Mom is sending everyone a Happy New Year with good health and happiness. She looks forward to 2010 and entering and then staying in remission. She plans on taking a family cruise, traveling and going back to overseeing Poppie with an eagle eye.
Overall, Mom continues to baffle her Medical Team with how well she is responding to her re-induction of Chemo. She received an extremely aggressive Chemo treatment 9 days ago to address her AML and new findings of skin leukemia that surfaced 15 days ago. This Chemo focuses on crossing the blood brain barrier so it can reach cancer cells in the bone, spinal cord, brain and skin. In other words, this will address the entire body and system. We hope for the best.
Mom is on day 9 and is exhibiting fatigue when in locomotion. This is due to her counts are decreasing, as expected. Mom's red blood cells were below normal today. In result she received an IV for a red blood cell transfusion. Shortly after 3 hours of transfusion, she was up and walking with me for a good 40 minutes. Mom continues to receive preventative medication for viral infections, bacteria infections and fungal infections.
Today was a busy day. From early morning to after New Years Mom's staff revolved in and out of her room. Many of them wanted to see her New Year decorations and simply chat. Poppie came by with lots of goodies for us to bring in the New Year. He stayed for dinner and headed home around 8pm.
Mom and I watched the ball drop in Time Square on TV, spoke with Kimmy in San Diego on Skype to celebrate the East Coast New Year. Poppie, Mike, Brian and Reece all called to wish Mom a wonderful New Year. In addition, Mom received calls from around the country to wish her the best. It was wonderful. Mom and I stayed up to Skype Kimmy, Shayna Punum and our dear friends Brenna and Mindy to help celebrate the West Coast New Year. Yup, Mom and I are pulling an all nighter in her "dorm" room in the hospital.
We trust you had a safe and memorable New Year. We surely did.
Good Night or should we say Good Morning, wink.
Karen and Momma Ruthie
Thursday, December 31, 2009
Wednesday, December 30, 2009
Day 8 of Treatment
Mom the past three days is doing well. Her last Chemo induction was Monday. Daily her energy levels have been dropping as her overall numbers. Mom is not in any pain nor showing any adverse side effects yet. Her doctors are expecting some symptoms around day 9 or 10. They continue to be amazed with her ability to compact the Chemo.
I flew into Rochester at 1 am. Yes, Poppie picked me up and had a hot meal waiting at the house for me. What a surprise?, not. I actually called Mom and she too was having a nibble at the hospital so we chatted and then both went to bed.
Mom and I had a wonderful reunion this morning. All her staff came up to me with big hugs and welcomed me back. It felt as if I was visiting Mom at her dorm room and all her floor mates stopped in to hang out. Mom and I just finished decorating her "dorm room" with Happy New Year decorations that I brought in.
More to come to tomorrow.
Happy New Year to all,
Karen and Momma Ruthie
I flew into Rochester at 1 am. Yes, Poppie picked me up and had a hot meal waiting at the house for me. What a surprise?, not. I actually called Mom and she too was having a nibble at the hospital so we chatted and then both went to bed.
Mom and I had a wonderful reunion this morning. All her staff came up to me with big hugs and welcomed me back. It felt as if I was visiting Mom at her dorm room and all her floor mates stopped in to hang out. Mom and I just finished decorating her "dorm room" with Happy New Year decorations that I brought in.
More to come to tomorrow.
Happy New Year to all,
Karen and Momma Ruthie
Sunday, December 27, 2009
Day 5 of Chemo and going well
Mom continues to impress her medical team. She is maintaining her strength, energy, and focus on fighting her leukemia. Mom is not showing any symptoms from her Chemo induction yet. :) She is taking advantage of feeling well. She is eating every meal and then some, walking many times in the day and is exercising her upper and lower body. She wants to maintain her present muscle tone to help herself fight the Chemo treatment. Yes, Mom still incredibly self motivated to get into remission.
Everyday, since being admitted last Tuesday, Brian and Poppie visit for hours to keep Mom company. They are so touched, though not surprised, too how many of her medical team and other medical professionals visit her daily. Mom so enjoys the visits, the conversations and getting to know others.
She has one more induction to go. She and all of us pray her symptoms are not impacting on her in the days to follow. I am flying back to Rochester this Tuesday, December 29th, to again assist with Mom during the next 3-4 weeks post Chemo induction. Sadly Kimmy will not be able to join me on this trip. We are both happy that I will be home to celebrate with Mom and Poppie to bring in the New Year.
I will post again if anything changes for Mom. Other from that I will post again after I arrive in Rochester.
Happy Holidays and Happy New Year,
Karen
Everyday, since being admitted last Tuesday, Brian and Poppie visit for hours to keep Mom company. They are so touched, though not surprised, too how many of her medical team and other medical professionals visit her daily. Mom so enjoys the visits, the conversations and getting to know others.
She has one more induction to go. She and all of us pray her symptoms are not impacting on her in the days to follow. I am flying back to Rochester this Tuesday, December 29th, to again assist with Mom during the next 3-4 weeks post Chemo induction. Sadly Kimmy will not be able to join me on this trip. We are both happy that I will be home to celebrate with Mom and Poppie to bring in the New Year.
I will post again if anything changes for Mom. Other from that I will post again after I arrive in Rochester.
Happy Holidays and Happy New Year,
Karen
Friday, December 25, 2009
Happy Holidays From Momma Ruthie
Mom had a good night sleep and continues to impress her Doctors, Nurses and staff. Her medical team is so pleased that Mom is NOT showing any ill effects from the Chemo treatment yet. Mom took herself on 8 long walks yesterday around the Oncology floor. Today, she has already zipped around several times. She is feeling "like herself" though tires quickly.
It is wonderful how Mom's medical support team, on the Oncology floor, relate with her and treat her. Since arriving last Tuesday, Mom has had NON-STOP staff that visit her. Yes, I mean from 5 minutes to 60 minutes. It is so heart warming to see, though Mom is submerged in her most challenging experience, her unconditional love surround each person she meets and draws him/her in towards her. Mom is still in misbelief that she carries this special gift.
Mom and I were talking about all the people she has met since the beginning of November at the hospital. It is wonderful to hear her giggle in misbelief that so many people like her, instantly feel safe with her and yearn to share their life with her. I deeply believe all the expression of affection, conversation, company, and love for Mom will be her strongest "medication" to support her through this horrifying fight for her quality of life and longevity. As we know, Lil' Ruthie is all heart and will. If anyone is to become an anomaly, it will be MOM!
New experiences continue to be presented to Mom. This morning, Mom had her very first Christmas. Many of the staff brought her holiday gifts. It is wonderful how showered Mom is by all whom meet her.
Have a Fabulous Day to all,
Karen
It is wonderful how Mom's medical support team, on the Oncology floor, relate with her and treat her. Since arriving last Tuesday, Mom has had NON-STOP staff that visit her. Yes, I mean from 5 minutes to 60 minutes. It is so heart warming to see, though Mom is submerged in her most challenging experience, her unconditional love surround each person she meets and draws him/her in towards her. Mom is still in misbelief that she carries this special gift.
Mom and I were talking about all the people she has met since the beginning of November at the hospital. It is wonderful to hear her giggle in misbelief that so many people like her, instantly feel safe with her and yearn to share their life with her. I deeply believe all the expression of affection, conversation, company, and love for Mom will be her strongest "medication" to support her through this horrifying fight for her quality of life and longevity. As we know, Lil' Ruthie is all heart and will. If anyone is to become an anomaly, it will be MOM!
New experiences continue to be presented to Mom. This morning, Mom had her very first Christmas. Many of the staff brought her holiday gifts. It is wonderful how showered Mom is by all whom meet her.
Have a Fabulous Day to all,
Karen
Thursday, December 24, 2009
Mom is determined to get into remission
Mom awoke yesterday in her private room for the month. It was a bitter sweet feeling for her. The Welcome Back message on her wall written from the Oncolocy staff put a warm feeling throughout her body and a smile on her face. Mom began her agressive Chemo treatment yesterday at 12pm.. This course of Chemo is more aggressive than last month. She is receiving Cytarabine for the next week. This Chemo is known to affect the Cerebellum. She is contstantly having her balance and coordination checked in result of this.
Mom is also being pro-active. Every 2 hours about, she is getting out of bed and taking herself for a spin around the nurses station and around the hallways. She and I were laughing when she told me this. We know the real reason for crusing around. She wants to know what is going on, offer assistance with anything, and chat up a storm with everyone while she is able.
She is receiving preventative medication for a variety of possible symptoms that are common to appear. To prevent Karitosis, she started receiving medicated drops in her eyes 3x/day. She is also is receiving anti-nauseau pills 2x/day, and stomach pills for discomforts and pain. Mom's numbers are still in the low but normal ranges. When these numbers begin to drop she immediately is given antibiotics, anti-viral and anti-fungal medication.
Mom is in good spirits and is focusing on a successful month of treatment. She is very aware of the seriousness of this second Chemo induction. She has had non stop visitors since being settled in her private room. Besides my Poppie and brothers, these visitors consist of her Chemo staff from last month. Many Doctors, Nurses, Therapists, Technical Assistants and even her primary Dr. outside the hospital all are stopping by her room to welcome her with big hugs of strength and healing thoughts. This, alone, has helped to slightly drop her fears and anger to what is truly happening to her from time to time in the past two days.
More to come with Mom,
Love and hugs to all. Happy Holidays,
Karen
Mom is also being pro-active. Every 2 hours about, she is getting out of bed and taking herself for a spin around the nurses station and around the hallways. She and I were laughing when she told me this. We know the real reason for crusing around. She wants to know what is going on, offer assistance with anything, and chat up a storm with everyone while she is able.
She is receiving preventative medication for a variety of possible symptoms that are common to appear. To prevent Karitosis, she started receiving medicated drops in her eyes 3x/day. She is also is receiving anti-nauseau pills 2x/day, and stomach pills for discomforts and pain. Mom's numbers are still in the low but normal ranges. When these numbers begin to drop she immediately is given antibiotics, anti-viral and anti-fungal medication.
Mom is in good spirits and is focusing on a successful month of treatment. She is very aware of the seriousness of this second Chemo induction. She has had non stop visitors since being settled in her private room. Besides my Poppie and brothers, these visitors consist of her Chemo staff from last month. Many Doctors, Nurses, Therapists, Technical Assistants and even her primary Dr. outside the hospital all are stopping by her room to welcome her with big hugs of strength and healing thoughts. This, alone, has helped to slightly drop her fears and anger to what is truly happening to her from time to time in the past two days.
More to come with Mom,
Love and hugs to all. Happy Holidays,
Karen
Tuesday, December 22, 2009
A Difficult Day, Tuesday, All Around
4:00 am this morning, East Coast time, Kimmy and I said our "See you Soon" to Mom and Poppie. It was SO difficult to leave knowing Mom was to have yet another follow up appointment today with her Oncologist, find out about her head biopsy's, and to be admitted into the hospital for yet another treatment induction of Chemo. Poppie and Brian took Mom this afternoon for her appointment and stayed with her till she was settled into her hospital room.
Mom's Oncologist told her the results from the head biopsy's. It was not good. Mom now is challenged with yet another symptom form of Leukemia. This changed the original treatment plan we were given last week. Today, Mom was presented with several optional treatment plans. Mom, of-course, chose the plan that would be most aggressive and hopefully the quickest to kill the cancer cells. She decided to face, head on, the symptoms that may follow in result from the Chemo.
Mom was admitted into the hospital this evening. Mom will receive Chemo for 6 days starting tomorrow. She will be in the hospital and closely watched for 30 days. She was informed that a variety of risks may surface with this Chemo treatment as with last months. The positive statement from her Dr. was that most patients her age with AML would not be a candidate to receive the treatment she is about to receive. The direct compliment goes to Mom. In result to how well Mom has maintained optimal health over the past several decades Mom has a very strong heart, healthy organs. She also is stronger today than even last month pre Chemo. Last month she responded very well to the Chemo treatments. Her Oncology team feels her overall present health and strength places her as a very good candidate for the treatment she is soon to begin depsite her age.
I will be returning back to Rochester this coming Monday or Tuesday. I am planning on staying "home" through the month of January to assist in keeping our Energizer Momma Ruthie as comfortable as possible, to spoil her with body work and rehab. and to be a guiding light of strength. Kimmy will return to Rochester mid January to support me, Mom and the family.
Please continue to send Mom your prayers, good health and healing energy.
All Our Deepest Gratitude and appreciation for the endless support,
Karen
Mom's Oncologist told her the results from the head biopsy's. It was not good. Mom now is challenged with yet another symptom form of Leukemia. This changed the original treatment plan we were given last week. Today, Mom was presented with several optional treatment plans. Mom, of-course, chose the plan that would be most aggressive and hopefully the quickest to kill the cancer cells. She decided to face, head on, the symptoms that may follow in result from the Chemo.
Mom was admitted into the hospital this evening. Mom will receive Chemo for 6 days starting tomorrow. She will be in the hospital and closely watched for 30 days. She was informed that a variety of risks may surface with this Chemo treatment as with last months. The positive statement from her Dr. was that most patients her age with AML would not be a candidate to receive the treatment she is about to receive. The direct compliment goes to Mom. In result to how well Mom has maintained optimal health over the past several decades Mom has a very strong heart, healthy organs. She also is stronger today than even last month pre Chemo. Last month she responded very well to the Chemo treatments. Her Oncology team feels her overall present health and strength places her as a very good candidate for the treatment she is soon to begin depsite her age.
I will be returning back to Rochester this coming Monday or Tuesday. I am planning on staying "home" through the month of January to assist in keeping our Energizer Momma Ruthie as comfortable as possible, to spoil her with body work and rehab. and to be a guiding light of strength. Kimmy will return to Rochester mid January to support me, Mom and the family.
Please continue to send Mom your prayers, good health and healing energy.
All Our Deepest Gratitude and appreciation for the endless support,
Karen
Monday, December 21, 2009
A Long Weekend of Joy
To begin, last Friday we did did not receive the details on Mom's biopsy's from her head. We do know the results were sent over to her Oncologist last Friday. We will find out today when we call or when Mom is admitted into the hospital tomorrow at 3:00 PM for her second round of Chemo treatment. To reiterate from last Thursday's blog, Mom will be in the hospital for 5 days starting on Tuesday, December 22nd. If her body accepts the Chemo well, she is sent home on Monday, December 28th. She then is home to cope with any and all side effects from the Chemo. Unfortunately, Kimmy and I need to return to SD tomorrow. I have a few things to tighten up before the New Year. Mom, Poppie and I believe the hospital visit, for a week, will be palatable for Mom without my presence. I will be returning to Rochester around the time she is to return home to assist Poppie with Mom. Yes, we take everything in stride lately.
Her treatment plan for the following two weeks post returning home is as follows; Mondays and Thursdays the Visiting Nurse comes to the house to check Mom's vitals, the condition of her Hickman and to draw blood. Tuesday and Friday Mom returns to the hospital to be examined by her Oncologist and receive an IV of whatever she needs in reflection to the blood drawn the previous day by the Visiting Nurse. I am sure, this may become a challenge to travel if the weather dumps a lot of snow and cold onto Rochester. Remember, two weeks ago a 16 minute drive form the house to the hospital took 90 minutes in a white out. Wow, sunny SD sounds great.
Since last Thursday, Mom has been able to relax with no medical interventions. Yes, emotions of anxiousness, fear, anger, and simply feeling this "AML" is unfair did surface its ugly face over the past several days. Mom has been able to recollect herself to enjoy most of each day.
Thankfully, the weather has been kind to us in Rochester. The past several days has challenged, Kimmy and I not the natives of Rochester New York. The intermittent light flurry's, contending with the single digit cold, the bone chilling windshield factor and light winds were quite biting for us. There is still a beautiful blanket of snow running over the landscape of Rochester. It is gorgeous. This weather surely brings in the Holiday Spirit for Kimmy and I, wink. I think the "Rochesterians" would like a change of pace and have a San Diego Holiday Season.
OK, the fun update for the past weekend. The mornings were spent by Mom and I getting her ready for the day. The afternoons were spent with Mom, Poppie, Kimmy, Me, and whomever stopped by chatting, reading, doing exercises, and simply relaxing. Friday night, Mom and Poppie enjoyed vicariously hearing about the Magic Show Kimmy and I went to see. Yup, Brian had a show and as always it was FANTASTIC! The entire audience, including Kimmy and I, had our jaws and eyes wide open with amazement througout the hour show. Brian's slide of hand tricks, ability to have abjects appear in all places around the room, and his escape acts are incrediable. A show all must see. :)
Saturday, Mom, Poppie, Kimmy and I drove 50 minutes out to Mike and Cindy's house in Naples. It is breathtaking to see their property and the 360 panoramic views. As far as the eye can see, one is onverwhlemed with gorgeous landscape, hills, and, if lucky, wild animals. Mom and Poppie had not seen the improvements Mike had done to the property nor to the house for the past two and half months. After several hours of a wonderful visit, Mom and Poppie heading back into the city. Kimmy and I stayed on for the night.
The four of us headed out to Cindy's Aunt and Uncles farm for a Solstice Party. Yes, it was an outside party. Though the windshield factor was kicking in and the cold was biting it was not snowing. Their was a large open faced shelter which held the food and drinks for all. What a spread it was! Unlimited, hot and cold drinks, several cooked turkeys, pulled pork, crock pots filled with different hot sides, many deserts and more. The highlight of the night, besides great company, was a 10 foot in diameter fire pit. The entire night the fire fueled with creative burning items. Most of the items were hooked up to a 12 foot pole. This created an incrediable inferno of flame. Yes, I am a pyro at heart and one who likes to stay warm too. Kimmy and I felt as if we were at a "Burning Man" event. We were not cold at all as long as we were near the fire pit. It was AWESOME and FUN!
Sunday, my cousin Jody and her husband Bruce hosted Poppies 80th Birthday and my Aunt Fayga's (Jody's Mom) 81st Birthday Party. Jody is an incredible and creative cook. There were 12 of us eating for at least 30 people. So much food, but we could not stop, wink. We all felt the need to recline after eating. I wounder why? The night was wonderful to share with the family. Once we could get ourselves upright, we went to burn a calorie. We took turns to play WII. Actually, Mom and Aunt Fayga enjoyed an exciting golf game. We headed home around 7pm. Mom, Kimmy and I settled in for the night in our PJ's and watched feel good holiday movies and went to bed late. Poppie was watching his "feel good" movies alone. Yup, all scary science fiction movies. We all slept well and are geared up for another relaxing and fun day together.
Today, is our last day together for this visit. It is snowing again. Kimmy and I can watch the snow for hours. Mom requested we have an all nighter tonight. She is trying to extend our time together. Poppie will be taking Kimmy and I to the airport tomorrow, Tuesday, at 4:30 am for a 6:00 am flight out. I will continue to blog from SD after catching up with Mom, Poppie or a family member each day. This be a challenge for me not to be by Mom's side.
Love, Good Health, and Happy Holidays to you,
Karen, Kimmy, Mom, Poppie, Brian, Reece, Mike and Cindy xoxoxo
Her treatment plan for the following two weeks post returning home is as follows; Mondays and Thursdays the Visiting Nurse comes to the house to check Mom's vitals, the condition of her Hickman and to draw blood. Tuesday and Friday Mom returns to the hospital to be examined by her Oncologist and receive an IV of whatever she needs in reflection to the blood drawn the previous day by the Visiting Nurse. I am sure, this may become a challenge to travel if the weather dumps a lot of snow and cold onto Rochester. Remember, two weeks ago a 16 minute drive form the house to the hospital took 90 minutes in a white out. Wow, sunny SD sounds great.
Since last Thursday, Mom has been able to relax with no medical interventions. Yes, emotions of anxiousness, fear, anger, and simply feeling this "AML" is unfair did surface its ugly face over the past several days. Mom has been able to recollect herself to enjoy most of each day.
Thankfully, the weather has been kind to us in Rochester. The past several days has challenged, Kimmy and I not the natives of Rochester New York. The intermittent light flurry's, contending with the single digit cold, the bone chilling windshield factor and light winds were quite biting for us. There is still a beautiful blanket of snow running over the landscape of Rochester. It is gorgeous. This weather surely brings in the Holiday Spirit for Kimmy and I, wink. I think the "Rochesterians" would like a change of pace and have a San Diego Holiday Season.
OK, the fun update for the past weekend. The mornings were spent by Mom and I getting her ready for the day. The afternoons were spent with Mom, Poppie, Kimmy, Me, and whomever stopped by chatting, reading, doing exercises, and simply relaxing. Friday night, Mom and Poppie enjoyed vicariously hearing about the Magic Show Kimmy and I went to see. Yup, Brian had a show and as always it was FANTASTIC! The entire audience, including Kimmy and I, had our jaws and eyes wide open with amazement througout the hour show. Brian's slide of hand tricks, ability to have abjects appear in all places around the room, and his escape acts are incrediable. A show all must see. :)
Saturday, Mom, Poppie, Kimmy and I drove 50 minutes out to Mike and Cindy's house in Naples. It is breathtaking to see their property and the 360 panoramic views. As far as the eye can see, one is onverwhlemed with gorgeous landscape, hills, and, if lucky, wild animals. Mom and Poppie had not seen the improvements Mike had done to the property nor to the house for the past two and half months. After several hours of a wonderful visit, Mom and Poppie heading back into the city. Kimmy and I stayed on for the night.
The four of us headed out to Cindy's Aunt and Uncles farm for a Solstice Party. Yes, it was an outside party. Though the windshield factor was kicking in and the cold was biting it was not snowing. Their was a large open faced shelter which held the food and drinks for all. What a spread it was! Unlimited, hot and cold drinks, several cooked turkeys, pulled pork, crock pots filled with different hot sides, many deserts and more. The highlight of the night, besides great company, was a 10 foot in diameter fire pit. The entire night the fire fueled with creative burning items. Most of the items were hooked up to a 12 foot pole. This created an incrediable inferno of flame. Yes, I am a pyro at heart and one who likes to stay warm too. Kimmy and I felt as if we were at a "Burning Man" event. We were not cold at all as long as we were near the fire pit. It was AWESOME and FUN!
Sunday, my cousin Jody and her husband Bruce hosted Poppies 80th Birthday and my Aunt Fayga's (Jody's Mom) 81st Birthday Party. Jody is an incredible and creative cook. There were 12 of us eating for at least 30 people. So much food, but we could not stop, wink. We all felt the need to recline after eating. I wounder why? The night was wonderful to share with the family. Once we could get ourselves upright, we went to burn a calorie. We took turns to play WII. Actually, Mom and Aunt Fayga enjoyed an exciting golf game. We headed home around 7pm. Mom, Kimmy and I settled in for the night in our PJ's and watched feel good holiday movies and went to bed late. Poppie was watching his "feel good" movies alone. Yup, all scary science fiction movies. We all slept well and are geared up for another relaxing and fun day together.
Today, is our last day together for this visit. It is snowing again. Kimmy and I can watch the snow for hours. Mom requested we have an all nighter tonight. She is trying to extend our time together. Poppie will be taking Kimmy and I to the airport tomorrow, Tuesday, at 4:30 am for a 6:00 am flight out. I will continue to blog from SD after catching up with Mom, Poppie or a family member each day. This be a challenge for me not to be by Mom's side.
Love, Good Health, and Happy Holidays to you,
Karen, Kimmy, Mom, Poppie, Brian, Reece, Mike and Cindy xoxoxo
Thursday, December 17, 2009
More biopsies awaiting results
This past Wednesday, Mom had an appointment with a dermatologist specialist that is connected with her Oncologist Dr. Mom developed several bumps with redness on the top of her scalp and a bluish/green spot. The dermatologist gave Mom a complete evaluation and biopsied the locations on her head. We hope to hear the results today Friday.
This past Tuesday, Wednesday, and Thursday, Mom was having a difficult time emotionally. She kept thinking about the questionable areas biopsied and about next Tuesday, December 22nd, starting her second round of Chemo. All her fear, anger, frustrations, and feelings "Why Me this is so unfair" all came back in full force. I and Kimmy will be leaving on December 22 on a 6 am flight. I again, need to be back in SD for some personal medical.
Mom, Poppie, Kimmy and I spoke and I will be returning a week and half later to care take Mom when she returns home from the hospital. Mom doesn't "fight" me too badly to get her to eat,to walk and to do her movement exercises. This is most needed when the Chemo symptoms really show its ugly face. Mom is being strong about this, but is SOOOO frightened. She and I spoke about the fact these emotions will never get easier to cope with regarding this disease. The emotions just become more familiar with each step of the treatment. Mom is working on taking everything in stride and to embrace and treasure each day.
Mom has a new Visiting Nurse on her case, Sarah. She and Mom get a long beautifully. Sarah is athletically minded, quit witted, tender and direct, and immediately sized up Mom's personality. She is having Mom focus on Loving each day to its fullest.
The past several days it has been snowing. Yesterday, we made more Hanukkah cookies, Kimmy and I played in the snow, we made snow angels, and we (Kimmy ran for her life) had a snowball fight. OK, I guess I still am a bit competative. The rest of the day we hung out with the family.
It is great to hear everyone chatting, laughing and caring on together. It keeps in the moment and enjoying. Last night, one of Mom's doctors from the Oncology floor whom she befriended as her own son, came over for dinner with his wife and nine year old son. We had a great evening together. Poppie gave a wonderful explanation of Hanukkah to them and we shared lots of cookies together. Reece, Kimmy, Mom and Poppie and I watched a late movie together and then crashed from a long day.
This am, Mom is feeling emotionally stronger and relaxed. She has regrouped herself and is again thinking one step at a time. She is trying to block out the unknown. Here is where Aunt Carol's relaxation and breathing tapes she made for Mom are so helpful. This afternoon, Mom is going to supervise Kimmy and I in the kitchen. We have gobbled up almost all the cookies and potato latkes that we made earlier in the week.
More to come in the next few days.
Hugs to all,
Karen
This past Tuesday, Wednesday, and Thursday, Mom was having a difficult time emotionally. She kept thinking about the questionable areas biopsied and about next Tuesday, December 22nd, starting her second round of Chemo. All her fear, anger, frustrations, and feelings "Why Me this is so unfair" all came back in full force. I and Kimmy will be leaving on December 22 on a 6 am flight. I again, need to be back in SD for some personal medical.
Mom, Poppie, Kimmy and I spoke and I will be returning a week and half later to care take Mom when she returns home from the hospital. Mom doesn't "fight" me too badly to get her to eat,to walk and to do her movement exercises. This is most needed when the Chemo symptoms really show its ugly face. Mom is being strong about this, but is SOOOO frightened. She and I spoke about the fact these emotions will never get easier to cope with regarding this disease. The emotions just become more familiar with each step of the treatment. Mom is working on taking everything in stride and to embrace and treasure each day.
Mom has a new Visiting Nurse on her case, Sarah. She and Mom get a long beautifully. Sarah is athletically minded, quit witted, tender and direct, and immediately sized up Mom's personality. She is having Mom focus on Loving each day to its fullest.
The past several days it has been snowing. Yesterday, we made more Hanukkah cookies, Kimmy and I played in the snow, we made snow angels, and we (Kimmy ran for her life) had a snowball fight. OK, I guess I still am a bit competative. The rest of the day we hung out with the family.
It is great to hear everyone chatting, laughing and caring on together. It keeps in the moment and enjoying. Last night, one of Mom's doctors from the Oncology floor whom she befriended as her own son, came over for dinner with his wife and nine year old son. We had a great evening together. Poppie gave a wonderful explanation of Hanukkah to them and we shared lots of cookies together. Reece, Kimmy, Mom and Poppie and I watched a late movie together and then crashed from a long day.
This am, Mom is feeling emotionally stronger and relaxed. She has regrouped herself and is again thinking one step at a time. She is trying to block out the unknown. Here is where Aunt Carol's relaxation and breathing tapes she made for Mom are so helpful. This afternoon, Mom is going to supervise Kimmy and I in the kitchen. We have gobbled up almost all the cookies and potato latkes that we made earlier in the week.
More to come in the next few days.
Hugs to all,
Karen
Tuesday, December 15, 2009
Gearing Up for Round Two of Chemo
Kimmy and I arrived in Rochester Monday early morning. Though I was only back in SD for a week, we had so much to catch up on. Mom is doing well physically and mentally. We spent the day talking, telling stories, decorating the house for Hanukkah, laughing, and of course, eating. The highlight was when I gave Mom and Poppie two big bags of homemade Mondale Bread. A dear friend of ours in SD, Jill, surprised them. Mom struggled to keep up with Poppie as he quickly ate nearly a bag himself.
Today,we went for Mom's follow up appointment with her Oncologist. We were anxious, though felt positive. We were informed about Mom's biopsy, blood results and what and when her new treatment plan would begin. Unfortunately, the biopsy only offered information from her bone results. Again, they were unable to draw out any fluid from the bone. This is called a "dry tap." Not uncommon, though this was disappointing. With the present information, they have diagnosed that Mom has Acute Myelogenous Leukemia. Mom's blood tests are looking good at this point. Her Doctors are very pleased. They are optimistic that the next round of Chemo will go well for Mom as last month.
Mom is being re-admitted into the hospital next Tuesday. She will start her second round of Chemo. This Chemo induction is for 5 days. If she does not have a fever and is symptom free, Mom will be returning home on day 6 or 7. At home, for the next two weeks, Mom will have the visiting nurse 2 days a week drawing blood. The day after each blood drawing Mom returns to the hospital for a Dr. visit. If needed, Mom will receive an IV to support her system. Week 3, the Dr. will determine again her status and will evaluate the next course of treatment.
Oh, Mom has an appointment with her dermatologist tomorrow. We found several lumps that developed on her scalp yesterday. We will keep you posted. Her Oncologist is sure it is not anything to worry about.
This evening we had a wonderful Hanukkah dinner, great treats and simply chatted up a storm. All night it has been snowing. Prior to bedtime, there was a beautiful white blanket covering the yards, the streets, the trees etc. It is so beautiful. The snow really brings in the holidays.
Tomorrow am, Mom, Kimmy and I will make Hanukkah cookies and potato latkes.
Happy Holidays. It is wonderful being home with Mom, Poppie and the rest of the family. We went to bed with a steady snow that had already covering the ground. It is gorgeous outside.
Lots of love and good health,
Karen, Kimmy, Lil-Ruthie, and Poppie
Today,we went for Mom's follow up appointment with her Oncologist. We were anxious, though felt positive. We were informed about Mom's biopsy, blood results and what and when her new treatment plan would begin. Unfortunately, the biopsy only offered information from her bone results. Again, they were unable to draw out any fluid from the bone. This is called a "dry tap." Not uncommon, though this was disappointing. With the present information, they have diagnosed that Mom has Acute Myelogenous Leukemia. Mom's blood tests are looking good at this point. Her Doctors are very pleased. They are optimistic that the next round of Chemo will go well for Mom as last month.
Mom is being re-admitted into the hospital next Tuesday. She will start her second round of Chemo. This Chemo induction is for 5 days. If she does not have a fever and is symptom free, Mom will be returning home on day 6 or 7. At home, for the next two weeks, Mom will have the visiting nurse 2 days a week drawing blood. The day after each blood drawing Mom returns to the hospital for a Dr. visit. If needed, Mom will receive an IV to support her system. Week 3, the Dr. will determine again her status and will evaluate the next course of treatment.
Oh, Mom has an appointment with her dermatologist tomorrow. We found several lumps that developed on her scalp yesterday. We will keep you posted. Her Oncologist is sure it is not anything to worry about.
This evening we had a wonderful Hanukkah dinner, great treats and simply chatted up a storm. All night it has been snowing. Prior to bedtime, there was a beautiful white blanket covering the yards, the streets, the trees etc. It is so beautiful. The snow really brings in the holidays.
Tomorrow am, Mom, Kimmy and I will make Hanukkah cookies and potato latkes.
Happy Holidays. It is wonderful being home with Mom, Poppie and the rest of the family. We went to bed with a steady snow that had already covering the ground. It is gorgeous outside.
Lots of love and good health,
Karen, Kimmy, Lil-Ruthie, and Poppie
Thursday, December 10, 2009
A White Out couldn't stop Mom's Bone Biopsy
Despite a white out in Rochester, Brian, Aunt Carol, Poppie and Mom made it to and from the Strong Hospital. What normally takes 16-18 minutes door to door took them an 90 minutes to get home this evening. The Biopsy procedure went as well as could be. The Dr. could not, once again, extract fluid from the bone. The good news is that the Dr. took another bone chip to send to the lab and Mom's overall numbers are continuously elevating.
Next Tuesday, December 15th, Mom has an appointment with her Chemo Dr. Mom will find out what her Biopsy and blood results are. Her Dr. will tell us what her next Chemo treatment plan will be. Kimmy and I return to Rochester on the 14th, Monday. We are happy that we are able to be home to support Mom and the family.
Aunt Carol leaves tomorrow back to Boston if weather permits. She will be greatly missed. Besides her wonderful cooking, her witty and loving self, they will miss greatly her TLC and support.
Mom's attitude, spirit, and mental strength is great.
Happy Chanukah tomorrow night to all,
Karen
Next Tuesday, December 15th, Mom has an appointment with her Chemo Dr. Mom will find out what her Biopsy and blood results are. Her Dr. will tell us what her next Chemo treatment plan will be. Kimmy and I return to Rochester on the 14th, Monday. We are happy that we are able to be home to support Mom and the family.
Aunt Carol leaves tomorrow back to Boston if weather permits. She will be greatly missed. Besides her wonderful cooking, her witty and loving self, they will miss greatly her TLC and support.
Mom's attitude, spirit, and mental strength is great.
Happy Chanukah tomorrow night to all,
Karen
Tuesday, December 8, 2009
"Living Life to Its Fullest"
Mom had a wonderful weekend. Her energy, strength and edurance are continue to increase. Mom, Poppie, and the rest of the family are being completely spoiled by Aunt Carol's culinary talents. They are all sleeping more soundly due to having happy and "full stomachs" these days. At least, Aunt Carol is making enough for left overs. Kimmy and I hope to enjoy some left-overs by the time we arrive next week. Unfortunely, Aunt Carol needs to get back to Boston on Friday this week. She and I once again will be passing the baton.
Mom is relaxing wonderfully since Aunt Carol arrived. Not just because of Aunt Carol's wonderful personality and awesome cooking. Aunt Carol began daily meditation, visualization, and imagery lessons with Mom. She recorded each session so Mom can access the sessions at any time. This will be a fun thing to do with Mom when Kimmy and I arrive next Monday, December 14th.
Mom, is progressing well medically. She is off her hard core medications now since last Saturday. Mom now is flushing her Hickman herself with some one standing by for assistance. What a shock,taking control, wink. We view this behaviour now as Mom is simply back to her normal self. Mom also is doing her exercises daily and is noticing her muscles are back. This makes Mom beam with excitement.
Well, today, Mom has a big day. She has her Visiting Nurse whom cleans & flushes the Hickman, checks all her vitals and draws blood today. The aid comes to assist with all Mom's personal hygene. Her Physical Therapist, Amy who is a dear friend of the family is over to keep Mom from overdoing it!
Mom is enjoying the next few days. This Thursday is her second Bone Biopsy. The results from this procedure and another blood drawing will supply her oncolocy Dr. enough information for Mom's next round of Chemo. Mom's attitude is excellent. She, as all of us, are anxious with the results. Mom knows and believes, no matter the results, she is strong physically and mentally and will be the one controlling her Leukemia.
I will post after Thursdays procedure for Mom. Until then, have a beautiful week.
Thank you for your endless loving support,
Karen
Mom is relaxing wonderfully since Aunt Carol arrived. Not just because of Aunt Carol's wonderful personality and awesome cooking. Aunt Carol began daily meditation, visualization, and imagery lessons with Mom. She recorded each session so Mom can access the sessions at any time. This will be a fun thing to do with Mom when Kimmy and I arrive next Monday, December 14th.
Mom, is progressing well medically. She is off her hard core medications now since last Saturday. Mom now is flushing her Hickman herself with some one standing by for assistance. What a shock,taking control, wink. We view this behaviour now as Mom is simply back to her normal self. Mom also is doing her exercises daily and is noticing her muscles are back. This makes Mom beam with excitement.
Well, today, Mom has a big day. She has her Visiting Nurse whom cleans & flushes the Hickman, checks all her vitals and draws blood today. The aid comes to assist with all Mom's personal hygene. Her Physical Therapist, Amy who is a dear friend of the family is over to keep Mom from overdoing it!
Mom is enjoying the next few days. This Thursday is her second Bone Biopsy. The results from this procedure and another blood drawing will supply her oncolocy Dr. enough information for Mom's next round of Chemo. Mom's attitude is excellent. She, as all of us, are anxious with the results. Mom knows and believes, no matter the results, she is strong physically and mentally and will be the one controlling her Leukemia.
I will post after Thursdays procedure for Mom. Until then, have a beautiful week.
Thank you for your endless loving support,
Karen
Friday, December 4, 2009
Enjoying Living Pain & Injury Free
SO sorry that I have not updated the blog since last Tuesday. Last Wednesday, Poppies sister, Carol flew in from Boston. I passed the baton off to her to help out Poppie and Mom until Kimmy and I return to Rochester on December 14th. I had to fly back to San Diego yesterday, Thursday. I need to address my own medical appointments and look forward to another colonoscopy with many biopsy's.
Mom and Poppie are so happy to see Aunt Carol for many reasons. Firstly, she has a fantastic uplifting energy and all around her lights up from simply being with her. I am so jazzed especially for Mom since Aunt Carol has a strong background in counseling, meditation, biofeedback and many other tricks in her bag to assist mom and Poppie through this frightening experience. To add, Aunt Carol is a fabulous cook. Now you know, this alone puts a smile ear to ear on Mom and Poppies face.
OK, for Mom and the medical status. Mom on Wednesday met with her primary doctor, Dr. Campbell. This was an extremely emotional and painful visit. Dr. Campbell, over the many years has become yet another son of Mom and Poppies. He explained he is available for social visits and support but no longer with be Moms doctor. This hit them both very hard. Tight hugs and tears strolled form their cheeks. This was the FIRST time Mom has spoken to anyone outside the oncology team or surrounded by family in her home. Reality hit Mom, like running in to a brick wall.
The beautiful though painful part of Moms awareness to her AML diagnosis is that she and Poppie are now talking freely together about the disease. They spend many special moments privately holding each other, talking about each others fears, anger, and fear of the unknown and much more. Mom is being extremely strong about her future. She encourages and allows herself to cry and shortly after she regroups and bounces up with "I am going to be an anomaly!" I am going to beat this! She and Poppie are presently planning their next cruise to include all whom want to join in 2010. She surely is a fighter! Most of the day she is the little Ruthie we know her to be.
Yesterday, Mom met with her Visiting Nurse and Physical Therapist. Both were very impressed with Moms attitude, alertness, clarity of her treatment, how to flush her own Hickman (though she is not doing this, she is happy she "could.", and her muscle strength overall. She is above average with her muscle testing though she fatigues extremely quickly. Mom was showing off her "GUNS" she still has. It is pretty impressive. Later in the afternoon, Mom had a house cleaner come as a gift from my Aunt Fayga. We all know Mom walked her cleaning lady around the house with Aunt Carol following to take notes for Mom. Actually, this is a wonderful gift. Mom, has always taken great pride in having her home look as a show home. Now since her energy is so limited, she is able to still have a spotless home to uplift her. Thank you Aunt Fayga. :)
Since receiving her first round of Chemo therapy, Mom has had no musculoskeletal pains. This is the first time in many years. Her spirits and outlook maintain strong and she focuses on becoming known as another "Lance Armstrong." She is geared up "no pun intended" to be an anomaly, as Lance has become. She too will be living with and eventually beating her AML as he did with his form of cancer.
Mom and Poppie are so thankful for you checking in, sending love, prayers and healing energy over the past month. They are overwhelmed with the amount of love they are receiving. They are also so grateful for having their children and relatives being such a support on a daily basis. Believe me, all of your love has kept Mom's optimism, belief and hope stronger than ever. Mom is stronger with all of our love together. THANK YOU! xoxoxo
Well more to come.
Have a fantastic weekend. I will post again on Monday.
All My Warmth and Gratefulness for having you in our lives,
Karen
Mom and Poppie are so happy to see Aunt Carol for many reasons. Firstly, she has a fantastic uplifting energy and all around her lights up from simply being with her. I am so jazzed especially for Mom since Aunt Carol has a strong background in counseling, meditation, biofeedback and many other tricks in her bag to assist mom and Poppie through this frightening experience. To add, Aunt Carol is a fabulous cook. Now you know, this alone puts a smile ear to ear on Mom and Poppies face.
OK, for Mom and the medical status. Mom on Wednesday met with her primary doctor, Dr. Campbell. This was an extremely emotional and painful visit. Dr. Campbell, over the many years has become yet another son of Mom and Poppies. He explained he is available for social visits and support but no longer with be Moms doctor. This hit them both very hard. Tight hugs and tears strolled form their cheeks. This was the FIRST time Mom has spoken to anyone outside the oncology team or surrounded by family in her home. Reality hit Mom, like running in to a brick wall.
The beautiful though painful part of Moms awareness to her AML diagnosis is that she and Poppie are now talking freely together about the disease. They spend many special moments privately holding each other, talking about each others fears, anger, and fear of the unknown and much more. Mom is being extremely strong about her future. She encourages and allows herself to cry and shortly after she regroups and bounces up with "I am going to be an anomaly!" I am going to beat this! She and Poppie are presently planning their next cruise to include all whom want to join in 2010. She surely is a fighter! Most of the day she is the little Ruthie we know her to be.
Yesterday, Mom met with her Visiting Nurse and Physical Therapist. Both were very impressed with Moms attitude, alertness, clarity of her treatment, how to flush her own Hickman (though she is not doing this, she is happy she "could.", and her muscle strength overall. She is above average with her muscle testing though she fatigues extremely quickly. Mom was showing off her "GUNS" she still has. It is pretty impressive. Later in the afternoon, Mom had a house cleaner come as a gift from my Aunt Fayga. We all know Mom walked her cleaning lady around the house with Aunt Carol following to take notes for Mom. Actually, this is a wonderful gift. Mom, has always taken great pride in having her home look as a show home. Now since her energy is so limited, she is able to still have a spotless home to uplift her. Thank you Aunt Fayga. :)
Since receiving her first round of Chemo therapy, Mom has had no musculoskeletal pains. This is the first time in many years. Her spirits and outlook maintain strong and she focuses on becoming known as another "Lance Armstrong." She is geared up "no pun intended" to be an anomaly, as Lance has become. She too will be living with and eventually beating her AML as he did with his form of cancer.
Mom and Poppie are so thankful for you checking in, sending love, prayers and healing energy over the past month. They are overwhelmed with the amount of love they are receiving. They are also so grateful for having their children and relatives being such a support on a daily basis. Believe me, all of your love has kept Mom's optimism, belief and hope stronger than ever. Mom is stronger with all of our love together. THANK YOU! xoxoxo
Well more to come.
Have a fantastic weekend. I will post again on Monday.
All My Warmth and Gratefulness for having you in our lives,
Karen
Tuesday, December 1, 2009
A Blanket of Snow
Momma Ruthie smiled this morning seeing a blanket a snow on the ground. Seeing the next season arrive helps her feel happy and alive. Mom is "planning on seeing the four seasons for years to come." Yes, despite all that is going on with Mom's health she is looking forward to enjoying life to its fullest with Poppie. Yesterday, they were looking through a Travel magazine to pick out their next cruise.
Yesterday, Mom, Poppie and I had an appointment with her primary Oncologist, Dr. Deborah Mulford. The visit went well and Mom felt very comfortable and at ease with her. Dr. Mulford gave Mom a thorough consult and physical. Mom had her blood drawn, and we were shown how to properly water proof her Hickman for showers. The Dr. went over all of Mom's present medications, explained what we can expect for the next several weeks and got a clear idea of Mom's personality.
Mom is having her second Bone Biopsy December 10th, Thursday at 3pm. The results of the procedure combined with Mom's blood results will determine the next course of treatment care. It is very clear that Mom is looking at repeated Chemo treatments. On December 15th, Tuesday at 3:30pm Mom has her follow up and Chemo Plan presented by Dr. Mulford. Thumbs up that we are moving forward to keep Mom around and as healthy as possible.
Today, I will be spoiling Mom with a spa day. She is so excited for her first shower at home, a pedicure, a manicure and a massage. We will also be starting a new breathing and exercise program today. I am sure she will sleep well tonight, wink.
Have a beautiful day. Please think of one way to spoil yourself today. You deserve it!
Lots of love and Hugs,
Karen
Yesterday, Mom, Poppie and I had an appointment with her primary Oncologist, Dr. Deborah Mulford. The visit went well and Mom felt very comfortable and at ease with her. Dr. Mulford gave Mom a thorough consult and physical. Mom had her blood drawn, and we were shown how to properly water proof her Hickman for showers. The Dr. went over all of Mom's present medications, explained what we can expect for the next several weeks and got a clear idea of Mom's personality.
Mom is having her second Bone Biopsy December 10th, Thursday at 3pm. The results of the procedure combined with Mom's blood results will determine the next course of treatment care. It is very clear that Mom is looking at repeated Chemo treatments. On December 15th, Tuesday at 3:30pm Mom has her follow up and Chemo Plan presented by Dr. Mulford. Thumbs up that we are moving forward to keep Mom around and as healthy as possible.
Today, I will be spoiling Mom with a spa day. She is so excited for her first shower at home, a pedicure, a manicure and a massage. We will also be starting a new breathing and exercise program today. I am sure she will sleep well tonight, wink.
Have a beautiful day. Please think of one way to spoil yourself today. You deserve it!
Lots of love and Hugs,
Karen
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