleased to see how physically strong, emotionally trying to confront her thoughts and fears and how quick witted she is. Mom and I giggle that her recovery pace is due to my cousin Jody's home made chicken broth, combined with allowing me to push her small amounts of food all day, and her desire to get bodywork, exercise and walk daily. In actuality, this is the Ruthie we all know. She takes a while to get used to something new presented to her, but after she realizes this new "situation" is here to stay..... she is all over it to control "IT" and not be controlled.
I left the hospital around 11:30pm. Mom and I watched Dancing with the Stars finale. I wouldn't miss this time with her. It was wonderful to see her so into the show. She was laughing, critiquing the dancers and simply enjoying. It was such a treat for both of us to be engaging in something else other than being in the hospital for her healing.
Again thank you for keeping in touch with mom and the the rest of us. She and we are enjoying all the wonderful support and kind words of.
Karen
Mom was waiting for me this morning sitting up in her chair and anxious to walk and do some exercises. She first had to show me her "new doo". Yup, she is officially and proudly showing her "Baby Head" look. Her peach fuzz is soft and actually has a lot of light orange/red color and yes, grey. She has the cutest little head. Mom focuses on a positive attitude, being strong and clear of her goals, working on being in the present and simply getting better.
In the past three days, Mom has surprised her medical staff regarding her progress. They are very pleased to see how physically strong, emotionally trying to confront her thoughts and fears and how quick witted she is. Mom and I giggle that her recovery pace is due to my cousin Jody's home made chicken broth, combined with allowing me to push her small amounts of food all day, and her desire to get bodywork, exercise and walk daily. In actuality, this is the Ruthie we all know. She takes a while to get used to something new presented to her, but after she realizes this new "situation" is here to stay..... she is all over it to control "IT" and not be controlled.
I left the hospital around 11:30pm. Mom and I watched Dancing with the Stars finale. I wouldn't miss this time with her. It was wonderful to see her so into the show. She was laughing, critiquing the dancers and simply enjoying. It was such a treat for both of us to be engaging in something else other than being in the hospital for her healing.
Again thank you for keeping in touch with mom and the the rest of us. She and we are enjoying all the wonderful support and kind words of.
Karen
Monday, November 23, 2009
A Brighter Day
Mom slept well last night. All day into the evening, Mom had an increase in energy, had a strong voice, had a small appetite and was in good spirits. Mom's medical status today; her blood counts were showing slight recovery, white blood cells were increasing, she is still on antibiotics, her vitals continue to be monitored throughout the day and is on a "regular diet."
Today, Mom and I early am sat together in her room chatting for almost 2 hours. We took two walks around the nurses station. This afternoon she did four laps and then rested. This evening Mom completed five laps and rested afterward. We completed five laps simply because she was chatting up a storm with all the Dr.'s and Nurses and lost track of her laps. I wasn't going to say anything. She is to do what ever she can at this point. Yup, glimpses of Mom are showing at this point.
I am very pleased that Mom ate in the am, ate in the afternoon and evening with me. Not her usual amount of food, but she is eating! All great news. Today, Mom got used to her hair being cut short and wearing a fleece hat and tomorrow I will be shaving her remaining hair off. Yup, she is going for the baby bald look. She is looking forward to not having to fuss with her hair falling out anymore.
Mom and I watched Dancing with the stars tonight. She and I really had fun laughing, critiquing and giving scores to the dancers. It was 10:20pm and Mom was finally winding down and ready for bed. I left her with a full stomach, moderately tired and mentally calm. She is mentally calm because Poppie's cardiology appointment today went very well. He received a report of "flying colors." All is on track two months post op. Poppie is gearing up to be the greatest "home care assistant" when Mom enters remission and is able to head home.
Sleep Well,
Karen
Sunday, November 22, 2009
Mom had a small appetite today
Kimmy and I arrived early this morning to find Mom finishing a lemon ice. Kimmy had a 30 minute visit with Mom and then I took her to the airport. Mom and I were both very sad to say good bye to Kimmy. Just when we all thought there were no more tears in any of us, "Niagara Falls" began.
I returned from the airport and Mom was hungry. I was so happy to see her eat. She had a bowl of chicken broth, crackers and another lemon ice. Mom is to maintain a liquid diet today with crackers and or toast only. Tomorrow we hope the Dr.'s change her food intake to bland intake. She is craving to eat scrambled eggs.
Mom took a shower today. Yup, first time in a shower in 19 days. We all know how good that would feel. Say good by to sponge baths! Unfortunately, today was the day that moms hair decided to fall out while in the shower. I cut and styled Moms hair today. She was a trooper through this experience, I am so proud of her. We shared some tears and then admired my first attempt as a hairdresser. It actually looks very cute considering I have never cut hair before. When Mom sees a lot of her remaining hair on her pillow we will than shave off the rest. Mom does look adorable in her fleece hat. She received a lot of compliments from the medical staff all day and night.
Mom continues to be monitored very closely by her medical staff. She received IV platelets this am, received antibiotics and keeping a close watch on all her vitals. She continues on with 48 hours of no fever, no diarrhea, no vomiting nor nausea. She is still being watched for her bruising and slight bleeding through the nose. All her symptoms are expected according to her medical team.
Mom and I spent the afternoon telling stories, talking about people, watching football and planning things to do when she gets out the hospital and then traveling when she is finished with her treatments and has her energy back. Poppie and my brother Brian came by for several hours to be with mom. Brian, who is a great story teller, had us all laughing. It is wonderful to see Mom giggling or simply laughing out loud. It all helps us forget why we are in a hospital for a few minutes. I am so grateful to be given the opportunity to assist and aid Mom back to health. She does challenge me a bit when I get her up to walk and then walk extra, exercise and then do some extra exercises, but I know she appreciates it.
Again, thank you for all your support and wonderful words of encouragement,
Karen
Busy Day Yesterday - Saturday November 21
Yesterday, Mom had her first day with a slight appetite. Her stomach pains and cramps decreased in frequency, intensity and duration of time. They primarily came after drinking and eating something. She was still on a clear liquid diet. She was 24 hours NO fever. She did start showing bruising around her body, blemishes on her skin and started with slight nose bleeds. She received several IV bags of blood, was still on antibiotics, her counts remained low as expected and was in good spirits all morning, afternoon and into the evening. Mom actually was able to walk with me yesterday 3 laps in the mid afternoon. She also reclined in a chair for a good half hour when visiting with family.
More to share this evening on all her great accomplishments from the day.
Hugs to everyone,
Karen
More to share this evening on all her great accomplishments from the day.
Hugs to everyone,
Karen
Friday, November 20, 2009
A Better Day
Mom is now 17 days in the hospital and 14 days into her Chemo treatment. Mom's fever had broken early this morning. She is still suffering from abdominal pains and cramps. The good news is that the stomach issue is occurring with less intensity, frequency and has decreased in time. She is still suffering from the diarrhea but thankfully that has decreased as well. Mom has started show some dermatological blemishes on her nose and facial cheeks. I check her body daily and do not see anything else surfacing on her skin.
The doctors continue to work on resolving the stomach issue. Mom is still on a liquid diet, she is receiving anti-biotic, and receiving extra blood. She at this point is at her lowest levels. The medical team is constantly in her room checking one vital or another. Mom all day has been receiving medication, vitamins, or different IV medication or blood to protect and support her system. In the coming days her body will be rebuilding itself and getting stronger.
Today mom had more acute mental focus. Mom in result began to teach the hospital staff how to make her more comfortable and was firing questions and making statements to the medical team regarding her treatment protocol. Now this is our Little Ruthie we know, :)
Mom, all day into the night, had windows of time were she was more talkative, laughing and interacting with all whom spoke with her in person. She still is having a challenging time to a speak on the phone. I do not push her to do talk on the phone. Instead, I push her to get up out of bed, to do her exercises with me or to eat. Mom took an early morning stroll around the nurses station. Unfortunately, this afternoon and this evening her stomach pains were too strong to get her walking.
The second bone marrow biopsy was to be today. Since she has an unknown situation with the stomach her Dr.'s on her team decided best to put it off for a few days. We all hope that the days to come will not be as painful as the past 2 weeks. Mom, was happy tonight that she had Poppie, Kimmy and I till 10:30pm visiting. Pray she is able to sleep through the majority of the night. This would be the first in MANY weeks over the past month.
Again, thank you for all the support and healing energy.
With much love,
Karen, Kimmy and the entire Family xoxo
The doctors continue to work on resolving the stomach issue. Mom is still on a liquid diet, she is receiving anti-biotic, and receiving extra blood. She at this point is at her lowest levels. The medical team is constantly in her room checking one vital or another. Mom all day has been receiving medication, vitamins, or different IV medication or blood to protect and support her system. In the coming days her body will be rebuilding itself and getting stronger.
Today mom had more acute mental focus. Mom in result began to teach the hospital staff how to make her more comfortable and was firing questions and making statements to the medical team regarding her treatment protocol. Now this is our Little Ruthie we know, :)
Mom, all day into the night, had windows of time were she was more talkative, laughing and interacting with all whom spoke with her in person. She still is having a challenging time to a speak on the phone. I do not push her to do talk on the phone. Instead, I push her to get up out of bed, to do her exercises with me or to eat. Mom took an early morning stroll around the nurses station. Unfortunately, this afternoon and this evening her stomach pains were too strong to get her walking.
The second bone marrow biopsy was to be today. Since she has an unknown situation with the stomach her Dr.'s on her team decided best to put it off for a few days. We all hope that the days to come will not be as painful as the past 2 weeks. Mom, was happy tonight that she had Poppie, Kimmy and I till 10:30pm visiting. Pray she is able to sleep through the majority of the night. This would be the first in MANY weeks over the past month.
Again, thank you for all the support and healing energy.
With much love,
Karen, Kimmy and the entire Family xoxo
Thursday, November 19, 2009
A bit more Interactive today
Kimmy, Poppie and I strolled in this morning finding Mom sleeping. We love when she sleeps. That means in our minds that her body is gathering strength to fight, she is recharging with energy, and she is NOT in pain, for at least that period of time. :) We hung up, under moms television in her hospital room, her para sailing shirt she received 2 years ago for flying 1200 feet above the ocean. All day she was beaming telling the story about this adventure and others. She shared her stories about me exposing her to rock climbing, team ropes courses, mountain biking, sleeping in a tent alone, a solo midnight hike in the mountains, eating her first smore over an open fire etc...to her nurses, to her Dr.'s and to the aides. It was wonderful to see mom's excitement back about reaching goals that appeared unreachable in the past. We then spoke that this too may seem an unreachable goal but will be just as obtainable as her many other accomplishments.
Mom is still on a liquid diet today. She is still suffering from intermittent abdominal pain and cramps, nausea and fevers around 101. The greatest increase of nausea or stomach symptoms occur when having to transfer to "relieve herself" She calls it her "throne." The other time is when we have her get up to walk a bit.
I am happy to report, today Mom is keeping her liquid diet down. This includes chicken broth, strawberry jello, cranberry juice, water, ice chips and all the plethora of medications she is receiving for her symptoms. Mom is a trooper.
Mom is in the stage now that the chemo is doing its job and she is feeling the effects. Mom today is quiet, but staying focused on doing all she can to be strong to be able to go home at the end of the month. She continues to include me in her game plan. I am to keep up daily every hour or more with soft tissue work, range of motion and stretching with her. She did start with a Physical Therapist whom came in to take her for a spin around the nurses station.
It was wonderful for mom to have Brian, Poppie, Kimmy and her grandson Reece with her today. Michael and his wife Cindy have had bad colds so they have not been permitted into the hospital room yet. Daily phone calls is the means they give mom support and strength for now.
In closing, to everyone who would love to say hello to Mom and hear her voice, she says thank you for thinking of her. Her energy is still low and is not ready to speak on the phone. Thank you for understanding. I will continue to keep you up to date through the blog.
All our appreciation for the endless cards, emails and responses to the blogs,
Momma Ruthie, Poppie, Michael, Cindy, Brian, Reece, Karen, Kimmy xoxox
Mom is still on a liquid diet today. She is still suffering from intermittent abdominal pain and cramps, nausea and fevers around 101. The greatest increase of nausea or stomach symptoms occur when having to transfer to "relieve herself" She calls it her "throne." The other time is when we have her get up to walk a bit.
I am happy to report, today Mom is keeping her liquid diet down. This includes chicken broth, strawberry jello, cranberry juice, water, ice chips and all the plethora of medications she is receiving for her symptoms. Mom is a trooper.
Mom is in the stage now that the chemo is doing its job and she is feeling the effects. Mom today is quiet, but staying focused on doing all she can to be strong to be able to go home at the end of the month. She continues to include me in her game plan. I am to keep up daily every hour or more with soft tissue work, range of motion and stretching with her. She did start with a Physical Therapist whom came in to take her for a spin around the nurses station.
It was wonderful for mom to have Brian, Poppie, Kimmy and her grandson Reece with her today. Michael and his wife Cindy have had bad colds so they have not been permitted into the hospital room yet. Daily phone calls is the means they give mom support and strength for now.
In closing, to everyone who would love to say hello to Mom and hear her voice, she says thank you for thinking of her. Her energy is still low and is not ready to speak on the phone. Thank you for understanding. I will continue to keep you up to date through the blog.
All our appreciation for the endless cards, emails and responses to the blogs,
Momma Ruthie, Poppie, Michael, Cindy, Brian, Reece, Karen, Kimmy xoxox
Wednesday, November 18, 2009
Sleep was on the menu for today
Kimmy flew into Rochester today at 11 am. Poppie, Kimmy and I drove directly to the hospital to find Mom sleeping. She slept for 2 hours. Several times she awoke in a groggy state needing me to massage the pain from her feet, ankles, lower legs and or neck. Mom is on a strict liquid diet for today. The Dr.'s are in question as to why she is experiencing severe cramping and pain in her abdominal region. She is still receiving medication for her fever which is between 100.8 to 101.6 all day.
The good news today, is that mom only has mild nausea when transferring to the camode. She no longer has the the severe body shakes, diarrhea, nor vomiting. We consider this is a better day, :) Mom had the Palliative Care Dr.'s in to chat with her today. She began to open up and share her true feelings with them. This was an excellent break through for her. They also were able to be a strong advocate to speak with her Oncology team to adjust her med's to seek more immediate comfort for her. They are doing a wonderful job.
Mom was able to drink her chicken broth and have some sherbet for lunch today. She is extremely weak and consistently in a cold state. My brother Brian and Poppie strolled in around 4pm to hang with Mom. At 5pm, Mom received medication for her fever and an IV bag of platelets. Within a half hour her energy perked up and she asked to go for a walk. She took a spin around the nurses station, did some leg lifts and for the 1st time, since being admitted to the hospital,sat up in a reclining chair. She slept on and off for an hour and half. Yes, I set her up ergonomically with lots of pillows and she fell asleep.
Mom got into bed around 7:45pm and is set for the night. Her only symptom right now is minor pains in her stomach. Lets all hope she sleeps the majority of the night. I left Mom while she was in a deep sleep, deep breathing and looking peaceful and relaxed. She will now be spoiled by the night shift. It is wonderful that Mom has quickly developed a warm relationship with all her aides and nurses. I know, you are not surprised and would expect nothing different.
More to come tomorrow.
Sleep well and peaceful dreams,
Karen
The good news today, is that mom only has mild nausea when transferring to the camode. She no longer has the the severe body shakes, diarrhea, nor vomiting. We consider this is a better day, :) Mom had the Palliative Care Dr.'s in to chat with her today. She began to open up and share her true feelings with them. This was an excellent break through for her. They also were able to be a strong advocate to speak with her Oncology team to adjust her med's to seek more immediate comfort for her. They are doing a wonderful job.
Mom was able to drink her chicken broth and have some sherbet for lunch today. She is extremely weak and consistently in a cold state. My brother Brian and Poppie strolled in around 4pm to hang with Mom. At 5pm, Mom received medication for her fever and an IV bag of platelets. Within a half hour her energy perked up and she asked to go for a walk. She took a spin around the nurses station, did some leg lifts and for the 1st time, since being admitted to the hospital,sat up in a reclining chair. She slept on and off for an hour and half. Yes, I set her up ergonomically with lots of pillows and she fell asleep.
Mom got into bed around 7:45pm and is set for the night. Her only symptom right now is minor pains in her stomach. Lets all hope she sleeps the majority of the night. I left Mom while she was in a deep sleep, deep breathing and looking peaceful and relaxed. She will now be spoiled by the night shift. It is wonderful that Mom has quickly developed a warm relationship with all her aides and nurses. I know, you are not surprised and would expect nothing different.
More to come tomorrow.
Sleep well and peaceful dreams,
Karen
Tuesday, November 17, 2009
Momma Ruthie is staying focused
Another rough morning, afternoon and into the night. Today, mom focused on decreasing her pains and other symptoms (use your imagery) with her mental focus, deep breathing, medications, and me trying every trick I have learned as a neuromuscular soft tissue therapist. She seems to relax best with me lightly rubbing her entire back and hips, slowly moving her joints around in positions and her favorite is her feet being rubbed and played with. She does have small windows of sleep which last about 15-30 minutes and then she is awaken by severe stomach cramps, fever, nausea or chills.
Despite all the discomfort she was up this afternoon for a quick tour of the nurses station. She continues to be able to transfer herself from the bed, to standing, and walking to the ladies room. She is extremely weak, but she is doing it. This we all are happy to see.
Poppie and I met with her team of support from the Palliative Care Division. They are Md's who interface with her oncology team. Palliative Care is medical care that focuses on the patients relief of pain, symptoms and stress of serious illness. The goal is to help people live comfortably and to offer the best quality life for patients and their families.
Mom was finally asleep close to 10pm. I gathered my things and headed home to a yummy meal Poppie prepared for me. We then spend a good half our rehashing the day and checking in with each other on how we are taking all this. Lets me say, though a very emotional painful trip home with the family, I would not want to be anywhere else, but by my parents side.
Good Night and Happy Dreams,
Karen
Despite all the discomfort she was up this afternoon for a quick tour of the nurses station. She continues to be able to transfer herself from the bed, to standing, and walking to the ladies room. She is extremely weak, but she is doing it. This we all are happy to see.
Poppie and I met with her team of support from the Palliative Care Division. They are Md's who interface with her oncology team. Palliative Care is medical care that focuses on the patients relief of pain, symptoms and stress of serious illness. The goal is to help people live comfortably and to offer the best quality life for patients and their families.
Mom was finally asleep close to 10pm. I gathered my things and headed home to a yummy meal Poppie prepared for me. We then spend a good half our rehashing the day and checking in with each other on how we are taking all this. Lets me say, though a very emotional painful trip home with the family, I would not want to be anywhere else, but by my parents side.
Good Night and Happy Dreams,
Karen
Monday, November 16, 2009
Monday 11/16/09
Mom had a very rough night. All symptoms that began yesterday rolled throughout the night into the morning. The Dr.'s were able today to give her some medication to decrease some of her symptoms. Mom is on day 10 of her treatment. The following 11 days will be the most challenging. Mom will be combating a plethora of uncomfortable to painful experiences.
Today was very similar to yesterday with increased symptoms. Mom is struggling to stay positive. Amongst all the pain she is forcing herself to walk a bit with me. I will soon push her to eat a bit more rest a good half hour and walk again with me. She said she prefers when I work on her instead of walking. Of course I said after a decent walk I would work on her until she falls asleep. A little bribe never hurt anyone, wink.
Before I left for the night I gently massaged Mom until she was resting a bit more soundly. I went left a bit after 10pm.
Today was very similar to yesterday with increased symptoms. Mom is struggling to stay positive. Amongst all the pain she is forcing herself to walk a bit with me. I will soon push her to eat a bit more rest a good half hour and walk again with me. She said she prefers when I work on her instead of walking. Of course I said after a decent walk I would work on her until she falls asleep. A little bribe never hurt anyone, wink.
Before I left for the night I gently massaged Mom until she was resting a bit more soundly. I went left a bit after 10pm.
Sunday 11/15/09
Today mom is feeling the effects of the chemo more than the other days. She has increased nausea, up and down every hour for the lavatory, no appetite though I am making her join me in eating. She has increased weakness, increased instability when standing,difficultly walking, emotionally she is very sad and says “this is such a bitch!” We are trying to keep all our conversations positive and supportive. Mom is sleeping a lot today. I am happy for that so she can heal her body and rest her mind.
She awoke after sleeping for 2 hours to her Buffalo Bills playing and winning. This made her happy. We sat and spoke about the “Choking Chargers” vs Buffalo Bills. She of course is able to tell me why Buffalo is the better of the two teams.
Mom insisted that I order something off the “Menu” for lunch with her. Well the Dietician was to find chicken broth for me, steamed veggies and brown rice, due to my food selections with Crohn’s and Colitis. Mom looked at me and said "and I thought I had it hard.” We laughed together and I ordered my chicken broth.
The evening and into the night again was every hour with severe abdominal cramps, nausea, etc... I keep telling Mom that the chemo is now purging the cancer cells from her body and try to allow herself to simply take this ride towards recovery.
She awoke after sleeping for 2 hours to her Buffalo Bills playing and winning. This made her happy. We sat and spoke about the “Choking Chargers” vs Buffalo Bills. She of course is able to tell me why Buffalo is the better of the two teams.
Mom insisted that I order something off the “Menu” for lunch with her. Well the Dietician was to find chicken broth for me, steamed veggies and brown rice, due to my food selections with Crohn’s and Colitis. Mom looked at me and said "and I thought I had it hard.” We laughed together and I ordered my chicken broth.
The evening and into the night again was every hour with severe abdominal cramps, nausea, etc... I keep telling Mom that the chemo is now purging the cancer cells from her body and try to allow herself to simply take this ride towards recovery.
Saturday, November 14, 2009
Thursday 11/12/09
My childhood best friend Lisa "Metch" and I arrived safely into Rochester, Thursday 11/12/09. Kimmy arrives next Wednesday and leaving Sunday. Metch and I drove immediately from the airport to the hospital to find Mom sitting up in bed, wearing about 50 pounds of fluid weight, and resting quietly. The three of us immediately began chatting between our crocodile tears. Poppie showed up minutes after us. The four of us spoke and were speaking with Kimmy and Shayna Punum via a webcam using Skype. I brought my laptop which has a webcam. Yup, technology is wonderful at times like these. Mom perked up watching Kimmy and Shayna on the webcam and she began to tell stories about being in San Diego and can't wait to be back to San Diego. Poppie, Metch and I went for a bite to eat while Mom rested and slept a bit. Mom got her second wind after taking an afternoon break. We were at the hospital till 10pm. Yes, Mom dominated the conversations. All the staff on her oncology ward are outstanding.
Friday 11/13/09
Metch and I arrived late morning to find Mom looking healthier than Thursday. The Doctor's adjusted some meds overnight and it decreased some of her edema. Mom said her legs are large enough to carry a baby grand piano. Mom looks forward to every meal like Poppie did as they feel their in a 5 star hotel with room service.
11/14/09 Saturday
Mom is on her new meds and feeling exhausted this morning. Once again, the treatment is for 30 days. For the first 7 days she is on chemo and steroids. Now, for the next 7 days she is receiving different medications. The change in medications will occur again in the next 7 days and the 7 days after that. On day 30, the doctor's will run tests to see if Mom has entered remission. By afternoon today, Mom regained a healthy appetite and a boost in energy. She was very talkative and lively with the nurses and everyone. Metch suprised me today with a breakfast reunion with friends from 30 years ago that I have not seen. We took many pictures and shared them with Mom. Mom and Poppie remembered my friends and began reminicing about the many fun times we had with them. Metch then said goodbye as she needed to return home to California. Poppie and I stayed with Mom most of the day into the evening. She began to doze off and we thought it best to leave then.
My childhood best friend Lisa "Metch" and I arrived safely into Rochester, Thursday 11/12/09. Kimmy arrives next Wednesday and leaving Sunday. Metch and I drove immediately from the airport to the hospital to find Mom sitting up in bed, wearing about 50 pounds of fluid weight, and resting quietly. The three of us immediately began chatting between our crocodile tears. Poppie showed up minutes after us. The four of us spoke and were speaking with Kimmy and Shayna Punum via a webcam using Skype. I brought my laptop which has a webcam. Yup, technology is wonderful at times like these. Mom perked up watching Kimmy and Shayna on the webcam and she began to tell stories about being in San Diego and can't wait to be back to San Diego. Poppie, Metch and I went for a bite to eat while Mom rested and slept a bit. Mom got her second wind after taking an afternoon break. We were at the hospital till 10pm. Yes, Mom dominated the conversations. All the staff on her oncology ward are outstanding.
Friday 11/13/09
Metch and I arrived late morning to find Mom looking healthier than Thursday. The Doctor's adjusted some meds overnight and it decreased some of her edema. Mom said her legs are large enough to carry a baby grand piano. Mom looks forward to every meal like Poppie did as they feel their in a 5 star hotel with room service.
11/14/09 Saturday
Mom is on her new meds and feeling exhausted this morning. Once again, the treatment is for 30 days. For the first 7 days she is on chemo and steroids. Now, for the next 7 days she is receiving different medications. The change in medications will occur again in the next 7 days and the 7 days after that. On day 30, the doctor's will run tests to see if Mom has entered remission. By afternoon today, Mom regained a healthy appetite and a boost in energy. She was very talkative and lively with the nurses and everyone. Metch suprised me today with a breakfast reunion with friends from 30 years ago that I have not seen. We took many pictures and shared them with Mom. Mom and Poppie remembered my friends and began reminicing about the many fun times we had with them. Metch then said goodbye as she needed to return home to California. Poppie and I stayed with Mom most of the day into the evening. She began to doze off and we thought it best to leave then.
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