Mom's body looked so precious and angelic when our family one by one said our last good-bye's to her. I felt her warmth and spirit embracing me and her energy in the hospital room prior to leaving. Once again, many Doctors, Nurses, Patient Technicians, Hospitality Staff, and Housekeeping came by to give their condolence and heart felt feelings of love and gratefulness to have met our "Energizer Momma Ruthie." It was overwhelming and endearing to hear the kind words expressed about Mom and many tears that were being shed as each person spoke. This is a true example of how special Mom has been and still is to many.
Mom passed at the age of 75. Mom's final days and hours were spent surrounded by family and long time friends (30 plus years and more)that she had touched in so many ways throughout her memorable life. Mom surely lived her life to the fullest and her care and concern for others will be greatly missed.
Mom's life would seem too short to many, but those who were touched by her, understood that the quality of existence far exceeds the quantity of time in which one lives. Mom will always be remembered for her courage and hope, her zest for life, her playfulness, her love for adventure and yearning to seek new experiences, her charismatic personality, her infectious laugh with a snort and her strong sense of family. Mom will especially be remembered for her persistence to be heard, understood and to make change. It would be an honor to be able to walk in her shoes. I will miss my Mom deeply.
Funeral Services will be held on Friday, April 30th at 1pm at Brighton Memorial Chapel Inc. 3325 Winton Rd. So. and Jefferson Road. The funeral will be at White Haven Memorial Park. Following the funeral, a period of mourning will be observed at 59 Charissa Run, Henrietta. Friday & Saturday 4-6pm and Sunday 1-4 pm. In lieu of flowers, donations may be made to the Simon Wiesenthal Center (1399 S. Roxbury Dr., Los Angeles, CA 90035) or charity of one's choice in her memory. To leave a message of condolence, please visit: www.BrightonMemorialChapel.com
All our love from the Baskin Family xoxoxo
Tuesday, April 27, 2010
Mom passed peacefully at 8:30am
Mom passed peacefully this morning at 8:30am. I and Kimmy were with her. I was holding Mom and she slipped away without a sign of discomfort or straining.
I will blog this evening. There is a lot to attend to at this time.
Thank you for all your never ending love, warmth, prayers and support,
Karen, Kimmy, Poppie, Mike, Cindy, Brian, Reece and the rest of our family xoxoxoxo
I will blog this evening. There is a lot to attend to at this time.
Thank you for all your never ending love, warmth, prayers and support,
Karen, Kimmy, Poppie, Mike, Cindy, Brian, Reece and the rest of our family xoxoxoxo
Non responsive, but fighting
We thought Mom was going to pass away last night. I left off that Mom was getting another increase of pain medication with anxiety medication. Her increases were every 45 minutes from 8pm till present. Mom was under great distress from yesterday at 4:30pm till about 4:00am this morning.
Around 9:15pm the Doctor's and Nurses said Mom may not make it through the night. I had called Poppie, who had left for home for some sleep around 7:00pm. He and his sisters returned to the hospital around 9:50pm and stayed with Mom, Brian, Kimmy and I till 1:00am. I had called Mike and Cindy at 9:17pm and were waiting by the phone for my call when Mom was definitely close to passing.
Brian, Kimmy and I bunked down with Mom in her hospital room and are still here. Since yesterday, there has been a non stop flow of medical staff coming in to check on Mom. Many of them were off duty and coming in to be with her and the family. Mom is SO LOVED by so many. This experience to witness how deeply Mom has touched so many people is simply overwhelming and beautiful. If I can only hope to be able to touch so many and shower them with unconditional love.
Mom at this point, is resting and breathing without too much struggle. She is being kept comfortable and we believe she is not in distress or pain. Mom will continue to be receiving increases of Dilaudid (pain medication) on a continuous drip, intermittent pushes of more Dilaudid, when needed and Klonopin (anxiety medication) every hour or as needed. Mom at this point has received enough Dilaudid that an elephant would be resting well. She is fighter for sure. We all hope she will be able to rest at peace today and for ever on.
To add to the unusual, it began raining early this morning and now is snowing. Mom must be controlling our weather. She loves snow and may be dreaming she is getting ready to go ice skating, sledding, or simply romping in the snow as we did when I was a younger. The power that our "Little Energizer Momma Ruthie" has is simply magical.
More to follow.
All our love,
Karen
Around 9:15pm the Doctor's and Nurses said Mom may not make it through the night. I had called Poppie, who had left for home for some sleep around 7:00pm. He and his sisters returned to the hospital around 9:50pm and stayed with Mom, Brian, Kimmy and I till 1:00am. I had called Mike and Cindy at 9:17pm and were waiting by the phone for my call when Mom was definitely close to passing.
Brian, Kimmy and I bunked down with Mom in her hospital room and are still here. Since yesterday, there has been a non stop flow of medical staff coming in to check on Mom. Many of them were off duty and coming in to be with her and the family. Mom is SO LOVED by so many. This experience to witness how deeply Mom has touched so many people is simply overwhelming and beautiful. If I can only hope to be able to touch so many and shower them with unconditional love.
Mom at this point, is resting and breathing without too much struggle. She is being kept comfortable and we believe she is not in distress or pain. Mom will continue to be receiving increases of Dilaudid (pain medication) on a continuous drip, intermittent pushes of more Dilaudid, when needed and Klonopin (anxiety medication) every hour or as needed. Mom at this point has received enough Dilaudid that an elephant would be resting well. She is fighter for sure. We all hope she will be able to rest at peace today and for ever on.
To add to the unusual, it began raining early this morning and now is snowing. Mom must be controlling our weather. She loves snow and may be dreaming she is getting ready to go ice skating, sledding, or simply romping in the snow as we did when I was a younger. The power that our "Little Energizer Momma Ruthie" has is simply magical.
More to follow.
All our love,
Karen
Monday, April 26, 2010
Mom's Being Brave, but she is suffering now
Early this morning Mom was experiencing an increase of pain. The Doctors increased her pain medication. The family was taking turns lightly rubbing her areas of pain with ice that seems to help decrease her symptoms or simply distract her.
Sadly, Mom had several more episodes of severe pain. The Doctors have increased her pain medication several times today, 11:30am, 4:30pm., 5:40pm and soon at 8pm. Mom at this point is able to hear and that is all. She is non ambulatory and and responsive with speaking, squeezing her fingers, raising her eyebrows or showing any physical movement to indicate communicating. Mom is moving through the stages pretty quickly at this point. The Doctors and Nurses are watching her body language and breathing closely to determine her comfort and pain levels.
Since this early this morning to present, The family has been taking turns massaging Mom, using ice to massage her and we all hope to help her stay as calm as possible.
More to come later.
Karen
Sadly, Mom had several more episodes of severe pain. The Doctors have increased her pain medication several times today, 11:30am, 4:30pm., 5:40pm and soon at 8pm. Mom at this point is able to hear and that is all. She is non ambulatory and and responsive with speaking, squeezing her fingers, raising her eyebrows or showing any physical movement to indicate communicating. Mom is moving through the stages pretty quickly at this point. The Doctors and Nurses are watching her body language and breathing closely to determine her comfort and pain levels.
Since this early this morning to present, The family has been taking turns massaging Mom, using ice to massage her and we all hope to help her stay as calm as possible.
More to come later.
Karen
Sunday, April 25, 2010
Mom is connecting at a new level
Today is day 15 since Mom was admitted on April 11 with a 911 call. Poppie arrived his usual time to see Mom at 8 am. We designated the mornings so Mom and Poppie could have private time for 3-4 hours. Mostly they have a light bite of breakfast together, visit for a bit and then fall asleep together for several hours. The rest of the family slowly trickles in after 11:30am.
This morning was a slightly new routine. Mom is slipping away slowly. Poppie arrived finding Mom gently and quietly being fed small nibbles of oatmeal. Mom's eyes remained closed the entire time. Since yesterday afternoon, Mom had barely opened her eyes when spoken with. Poppie listened quietly to Mom's Nurse, Heather, so gently and softly speaking with Mom. Mom could answer questions in a quiet, low and straining voice. Mom did not open her eyes at all to speak.
This afternoon, Poppie's sisters were on a roll telling family stories. The theme was basaed around embarassing momments. We were all in stitches listening to Aunt Carol and then Aunt Maxine. They both have an incredible delivery and such a theatrical way with their story telling. Mom, although never opened her eyes, she periodically would chuckle, smile or smirk. We all enjoyed. My childhood friend, Lisa and her boyfriend Chris stopped in and Chris shared lots of his childhood stories and laughter. Mom always perks up when Lisa is around. It is wonderful to have decades of history bouncing around the room for all to enjoy.
Again, Poppie, Aunt Carol, Aunt Maxine, Mike, Cindy, and Brian left between 6-9:00pm. Kimmy and I like to stay with Mom into the night until 11:30pm - 1 am. Mom had a surprise visitor tonight. One of her first Doctors back in November, Dr. Brandon Stead, came by with his wife, Cherry and son, Kiel for a quick visit. Mom and Poppie have adopted them into our family. Since November, we have had them over monthly for dinners and we all have come to love each others company. Though the visit was a short one, Mom so enjoyed seeing them in between her quick naps.
Tonight is the third night Mom has gone into a deep sleep mumbling, talking and exhibiting lots of facials. It was interesting last night around 10pm, Mom mumbled that "You need to help Daddy fix the computer". She kept repeating this to Kimmy and I several times in her deep dream state. We did not think much of this. Around 12:30am, Kimmy and I arrived home. Poppie was waiting up for me and asked if I would please fix the computer. He said around 10pm he had hit a wrong key again on the computer and the emails got "messed up". He could not resolve the problem and wanted to call Mom , as she usually corrects the issues. Unfortunately, he had to wait until I got home to correct the problem. I shared the story about Mom saying he had problems tonight around the same time and we simply stared at each other with our eyes wide open and speechless. Has Mom entered a new dimension? Is Mom now taping into a different part of her brain that we are not able to? "Things that make you go hmmmmmm."
Mom was emotionally deflated today. She simply has had enough and does not want to continue suffering. She has asked her Dr.'s and Nurses several times today if they would please give her a pill to stop her suffering. She no longer is able to transfer herself without assistance, she is using a camode by her bed (discussion of a catheter was presented today), she is on additional medication to slow down some discomforting symptoms and she is extremely exhausted. She no longer is able to keep her eyes open for more than a minute or so. She is unable to feed herself, though she is still able to swallow. She has absolutely NO appetite and is refusing to eat more than a few spoonfuls several times of day.
Mom and I spoke this morning on how this is NOT a way to die. She wants me and the medical staff to write letters to change the laws! She wants people to be able to take a "Pill" and end their own misery. It is so painful to watch such a slow death. Especially, to someone that is so mentally present and feels so trapped in a body that is so far advanced with a disease and simply continues to be failing her.
This is NOT A WAY TO DIE!
Karen
This morning was a slightly new routine. Mom is slipping away slowly. Poppie arrived finding Mom gently and quietly being fed small nibbles of oatmeal. Mom's eyes remained closed the entire time. Since yesterday afternoon, Mom had barely opened her eyes when spoken with. Poppie listened quietly to Mom's Nurse, Heather, so gently and softly speaking with Mom. Mom could answer questions in a quiet, low and straining voice. Mom did not open her eyes at all to speak.
This afternoon, Poppie's sisters were on a roll telling family stories. The theme was basaed around embarassing momments. We were all in stitches listening to Aunt Carol and then Aunt Maxine. They both have an incredible delivery and such a theatrical way with their story telling. Mom, although never opened her eyes, she periodically would chuckle, smile or smirk. We all enjoyed. My childhood friend, Lisa and her boyfriend Chris stopped in and Chris shared lots of his childhood stories and laughter. Mom always perks up when Lisa is around. It is wonderful to have decades of history bouncing around the room for all to enjoy.
Again, Poppie, Aunt Carol, Aunt Maxine, Mike, Cindy, and Brian left between 6-9:00pm. Kimmy and I like to stay with Mom into the night until 11:30pm - 1 am. Mom had a surprise visitor tonight. One of her first Doctors back in November, Dr. Brandon Stead, came by with his wife, Cherry and son, Kiel for a quick visit. Mom and Poppie have adopted them into our family. Since November, we have had them over monthly for dinners and we all have come to love each others company. Though the visit was a short one, Mom so enjoyed seeing them in between her quick naps.
Tonight is the third night Mom has gone into a deep sleep mumbling, talking and exhibiting lots of facials. It was interesting last night around 10pm, Mom mumbled that "You need to help Daddy fix the computer". She kept repeating this to Kimmy and I several times in her deep dream state. We did not think much of this. Around 12:30am, Kimmy and I arrived home. Poppie was waiting up for me and asked if I would please fix the computer. He said around 10pm he had hit a wrong key again on the computer and the emails got "messed up". He could not resolve the problem and wanted to call Mom , as she usually corrects the issues. Unfortunately, he had to wait until I got home to correct the problem. I shared the story about Mom saying he had problems tonight around the same time and we simply stared at each other with our eyes wide open and speechless. Has Mom entered a new dimension? Is Mom now taping into a different part of her brain that we are not able to? "Things that make you go hmmmmmm."
Mom was emotionally deflated today. She simply has had enough and does not want to continue suffering. She has asked her Dr.'s and Nurses several times today if they would please give her a pill to stop her suffering. She no longer is able to transfer herself without assistance, she is using a camode by her bed (discussion of a catheter was presented today), she is on additional medication to slow down some discomforting symptoms and she is extremely exhausted. She no longer is able to keep her eyes open for more than a minute or so. She is unable to feed herself, though she is still able to swallow. She has absolutely NO appetite and is refusing to eat more than a few spoonfuls several times of day.
Mom and I spoke this morning on how this is NOT a way to die. She wants me and the medical staff to write letters to change the laws! She wants people to be able to take a "Pill" and end their own misery. It is so painful to watch such a slow death. Especially, to someone that is so mentally present and feels so trapped in a body that is so far advanced with a disease and simply continues to be failing her.
This is NOT A WAY TO DIE!
Karen
Saturday, April 24, 2010
Mom's day was spent mostly dreaming
I forgot to blog last night that Mom was in a deep dream state prior to Kimmy and I leaving. For about 90 minutes Mom was talking about seeing Uncle Elliott, her eldest brother. Elliott passed almost 5 years ago from Multiple Myeloma. Mom expressed being with him at a party and having fun. She said he looked really big. She had an intermittent smile throughout the hour and half. Most of what she was saying was difficult to understand. She did repsond to my questions.
This morning, Mom had a short window of time that she could stay focused. The majority of the day she had her eyes closed, was drifting off, mumbling and not making much sense. Today, was Mom's first day extremely exhausted, needing to use a camode next to her bed with assitance to transfer and could barely eat. She has lost her desire to feed herself nor does she have any interest in food.
Mom is not in pain and the Doctors are focusing on keeping her comfortable with her other symptoms. At this point with her body declining her symptoms are no longer important to describe on the blog. Just know that Mom is less aware of everything going on and is receiving immediate attention to keep her comfortable and pain free.
Poppie, Aunt Maxine, Aunt Carol, Mike, Cindy, Brian, Kimmy and I spent the entire day with Mom. Kimmy and I stayed late into the night with Mom as usual. It is amazing how busy Mom's mind is though she is not fully coherant. She would mutter statements that would have "Daddy, Brian, or Michael" in it. Nothing was making sense.
Again, thank you for your continuous love and support for Mom and the rest of the famly.
Karen.
This morning, Mom had a short window of time that she could stay focused. The majority of the day she had her eyes closed, was drifting off, mumbling and not making much sense. Today, was Mom's first day extremely exhausted, needing to use a camode next to her bed with assitance to transfer and could barely eat. She has lost her desire to feed herself nor does she have any interest in food.
Mom is not in pain and the Doctors are focusing on keeping her comfortable with her other symptoms. At this point with her body declining her symptoms are no longer important to describe on the blog. Just know that Mom is less aware of everything going on and is receiving immediate attention to keep her comfortable and pain free.
Poppie, Aunt Maxine, Aunt Carol, Mike, Cindy, Brian, Kimmy and I spent the entire day with Mom. Kimmy and I stayed late into the night with Mom as usual. It is amazing how busy Mom's mind is though she is not fully coherant. She would mutter statements that would have "Daddy, Brian, or Michael" in it. Nothing was making sense.
Again, thank you for your continuous love and support for Mom and the rest of the famly.
Karen.
Friday, April 23, 2010
Another Day to share with Mom
Today was a pretty good Friday. The majority of the day Mom was quiet with minimum visitors. Mom's symptoms are slightly increasing. She is sleeping more overall. Mom's platelets are dropping.
Today, when Mom was awake she engaged in conversation with a low and weak voice. Mom still shares her witty personality and is directing all how we can better ourselves. Aunt Maxine gave Mom a gift today. Mom was so excited to receive her new bed pal. It is an adorable 3 multi-colored stuffed doggy that is soooo soft to pet. Mom has cuddled it since she received it. She is so cute caressing it. Mom named her new bed companion "Doglet."
Mom did enjoy having Poppie and his sisters (Maxine and Carol), Mike, Cindy, Cuz Jody, Kimmy, my childhood friend Lisa and I for the majority of the morning into the evening. She enjoyed listening to the many stories and engaged in laughter on and off. Unfortunately, Brian came down with a cold Wednesday night. He has not seen Mom yesterday or today. It is sad for all of us. We miss his company. Hopefully, he will be better soon.
The family left around 6pm tonight. Kimmy and I stayed late into the night with Mom as ususal. Selfishly, we are stealing all the time we can with her even though she is sleeping more. All night she was extremely tired and moaning or talking in her sleep. Her pain levels were 1-3. Her vitals all were in the "normal" range throughout the night.
Several Doctors who work in other departments in the hospital stopped in to visit Mom. One of the Oncology Nurses in her unit introduced her husband and 2 year old son to Mom. Mom so enjoys meeting the Nurse's family members. Mom had the Nurse and her husband captivated in conversation for a good 15-20 minutes with her loving and warm personality. Their son was so enjoying the vanilla wafers we had.
Kimmy and I decided to head out since Mom was in a deep sleep around 11:30pm. It is so comforting to leave Mom with the staff on this Oncology floor. They all are so endearing with Mom. Several of them stay with Mom for almost an hour at a time to keep her company.
More to come tomorrow. It is nice to be able to say that for now.
All My Warmth and Love,
Karen
Today, when Mom was awake she engaged in conversation with a low and weak voice. Mom still shares her witty personality and is directing all how we can better ourselves. Aunt Maxine gave Mom a gift today. Mom was so excited to receive her new bed pal. It is an adorable 3 multi-colored stuffed doggy that is soooo soft to pet. Mom has cuddled it since she received it. She is so cute caressing it. Mom named her new bed companion "Doglet."
Mom did enjoy having Poppie and his sisters (Maxine and Carol), Mike, Cindy, Cuz Jody, Kimmy, my childhood friend Lisa and I for the majority of the morning into the evening. She enjoyed listening to the many stories and engaged in laughter on and off. Unfortunately, Brian came down with a cold Wednesday night. He has not seen Mom yesterday or today. It is sad for all of us. We miss his company. Hopefully, he will be better soon.
The family left around 6pm tonight. Kimmy and I stayed late into the night with Mom as ususal. Selfishly, we are stealing all the time we can with her even though she is sleeping more. All night she was extremely tired and moaning or talking in her sleep. Her pain levels were 1-3. Her vitals all were in the "normal" range throughout the night.
Several Doctors who work in other departments in the hospital stopped in to visit Mom. One of the Oncology Nurses in her unit introduced her husband and 2 year old son to Mom. Mom so enjoys meeting the Nurse's family members. Mom had the Nurse and her husband captivated in conversation for a good 15-20 minutes with her loving and warm personality. Their son was so enjoying the vanilla wafers we had.
Kimmy and I decided to head out since Mom was in a deep sleep around 11:30pm. It is so comforting to leave Mom with the staff on this Oncology floor. They all are so endearing with Mom. Several of them stay with Mom for almost an hour at a time to keep her company.
More to come tomorrow. It is nice to be able to say that for now.
All My Warmth and Love,
Karen
Thursday, April 22, 2010
Each Day is more difficult
Daily, Mom is physically challenged with old and new symptoms. Despite the discomforts Mom's pain is again in control. She now needs to be on her oxygen more and more to maintain her energy. Today, Mom enjoyed the family, but did not converse much. She was pretty tired and speaking was more difficult. Her energy is low, her voice is raspy, and she dozes off many times within an hour.
Mom did find the energy today to educate three people for 15 minutes on how to manage their weight. She actually lit up, was very focused and mentally conveyed her thoughts clearly. We all chuckle that Mom still focuses on offering constructive ideas for each of us to better ourselves. Bless her heart that she is more concerned about everyone else more than herself. Her depth of love and caring for others will never change.
Mom did join Kimmy and I for dinner tonight. I made her a lovely ham, chicken, cheese, lettuce, tomato and honey mustard sandwich on a roll. Mom had a big smile while eating it. We are so happy she is eating though she does not have a trigger for hunger anymore. I know she simply humors me. She seems to only eat if I am around at this point. Thank G-d I am here with her from 11am to after midnight everyday. I am definitely a product of my parents. I, like my parents, am so food oriented. We so adore that dirty four letter word...FOOD.
Mom, Kimmy and I are enjoying the quiet time at night together. Mom is in awe of how Kimmy is able to shut out everything around her all day and into the night, sit with her computer and put in long hours of work. Mom, I and a wonderful nurse Heather shared some time tonight to give her a real shower. Mom also enjoyed a foot bath. She was squeaky clean and felt refreshed. Mom was absolutely exhausted by the time she got back into bed. I gave her another massage (her 3rd for the day)and fell right into a calm sleep.
xoxoxo I so love sharing our time together xoxoxo
It is still so surreal that Mom will not be getting better, not coming home, not enjoy shopping with me, not hanging out with me, not having girl talks with me, not playing board games with me, not socializing with her and or my friends, not sharing with our family when we get together, not planning trips with Poppie, and mostly not coming home to San Diego with Poppie to enjoy Kimmy, Shayna Punum and all our friends again with me. I better stop now. My tears are streaming in between the keys on my keyboard.
Thank you for sharing all these months in my journey with my Mom and our entire family so far. I will blog again tomorrow.
Again, your love, warmth, emails, cards, and reaching out has been instrumental to helping us all be here today and still enjoying our Energizer Momma Ruthie. Her battery is loosing its juice and there is no way to plug her back in.
All my love and thank you for your compassion,
Karen
Mom did find the energy today to educate three people for 15 minutes on how to manage their weight. She actually lit up, was very focused and mentally conveyed her thoughts clearly. We all chuckle that Mom still focuses on offering constructive ideas for each of us to better ourselves. Bless her heart that she is more concerned about everyone else more than herself. Her depth of love and caring for others will never change.
Mom did join Kimmy and I for dinner tonight. I made her a lovely ham, chicken, cheese, lettuce, tomato and honey mustard sandwich on a roll. Mom had a big smile while eating it. We are so happy she is eating though she does not have a trigger for hunger anymore. I know she simply humors me. She seems to only eat if I am around at this point. Thank G-d I am here with her from 11am to after midnight everyday. I am definitely a product of my parents. I, like my parents, am so food oriented. We so adore that dirty four letter word...FOOD.
Mom, Kimmy and I are enjoying the quiet time at night together. Mom is in awe of how Kimmy is able to shut out everything around her all day and into the night, sit with her computer and put in long hours of work. Mom, I and a wonderful nurse Heather shared some time tonight to give her a real shower. Mom also enjoyed a foot bath. She was squeaky clean and felt refreshed. Mom was absolutely exhausted by the time she got back into bed. I gave her another massage (her 3rd for the day)and fell right into a calm sleep.
xoxoxo I so love sharing our time together xoxoxo
It is still so surreal that Mom will not be getting better, not coming home, not enjoy shopping with me, not hanging out with me, not having girl talks with me, not playing board games with me, not socializing with her and or my friends, not sharing with our family when we get together, not planning trips with Poppie, and mostly not coming home to San Diego with Poppie to enjoy Kimmy, Shayna Punum and all our friends again with me. I better stop now. My tears are streaming in between the keys on my keyboard.
Thank you for sharing all these months in my journey with my Mom and our entire family so far. I will blog again tomorrow.
Again, your love, warmth, emails, cards, and reaching out has been instrumental to helping us all be here today and still enjoying our Energizer Momma Ruthie. Her battery is loosing its juice and there is no way to plug her back in.
All my love and thank you for your compassion,
Karen
Wednesday, April 21, 2010
Emotionally a lot of life remains
Shortly after leaving Mom last night, around midnight, she had another level 10 flare up. This time it was her right shoulder down the arm and into her hand. She was in terrible pain for about 90 minutes. The Nurse had to give Mom two boosts of Dilaudid (pain medication) until her pain level went down to a 2-3 level. Thankfully, she was not left alone. Her Nurse and her Patient Care Technician stayed with her for the entire time until her pain decreased. The PCT continued to stay with Mom and massaged her for a good 20 minutes. It is so comforting knowing Mom has such tender and loving care when we, the family, are not around.
Around 8:00am this morning, Mom sounded exhausted and her voice was extremely grumbly/froggy. This continued all day. In the morning Mom had a about 8 people visiting her. Around 4pm, the family was permitted to take Mom outside in a wheelchair. We wheeled her into a garden outside the hospital. We took some family pictures and we all enjoyed the fresh air, the 62 degree weather, the light breeze, the warmth from the sunlight and simply being together.
After being outside, Mom was wiped out! Around 7pm the family left. Kimmy and I stayed with Mom for the rest of the night. Mom was extremely sad and we started to talk about her feelings revolving around her dying. This is a topic she has not been able to speak about. Lots of tears, locked eyes, and not much talk occurred between us. I am being patient for her to start talking. Mom is simply angry and NOT ready to stop living! It is so painful to see Mom struggle to control her destiny. She wants LIFE and she cannot change her destiny.
I asked Mom at a certain point if she wanted me to massage her. She gave me that big smile with a nod saying YES. I worked on Mom for almost an hour. She finally relaxed physically, but that mind of hers would not shut off. There was one wonderful distraction for Mom. One of the many Nurses that adore Mom came in to chat. she was sharing with Mom how she was such an inspiration to set a date for her wedding sooner than later. Mom and she proceeded to talk and plan the entire wedding. This brought a big smile, laughter and giggling. Mom so loves life and it shows.
It simply breaks my heart that Mom has to suffer before passing away. This is just "wrong" for anyone to have to suffer so.
More to come tomorrow.
Thank you for all your unconditional support,
Karen
Around 8:00am this morning, Mom sounded exhausted and her voice was extremely grumbly/froggy. This continued all day. In the morning Mom had a about 8 people visiting her. Around 4pm, the family was permitted to take Mom outside in a wheelchair. We wheeled her into a garden outside the hospital. We took some family pictures and we all enjoyed the fresh air, the 62 degree weather, the light breeze, the warmth from the sunlight and simply being together.
After being outside, Mom was wiped out! Around 7pm the family left. Kimmy and I stayed with Mom for the rest of the night. Mom was extremely sad and we started to talk about her feelings revolving around her dying. This is a topic she has not been able to speak about. Lots of tears, locked eyes, and not much talk occurred between us. I am being patient for her to start talking. Mom is simply angry and NOT ready to stop living! It is so painful to see Mom struggle to control her destiny. She wants LIFE and she cannot change her destiny.
I asked Mom at a certain point if she wanted me to massage her. She gave me that big smile with a nod saying YES. I worked on Mom for almost an hour. She finally relaxed physically, but that mind of hers would not shut off. There was one wonderful distraction for Mom. One of the many Nurses that adore Mom came in to chat. she was sharing with Mom how she was such an inspiration to set a date for her wedding sooner than later. Mom and she proceeded to talk and plan the entire wedding. This brought a big smile, laughter and giggling. Mom so loves life and it shows.
It simply breaks my heart that Mom has to suffer before passing away. This is just "wrong" for anyone to have to suffer so.
More to come tomorrow.
Thank you for all your unconditional support,
Karen
Tuesday, April 20, 2010
Fighting Intermittent Pain
Earlier this evening around 4:45pm Mom's left leg started hurting and went from a level 2 to a level 10 in about 15-20 mins. Mom was hoping the pain would simply would go away. Brian told Mom to report it immediately. She was at a level 6 when she told her nurse. I also explained again to Mom that the pain simply escalates within a short period of time which may trigger more pain elsewhere. The nurses and doctor told her the same thing. She needs to speak up immediately.
Mom was at a level 10 before she could be given more pain medication. The pain medication was increased. Her(PCA) Patient Controled Analgesia, also known as "The Button" was adjusted. Her PCA medication was increased and the frequency was increased. She now pushes "the button" every 10 minutes rather than every 15 minutes. After about 50 mins of the pain medication in her system, receiving an ice rubbing on her leg from me as a distraction and getting a light massage, her pain level eventually returned to a 2-3. She eventually calmed enough to close her eyes and take deep breaths.
Mom did find great enjoyment later tonight. Poppie and his two sisters (Marilyn, and Carol), Brian, Kimmy and I watched with Mom her favorite show; Dancing with The Stars. This is a show that Mom and Poppie always watch together. It was so cute to see Mom, Poppie, and "The Sisters" watch with such intensity. They couldn't keep their eyes off the TV nor rating the dancers. Brian, Kimmy and I kept giggling to how into the show they were.
Kimmy and I left Mom around 11:30pm. Mom was feeling the increased medication. Mom began dozing off into a deep sleep so we decided to leave her with the nurses and staff on duty. We will be back early tomorrow and stay into the late night as we do.
Sleep well and again thank you for all your compassion and support,
Karen
Mom was at a level 10 before she could be given more pain medication. The pain medication was increased. Her(PCA) Patient Controled Analgesia, also known as "The Button" was adjusted. Her PCA medication was increased and the frequency was increased. She now pushes "the button" every 10 minutes rather than every 15 minutes. After about 50 mins of the pain medication in her system, receiving an ice rubbing on her leg from me as a distraction and getting a light massage, her pain level eventually returned to a 2-3. She eventually calmed enough to close her eyes and take deep breaths.
Mom did find great enjoyment later tonight. Poppie and his two sisters (Marilyn, and Carol), Brian, Kimmy and I watched with Mom her favorite show; Dancing with The Stars. This is a show that Mom and Poppie always watch together. It was so cute to see Mom, Poppie, and "The Sisters" watch with such intensity. They couldn't keep their eyes off the TV nor rating the dancers. Brian, Kimmy and I kept giggling to how into the show they were.
Kimmy and I left Mom around 11:30pm. Mom was feeling the increased medication. Mom began dozing off into a deep sleep so we decided to leave her with the nurses and staff on duty. We will be back early tomorrow and stay into the late night as we do.
Sleep well and again thank you for all your compassion and support,
Karen
Mom is mentally staying strong
Yesterday was a difficult day for Mom. Several of our out of town relatives had to say good-bye to Mom. This was so painful to observe Mom say, for her last time, "See You Later." Tears were streaming down her little face to the finality of never seeing them again.
Emotionally, Mom is dealing pretty well with the fact that her final days are around the corner. Mom does express her anger about the fact she has been dealt this "crappy hand." Mom says she now understands how people on death row must feel. The only difference is that she is innocent with her sentence to death.
It is so difficult for Mom to accept that her body continues to be failing. All the symptoms from the previous blog are becoming more serious. Mom's metabolism and neuromuscular functioning is slowing down daily. Details at this point regarding the breaking down to Mom's functioning is not necessary to describe. Please know that Mom's pain and other discomforts are being addressed immediately. Mom is now on day 3with level 1 or 2 pain/discomforts. Her pain medication has been increased to maintain her comfort. This will continue as she needs.
OK, some funny things that have been going on the past few days. I have been taping daily all the stories and conversations that Mom has been having with our relatives, with at least 12-15 people visiting for the day. Mom still has her witty personality and shares many stories in great detail. The room has been filled with tears of laughter and sadness.
Today, my fathers three sisters, Carol, Maxine and Marilyn are all here together with us. Mom and Poppie are taping and telling stories when they first met, their dating, the proposal and their life together. It is wonderful listening to all the stories from everyone. These are wonderful memories for all of who will live on with Mom in memory.
Mom is loving having so many relatives around her from day to day. The hours are spent with lots of love and endearing enjoyment. Mom has family with her from about 8am till about 1 am daily. Then the staff on her floor take over and spend all her awaking time talking, holding her hand, crying and laughing together.
More to come tomorrow.
Lots of love,
Karen
Emotionally, Mom is dealing pretty well with the fact that her final days are around the corner. Mom does express her anger about the fact she has been dealt this "crappy hand." Mom says she now understands how people on death row must feel. The only difference is that she is innocent with her sentence to death.
It is so difficult for Mom to accept that her body continues to be failing. All the symptoms from the previous blog are becoming more serious. Mom's metabolism and neuromuscular functioning is slowing down daily. Details at this point regarding the breaking down to Mom's functioning is not necessary to describe. Please know that Mom's pain and other discomforts are being addressed immediately. Mom is now on day 3with level 1 or 2 pain/discomforts. Her pain medication has been increased to maintain her comfort. This will continue as she needs.
OK, some funny things that have been going on the past few days. I have been taping daily all the stories and conversations that Mom has been having with our relatives, with at least 12-15 people visiting for the day. Mom still has her witty personality and shares many stories in great detail. The room has been filled with tears of laughter and sadness.
Today, my fathers three sisters, Carol, Maxine and Marilyn are all here together with us. Mom and Poppie are taping and telling stories when they first met, their dating, the proposal and their life together. It is wonderful listening to all the stories from everyone. These are wonderful memories for all of who will live on with Mom in memory.
Mom is loving having so many relatives around her from day to day. The hours are spent with lots of love and endearing enjoyment. Mom has family with her from about 8am till about 1 am daily. Then the staff on her floor take over and spend all her awaking time talking, holding her hand, crying and laughing together.
More to come tomorrow.
Lots of love,
Karen
Monday, April 19, 2010
Mom is "unwinding" with understanding
Mom is on day 4 with no chemo and she is only on pain medication to ensure her comfort. Yesterday, Mom was on day 2 of feeling level 1-2 pain. She began to experience a decrease in appetite. Her body's functions have begun to slow down. Her mouth has been continuously dry and she is now struggling to keep her mouth moist. Overall, the body has its own wisdom and knows what it needs to do to prepare to slowly shut down. I personally call this the unwinding process.
Mom's metabolism is also changing. She is now experiencing the need to sleep more or close her eyes for a "cat nap" as Mom says. It is now so important to spend more time with Mom when her awareness is at it's greatest.
Neuromusculary, Mom is also feeling symptoms. She has less stability when standing or walking. Mom is experiencing joint and muscle stiffness in her legs, hips, shoulders and neck. I simply am administering several times in the day range of motion to her joints, gently stretching her muscles, and offering light massage.
Mom was interactive with the family. She was telling family stories and others chimed in as well. We spend a lot of time laughing, crying, and hugging with all. Again, relatives from all over the country have flown in and more are flying in within the week. It was wonderful to have so many of the Medical staff join our family in laughter, tears and their stories about Mom over the past 5 months. It is simply heart warming to see and feel the love from so many people that Mom has touched. Our relatives are not surprised at all that "our Energizer Momma Ruhtie" touches everyone she meets with such great death of love.
More to follow as today unfolds into the late night.
Have a beautiful day and treasure everything around you.
Lots of love and gratefulness for your unlimited support,
Karen
Mom's metabolism is also changing. She is now experiencing the need to sleep more or close her eyes for a "cat nap" as Mom says. It is now so important to spend more time with Mom when her awareness is at it's greatest.
Neuromusculary, Mom is also feeling symptoms. She has less stability when standing or walking. Mom is experiencing joint and muscle stiffness in her legs, hips, shoulders and neck. I simply am administering several times in the day range of motion to her joints, gently stretching her muscles, and offering light massage.
Mom was interactive with the family. She was telling family stories and others chimed in as well. We spend a lot of time laughing, crying, and hugging with all. Again, relatives from all over the country have flown in and more are flying in within the week. It was wonderful to have so many of the Medical staff join our family in laughter, tears and their stories about Mom over the past 5 months. It is simply heart warming to see and feel the love from so many people that Mom has touched. Our relatives are not surprised at all that "our Energizer Momma Ruhtie" touches everyone she meets with such great death of love.
More to follow as today unfolds into the late night.
Have a beautiful day and treasure everything around you.
Lots of love and gratefulness for your unlimited support,
Karen
Saturday, April 17, 2010
Mom is buying time
I am sorry for not blogging sooner. The past 4 days have been very busy. Since last Tuesday relatives from all over the map have been flying or driving into Rochester to spend some time with Momma Ruthie. Coordinating the details for all the out-of towners' has been consuming. Supporting Mom to accept that her time to pass is coming, Poppie to prepare for this new transition, keeping close touch with my brothers, sister-in-law, Kimmy and other family members, and spending 12-14 hours a day with Mom in the hospital has been a lot.
Mom has had several painful flare-ups within the past four days. She has also needed transfusions two days ago. She had begun having nose bleeds and coughing up blood. The transfusions had helped to decrease these symptoms. The Doctors have been working diligently to get Mom to a comfortable and pain free state.
The past two days have been extremely difficult deciding on Mom's quality of life. She met with her Palliative Team and Oncology Team two times a day since being admitted last Monday to discuss her present choices. As of yesterday, Mom made a VERY difficult decision for herself. She told her Doctors at this stage in her disease she does not want to receive any more transfusions or interventions for infections that may arise. Mom is receiving Dilaudid and Lidocaine patches only as of yesterday.
Mom is fighting every step of the way to push her Doctors to find a miracle drug.
Mom also fought to stay on the 6-3400 Oncology floor for hospice instead of going down to the referred location on on the 4th floor for hospice care. It is incredible how many Doctors, Nurses, Technicians, Housekeeping, and Food Service come in to see Mom. Many are coming in on their days off as well to spend time with their adopted Mom. It is so touching. Lots of tears from all. Just when I feel I am all dried out I start tearing up again with each persons expression about how Little Momma Ruthie has touched them.
It is going to be such an immense loss for so many people when Mom passes.
I will try to keep you informed from day to day on Mom's status. We are handling the best as we can all the details that need to be addressed to prepare for Mom pre, during and post her passing. I will close with how incredible my family has been the past 7 days. I am including, my immediate family, all my relatives, and the few friends she has had for decades whom I refer to as "Mom." Actually, we have had no less than 12-15 people in Mom's room a day. We needed to transfer Mom into the lounge to accommodate our group several times. It was good for her as well to have a new surrounding.
OK, I will blog again. I want to give Mom a relaxing full body massage. Again, thank you for your love and support,
Karen and our entire family xoxo
Mom has had several painful flare-ups within the past four days. She has also needed transfusions two days ago. She had begun having nose bleeds and coughing up blood. The transfusions had helped to decrease these symptoms. The Doctors have been working diligently to get Mom to a comfortable and pain free state.
The past two days have been extremely difficult deciding on Mom's quality of life. She met with her Palliative Team and Oncology Team two times a day since being admitted last Monday to discuss her present choices. As of yesterday, Mom made a VERY difficult decision for herself. She told her Doctors at this stage in her disease she does not want to receive any more transfusions or interventions for infections that may arise. Mom is receiving Dilaudid and Lidocaine patches only as of yesterday.
Mom is fighting every step of the way to push her Doctors to find a miracle drug.
Mom also fought to stay on the 6-3400 Oncology floor for hospice instead of going down to the referred location on on the 4th floor for hospice care. It is incredible how many Doctors, Nurses, Technicians, Housekeeping, and Food Service come in to see Mom. Many are coming in on their days off as well to spend time with their adopted Mom. It is so touching. Lots of tears from all. Just when I feel I am all dried out I start tearing up again with each persons expression about how Little Momma Ruthie has touched them.
It is going to be such an immense loss for so many people when Mom passes.
I will try to keep you informed from day to day on Mom's status. We are handling the best as we can all the details that need to be addressed to prepare for Mom pre, during and post her passing. I will close with how incredible my family has been the past 7 days. I am including, my immediate family, all my relatives, and the few friends she has had for decades whom I refer to as "Mom." Actually, we have had no less than 12-15 people in Mom's room a day. We needed to transfer Mom into the lounge to accommodate our group several times. It was good for her as well to have a new surrounding.
OK, I will blog again. I want to give Mom a relaxing full body massage. Again, thank you for your love and support,
Karen and our entire family xoxo
Monday, April 12, 2010
Momma Ruthie is loosing the fight
Sunday afternoon, Mom began experiencing extreme muscle pain and nerve pain in her left arm and left leg. For the first time working on her, I was unable to decrease any of her symptoms. Mom and I spoke that maybe it was because the AML is getting worse. We both quickly dismissed that idea in fear it was and focused on what medication may decrease her pains.
At 1pm, I called the pharmacist, told him Mom had AML and what Chemo medication she was receiving(Vidaza.) I told him what pain medications we had in the house. The pharmacist said to give Mom Oxycodone 5 mg. We did, I resumed doing bodywork on her and she eventually fell of into a deep sleep. She awoke with a pain level around a 4in her left arm. Se had almost no pain in her left leg.
Here is the frightening news. By 7pm in the evening, Mom was experiencing severe level 10 plus muscle, nerve and bone pain throughout her body. We all had to confront our worse fear. The AML is now back in full vengeance. Mom was soon moaning, crying and then screaming in pain. Poppie, Brian and I immediately called 911. We impatiently waited for the ambulance to arrive. Poor little Momma Ruthie was excruciating pain and there was NOT a thing we could do to help her. She new and verbalized once we head to the hospital she knows she will never be coming back to her home and she will soon be gone.
While being secured in the ambulance Mom was telling the EMT's what to give her to relieve the pain. She also was telling the EMT they were going the long way to the hospital and they need to take a quicker route. She was too weak to argue. The ambulance arrived at the hospital and Mom was screaming in pain. In between her screams she was telling the Doctors to give her Dialda for her pain her immediately. Mom told them to do the paper work after they her pain under control.
Mom within minutes received a double dose of Dialda through her Hickman. Her pain within minutes was taken away throughout her body and we all were relieved. This did not last. Mom received too much too fast of the Dialda. Mom into respiratory arrest. and into a deep Catatonic state. 7 staff Doctors and Nurses were in the her room within a minute and working on her. They closed off her room with drapes and we had to wait outside the drapes. Brian, Poppie and I were holding each other tightly and ripping inside with concern. Three of us were standing arm in arm with tears streaming down our cheeks, were silent and staring at the drapes that were drawn so we could not see a thing.
It took about 3 minutes to revive Mom. The Doctors gave Mom a reverse serum to cancel out the Dialda. The drapes were drawn back open and we went in. Mom had an oxygen mask, EKG leads on her, several other leads and she was extremely weak, but alive. Unfortunately, within minutes, Mom's pain throughout her body returned. The Doctors started a slow drip of diluted Dialda. Because of the reverse serum in her system the Dialda took a good hour and half to begin to kick in. Once again she was in the pain level as she came in at.
Once the Dialda was able to take hold, Mom's only pain was in her left shoulder, down her arm and into her hand. This was at level 10 and came in bursts of 15 seconds about. Brian left around 2 am from the hospital. A room opened and Mom was taken out of ER to the bone marrow transplant floor. It was 4:00am, she was placed in a private room. Mom was asking the nurses immediately if they could call down the the Oncology floor and see if they had a room available. The Oncology floor is where she has spent the majority of her Chemo treatment care. She considers the entire staff to be family and they to her. Poppie and I left after she was settled and was drifting off a bit. We left and she still was experiencing pain in her left arm, but it decreased to a level 6. We hoped the pain would continue to drop to a 0 pain level.
Here we are Monday. Poppie and I returned to the hospital with my childhood best friend, Lisa. Mom's pain in her arm was now at a 4-6 pain level. The intensity, frequency and duration of time all decreased slightly. The day unfolded by speaking with Mom's Oncology team and then the Palliative team. Mom, Poppie, Lisa and I were dreading, but welcoming the conversations that needed to be discussed. Mom's head Oncologist spoke gently and clearly about the present options that Mom has. We were told that Momma Ruthie has just a few weeks to live. The priority at this time is to make Mom emotionally and physically pain free and comfortable.
Of course, Momma Ruthie being Momma Ruthie, demanded that she receives her last series of Vidaza chemo shots…even though the Doctors felt it wouldn't do anything. Mom simply does not believe in not completing things! That's our little Ruthie…fighting to the very end. We are simply devastated although we knew it would be inevitable. Life is never as long as you want it to be.
Later in the afternoon our Cousin Jody came by to share memories and stories with Mom. Brian shortly arrived after and we all began sharing stories about our Little Momma Ruthie. Between the many tears of sadness we found many tears from laughter rolling down our cheeks. Poppie, Lisa, Brian, Mom and I continued for quite awhile sharing. It was a very special time together.
Around 6pm, Mom got her wish. A private room became available on her the Oncology floor. It was bitter sweat being on that floor. Much of the staff have become "family" to Mom and the rest us. So much affection and love between Mom and the staff has developed over the past 5 months. As we were entering the Oncology unit many of the Nurses and Doctors greeted Mom. They, Mom, Brian and I could cried together. It was wonderful, once again to see the many people Mom has touched in such a positive light. The beautiful thing about Mom is that she does not even realize how loved she is and the incredible gifts she offers to others and leaves them with.
A very special surprise tonight was seeing Mom's closest and oldest best friend and her husband. The stories they shared about each other from years before I was born to the present had all of us laughing and crying. Brian, Poppie and I left Mom this evening on her requested floor. We all hope that Mom's left arm STOPS hurting her and she is entirely becomes pain free.
I will write every evening to share about Mom's last days with us. Thank you so very much for all the love and support you've shown our Energizer Momma Ruthie an the rest of the family. This has been an extremely difficult journey to this day and it has only just begun.
All Our Love,
Karen
At 1pm, I called the pharmacist, told him Mom had AML and what Chemo medication she was receiving(Vidaza.) I told him what pain medications we had in the house. The pharmacist said to give Mom Oxycodone 5 mg. We did, I resumed doing bodywork on her and she eventually fell of into a deep sleep. She awoke with a pain level around a 4in her left arm. Se had almost no pain in her left leg.
Here is the frightening news. By 7pm in the evening, Mom was experiencing severe level 10 plus muscle, nerve and bone pain throughout her body. We all had to confront our worse fear. The AML is now back in full vengeance. Mom was soon moaning, crying and then screaming in pain. Poppie, Brian and I immediately called 911. We impatiently waited for the ambulance to arrive. Poor little Momma Ruthie was excruciating pain and there was NOT a thing we could do to help her. She new and verbalized once we head to the hospital she knows she will never be coming back to her home and she will soon be gone.
While being secured in the ambulance Mom was telling the EMT's what to give her to relieve the pain. She also was telling the EMT they were going the long way to the hospital and they need to take a quicker route. She was too weak to argue. The ambulance arrived at the hospital and Mom was screaming in pain. In between her screams she was telling the Doctors to give her Dialda for her pain her immediately. Mom told them to do the paper work after they her pain under control.
Mom within minutes received a double dose of Dialda through her Hickman. Her pain within minutes was taken away throughout her body and we all were relieved. This did not last. Mom received too much too fast of the Dialda. Mom into respiratory arrest. and into a deep Catatonic state. 7 staff Doctors and Nurses were in the her room within a minute and working on her. They closed off her room with drapes and we had to wait outside the drapes. Brian, Poppie and I were holding each other tightly and ripping inside with concern. Three of us were standing arm in arm with tears streaming down our cheeks, were silent and staring at the drapes that were drawn so we could not see a thing.
It took about 3 minutes to revive Mom. The Doctors gave Mom a reverse serum to cancel out the Dialda. The drapes were drawn back open and we went in. Mom had an oxygen mask, EKG leads on her, several other leads and she was extremely weak, but alive. Unfortunately, within minutes, Mom's pain throughout her body returned. The Doctors started a slow drip of diluted Dialda. Because of the reverse serum in her system the Dialda took a good hour and half to begin to kick in. Once again she was in the pain level as she came in at.
Once the Dialda was able to take hold, Mom's only pain was in her left shoulder, down her arm and into her hand. This was at level 10 and came in bursts of 15 seconds about. Brian left around 2 am from the hospital. A room opened and Mom was taken out of ER to the bone marrow transplant floor. It was 4:00am, she was placed in a private room. Mom was asking the nurses immediately if they could call down the the Oncology floor and see if they had a room available. The Oncology floor is where she has spent the majority of her Chemo treatment care. She considers the entire staff to be family and they to her. Poppie and I left after she was settled and was drifting off a bit. We left and she still was experiencing pain in her left arm, but it decreased to a level 6. We hoped the pain would continue to drop to a 0 pain level.
Here we are Monday. Poppie and I returned to the hospital with my childhood best friend, Lisa. Mom's pain in her arm was now at a 4-6 pain level. The intensity, frequency and duration of time all decreased slightly. The day unfolded by speaking with Mom's Oncology team and then the Palliative team. Mom, Poppie, Lisa and I were dreading, but welcoming the conversations that needed to be discussed. Mom's head Oncologist spoke gently and clearly about the present options that Mom has. We were told that Momma Ruthie has just a few weeks to live. The priority at this time is to make Mom emotionally and physically pain free and comfortable.
Of course, Momma Ruthie being Momma Ruthie, demanded that she receives her last series of Vidaza chemo shots…even though the Doctors felt it wouldn't do anything. Mom simply does not believe in not completing things! That's our little Ruthie…fighting to the very end. We are simply devastated although we knew it would be inevitable. Life is never as long as you want it to be.
Later in the afternoon our Cousin Jody came by to share memories and stories with Mom. Brian shortly arrived after and we all began sharing stories about our Little Momma Ruthie. Between the many tears of sadness we found many tears from laughter rolling down our cheeks. Poppie, Lisa, Brian, Mom and I continued for quite awhile sharing. It was a very special time together.
Around 6pm, Mom got her wish. A private room became available on her the Oncology floor. It was bitter sweat being on that floor. Much of the staff have become "family" to Mom and the rest us. So much affection and love between Mom and the staff has developed over the past 5 months. As we were entering the Oncology unit many of the Nurses and Doctors greeted Mom. They, Mom, Brian and I could cried together. It was wonderful, once again to see the many people Mom has touched in such a positive light. The beautiful thing about Mom is that she does not even realize how loved she is and the incredible gifts she offers to others and leaves them with.
A very special surprise tonight was seeing Mom's closest and oldest best friend and her husband. The stories they shared about each other from years before I was born to the present had all of us laughing and crying. Brian, Poppie and I left Mom this evening on her requested floor. We all hope that Mom's left arm STOPS hurting her and she is entirely becomes pain free.
I will write every evening to share about Mom's last days with us. Thank you so very much for all the love and support you've shown our Energizer Momma Ruthie an the rest of the family. This has been an extremely difficult journey to this day and it has only just begun.
All Our Love,
Karen
Saturday, April 10, 2010
A Frightening and Painful Day
Mom, Poppie and I were off to the hospital by 10am this morning for Mom's Vidaza Injections. Brian had met us at the hospital to simply be together. Mom was feeling pretty good with moderate and intermittent right arm deep ache with slight pain into her hand. I was able to control her symptoms with some trigger point work.
We had time to pass before her injections so I suggested that Mom and I visit her Oncology floor to say hello to the staff on duty. I know how much the connection with each individual brightens her spirits and day. There were so many Nurses, Dr.'s and staff members that immediately approached Mom to give her hugs. One Nurse had gotten engaged since Mom was on the floor for treatment last month. The Nurse embraced Mom with such a tight and long hug. They spoke and shared tears together about Mom's relapse. Then the Nurse asked if Mom would be a greeter at her wedding in early August? This put the biggest smile on Mom's face and they both hugged and Mom said she accepts and will fight to be there.
I forgot to tell you, when I arrived earlier this morning from SD, I had noticed Mom's right hand exhibited bruising/internal bleeding. I thought this may be a result to her platelets being low. Prior to her appointment in the morning the bruising had not spread nor changed in color.
A little over an hour after returning from the hospital around 12:30pm I had noticed that Mom's right hand exhibited deep bruising past her writ and slightly up and around her forearm. We called the emergency number given to us and the Oncology Dr. on call said to bring her back to the hospital and admit her into hospital through the ER Department. We arrived around 3pm, Mom was taken immediately, we were given a private room and a Nurse then Dr. began the intake then treatment.
Brian, Poppie, and I sat with Mom for 4.5 hours while she was examined, her blood drawn and tested. Mom was suffering during this time with moderate to severe pain in her right shoulder, down her arm, into her elbow and into her hand. Again, with Trigger Point work and some range of motion and stretching her symptoms decreased to almost gone. Mom chose not to tell the Dr. about her pain in fear of staying overnight.
Mom's platelets are low, but not pressing for a transfusion. The Dr. decided to ave Mom re-examine her on Sunday, tomorrow, when she comes in for her Vidaza Injections. On Monday she happens to already be scheduled to have her blood drawn and tested. We all were pleased to be going home. On the way home, Mom received a surprise call by one of her Oncologist Dr. Interns whom adopted her back in November. Well she adopted him as well. She loves to tell people she now has a Doctor son in the family. He, his wife and son stopped by to say hello, give Mom a small gift and make sure her mental state is OK. It is wonderful to see how Mom touches so many people and is truly loved by many.
Around 9pm Mom began having severe pain/deep ache into her right arm and into her hand again. I had iced her, did some therapy and again it calmed a bit. Around 12am Mom began another episode of pain/deep acheiness into her right arm into to her hand and now in her left hip down her leg into her chin. Yes, these seem to resemble the symptoms she experienced in October 2009 prior to her diagnosis. I again applied her ice, repositioned her in bed and began Trigger Point and Soft Tissue Therapy on her. It took a good 45 minutes before the pain cycle broke. She finally fell asleep within the hour and half of working on her. She fell into a deep sleep within the hour and half and was no longer moaning in pain. Such great relief for her and for me. Oh, it is so difficult to witness someone you love so deeply be in such agony and pain.
I am exhausted. I will write again tomorrow night. I am going to steal some shut eye before she needs me. Hopefully, she is able to sleep for several hours and get some rest.
Again, your love, prayers and support is so very appreciated. Thank You xoxo
Karen
We had time to pass before her injections so I suggested that Mom and I visit her Oncology floor to say hello to the staff on duty. I know how much the connection with each individual brightens her spirits and day. There were so many Nurses, Dr.'s and staff members that immediately approached Mom to give her hugs. One Nurse had gotten engaged since Mom was on the floor for treatment last month. The Nurse embraced Mom with such a tight and long hug. They spoke and shared tears together about Mom's relapse. Then the Nurse asked if Mom would be a greeter at her wedding in early August? This put the biggest smile on Mom's face and they both hugged and Mom said she accepts and will fight to be there.
I forgot to tell you, when I arrived earlier this morning from SD, I had noticed Mom's right hand exhibited bruising/internal bleeding. I thought this may be a result to her platelets being low. Prior to her appointment in the morning the bruising had not spread nor changed in color.
A little over an hour after returning from the hospital around 12:30pm I had noticed that Mom's right hand exhibited deep bruising past her writ and slightly up and around her forearm. We called the emergency number given to us and the Oncology Dr. on call said to bring her back to the hospital and admit her into hospital through the ER Department. We arrived around 3pm, Mom was taken immediately, we were given a private room and a Nurse then Dr. began the intake then treatment.
Brian, Poppie, and I sat with Mom for 4.5 hours while she was examined, her blood drawn and tested. Mom was suffering during this time with moderate to severe pain in her right shoulder, down her arm, into her elbow and into her hand. Again, with Trigger Point work and some range of motion and stretching her symptoms decreased to almost gone. Mom chose not to tell the Dr. about her pain in fear of staying overnight.
Mom's platelets are low, but not pressing for a transfusion. The Dr. decided to ave Mom re-examine her on Sunday, tomorrow, when she comes in for her Vidaza Injections. On Monday she happens to already be scheduled to have her blood drawn and tested. We all were pleased to be going home. On the way home, Mom received a surprise call by one of her Oncologist Dr. Interns whom adopted her back in November. Well she adopted him as well. She loves to tell people she now has a Doctor son in the family. He, his wife and son stopped by to say hello, give Mom a small gift and make sure her mental state is OK. It is wonderful to see how Mom touches so many people and is truly loved by many.
Around 9pm Mom began having severe pain/deep ache into her right arm and into her hand again. I had iced her, did some therapy and again it calmed a bit. Around 12am Mom began another episode of pain/deep acheiness into her right arm into to her hand and now in her left hip down her leg into her chin. Yes, these seem to resemble the symptoms she experienced in October 2009 prior to her diagnosis. I again applied her ice, repositioned her in bed and began Trigger Point and Soft Tissue Therapy on her. It took a good 45 minutes before the pain cycle broke. She finally fell asleep within the hour and half of working on her. She fell into a deep sleep within the hour and half and was no longer moaning in pain. Such great relief for her and for me. Oh, it is so difficult to witness someone you love so deeply be in such agony and pain.
I am exhausted. I will write again tomorrow night. I am going to steal some shut eye before she needs me. Hopefully, she is able to sleep for several hours and get some rest.
Again, your love, prayers and support is so very appreciated. Thank You xoxo
Karen
Mom’s Will to Live is Strong!
Mom, Poppie and Brian met with Mom’s Oncology Head Nurse Friday morning. The news was not good. Mom is now up at 84% blasts. This means that her bone marrow is aggressively producing the AML and it is peripheral into her blood. Her Doctor’s are encouraging Mom and the rest of us to be patient and allow the new Chemo Injections to take effect. The biopsy results on Mom’s upper torso front and back have not come in yet. Actually, Mom said she is O.K. not knowing the results. It is one less thing to focus on.
I need not express the intense emotions that filled Mom and the rest of us today.
Earlier in the week, I had spoken with Mom’s Oncology Head Nurse to get the details on her present medical condition. Kimmy and I were informed that Mom’s blasts on Tuesday increased to 72% from 53% in less than a week. We decided it would be best for me to fly home as soon as possible. Kimmy will be flying out on April 19
as we had planned originally for the two of us.
After receiving the tests results Friday morning, Kimmy and I decided to tell Mom and Poppie about my surprise to come home yesterday. We felt Mom and Poppie needed some good news after the Friday appointment and give them something to look forward to so I told them that I changed my flight to come home Saturday at 12:04 am. Mom immediately went into deep sobs. She let go and shared her immense fears around the recent test results, her not knowing how long she really has to live, and her fears on how will Poppie live without her and the rest of the family simply was overwhelming her.
Kimmy and I realized my unannounced arrival to come home early may possibly throw her deeper into fear and that she would believe we were told she had a small window of time to live. Sure enough this was what she had thought at first. After expressing this to me over the phone, Mom and I knew we needed to be in the same space. Mom and I were craving to feel and see each other and share this process to its entirety . Mom, after a few more minutes talking on the phone she quickly pulled herself together.
Mom started listing what she was going to do with excitement to get my room and the house ready for my arrival. Poppie, as well regrouped and his focus was on what he loves doing the most. Yup, to go food shopping. He quickly did a food inventory in the house with Mom while I was on the phone in the airport listening. After our phone call, he ran out to Wegmans to get additional items that I could enjoy. Truly their pleasures are mine, wink.
I arrived safely at the airport. Brian, Mom and Poppie picked me up. Mom’s energy level was extremely low when I arrived. As the hour passed into 1 am this morning, Brian returned home, Poppie went to bed and Mom and I did what we do best; we talked like college friends to wee hours of the night. We covered many topics and Mom got her second wind. Mom was back to her old self and I kept mentioning we better settle in for bed since we needed to be up and out by 9am to head to the hospital. Mom giggled and said she has not had this much energy since I left Rochester several weeks ago.
Prior to heading in for the a few hours of sleep, Mom wanted me to do a detailed look over from head to toe on her. I also took a look at her injection sights, her skin markings, her biopsies, various mystery bruising, and lastly checked all the previous skin biopsies. She then insisted it was my turn to share and she looked at all my skin markings and how well my biopsy is coming along. What a pair we are, wink. We soon gave each other big hugs, a few kisses, Mom tucked me in and we said we see each other in a few hours. It felt wonderful for both of us to be together again.
I will keep you closely posted as the days pass. We are now leaving for the hospital to receive her day 5 of 7 for Chemo injection for the day.
Lots of Love and thank you for your endless prayers,
Karen
I need not express the intense emotions that filled Mom and the rest of us today.
Earlier in the week, I had spoken with Mom’s Oncology Head Nurse to get the details on her present medical condition. Kimmy and I were informed that Mom’s blasts on Tuesday increased to 72% from 53% in less than a week. We decided it would be best for me to fly home as soon as possible. Kimmy will be flying out on April 19
as we had planned originally for the two of us.
After receiving the tests results Friday morning, Kimmy and I decided to tell Mom and Poppie about my surprise to come home yesterday. We felt Mom and Poppie needed some good news after the Friday appointment and give them something to look forward to so I told them that I changed my flight to come home Saturday at 12:04 am. Mom immediately went into deep sobs. She let go and shared her immense fears around the recent test results, her not knowing how long she really has to live, and her fears on how will Poppie live without her and the rest of the family simply was overwhelming her.
Kimmy and I realized my unannounced arrival to come home early may possibly throw her deeper into fear and that she would believe we were told she had a small window of time to live. Sure enough this was what she had thought at first. After expressing this to me over the phone, Mom and I knew we needed to be in the same space. Mom and I were craving to feel and see each other and share this process to its entirety . Mom, after a few more minutes talking on the phone she quickly pulled herself together.
Mom started listing what she was going to do with excitement to get my room and the house ready for my arrival. Poppie, as well regrouped and his focus was on what he loves doing the most. Yup, to go food shopping. He quickly did a food inventory in the house with Mom while I was on the phone in the airport listening. After our phone call, he ran out to Wegmans to get additional items that I could enjoy. Truly their pleasures are mine, wink.
I arrived safely at the airport. Brian, Mom and Poppie picked me up. Mom’s energy level was extremely low when I arrived. As the hour passed into 1 am this morning, Brian returned home, Poppie went to bed and Mom and I did what we do best; we talked like college friends to wee hours of the night. We covered many topics and Mom got her second wind. Mom was back to her old self and I kept mentioning we better settle in for bed since we needed to be up and out by 9am to head to the hospital. Mom giggled and said she has not had this much energy since I left Rochester several weeks ago.
Prior to heading in for the a few hours of sleep, Mom wanted me to do a detailed look over from head to toe on her. I also took a look at her injection sights, her skin markings, her biopsies, various mystery bruising, and lastly checked all the previous skin biopsies. She then insisted it was my turn to share and she looked at all my skin markings and how well my biopsy is coming along. What a pair we are, wink. We soon gave each other big hugs, a few kisses, Mom tucked me in and we said we see each other in a few hours. It felt wonderful for both of us to be together again.
I will keep you closely posted as the days pass. We are now leaving for the hospital to receive her day 5 of 7 for Chemo injection for the day.
Lots of Love and thank you for your endless prayers,
Karen
Wednesday, April 7, 2010
New Treatment Plan Began Yesterday
Mom was pitched a curve ball on Monday by her Oncologists. She and Poppie received the results from her Bone Biopsy from April 1st. Mom's entire Oncology team was stunned and deeply saddened, as Mom and Poppie, to hear Mom entered a relapse in the middle of her Chemo Consolidation treatment. She no longer was showing below the 5% blasts line. She was showing 53% blasts. This means the present Chemo is no longer fighting her AML. It is amazing that the Chemo medication, Cytaracine, which was a doze for a 50 year old all this time could no longer battle the AML. Can you say DEVASTATION! Yes, we all felt like we were punched in the stomach and could not get a breath.
Yesterday, Mom kept her eye on that "curve ball," visualized making a solid contact with that ball (which is the AML)and is watching her AML sailing out of the park (which is out of her body). Mom may be 75 years old, but she is still mentally and physically strong and determined to get her way! Mom and Poppie spent the previous 48 hours regrouping their strength and positive thinking. They both walked into the hospital yesterday to begin her new treatment with great optimism.
Mom began receiving 3 shots per day of Vidaza for 7 days in a row. She then takes 3 weeks off from the shots and begins again the shots for 7 days. This is administered for 3 months. She will continue going into the hospital for her blood drawings, Hickman flushing and IV's when needed.
Mom, last week also broke out with another type of skin rash on her upper torso front and back. Yesterday, she had some biopsy's taken to identify if they are another form of skin Leukemia or not. Months ago she had skin Leukemia on her head and the Chemo was able to knock it out. We trust this new Chemo drug will do the same.
To end with some positive thoughts, Mom is not experiencing any discomfort or pain from her injections so far. Yesterday and today, Mom is NOT showing any symptoms from her injections. She and Poppie are staying foucsed that she is still an ANOMALY and will be helping others with AML in years to come to fight as she has and is.
I will keep you closely posted.
Lots of love and feel the best you can,
Karen
Yesterday, Mom kept her eye on that "curve ball," visualized making a solid contact with that ball (which is the AML)and is watching her AML sailing out of the park (which is out of her body). Mom may be 75 years old, but she is still mentally and physically strong and determined to get her way! Mom and Poppie spent the previous 48 hours regrouping their strength and positive thinking. They both walked into the hospital yesterday to begin her new treatment with great optimism.
Mom began receiving 3 shots per day of Vidaza for 7 days in a row. She then takes 3 weeks off from the shots and begins again the shots for 7 days. This is administered for 3 months. She will continue going into the hospital for her blood drawings, Hickman flushing and IV's when needed.
Mom, last week also broke out with another type of skin rash on her upper torso front and back. Yesterday, she had some biopsy's taken to identify if they are another form of skin Leukemia or not. Months ago she had skin Leukemia on her head and the Chemo was able to knock it out. We trust this new Chemo drug will do the same.
To end with some positive thoughts, Mom is not experiencing any discomfort or pain from her injections so far. Yesterday and today, Mom is NOT showing any symptoms from her injections. She and Poppie are staying foucsed that she is still an ANOMALY and will be helping others with AML in years to come to fight as she has and is.
I will keep you closely posted.
Lots of love and feel the best you can,
Karen
Saturday, April 3, 2010
Solid as a Rock
I would like to apologize for the last blog being 13 days ago. Since Mom has been on a steady path of maintaing well, I took the opportunity to focus on my medical, professional and personal needs.
Mom continues to be challenged to maintain a balance with a positive attitude and take control personality over her AML. Thursday, April 1st, Mom went in for another Bone Biopsy. With excitement from her Oncology team, they were able to obtain enough "liquid" and bone fragments to test. This is the first time in six months they could obtain both to test. Yes, this fueled Mom and Poppies hopes to once again begin living their life and traveling together and with loved ones.
Mom continues to suffer from fatigue with physical exertion which frustrates her greatly. She battles her desire to get on her treadmill for her 6 miles, but instead walks for 3-5 minutes on her treadmill. She craves to complete projects in one step. Yes, this consists of cleaning, dusting and detailing her entire house or clearing and then replanting her entire garden to just name a few things. It angers her that her energy and muscle fatigue drops within 10-15 minutes. She is learning that is OK, to return to a project many times. After all, it will still be there the way she left it when she returns it, wink.
Mom and I have been sharing the many lessons in life that I have adopted or weaved into my daily living. Her forced life change, for now, saddens her greatly. We chat a bit and she soon becomes grateful she for all she is presently able to do. Though all she does is greatly shortened in time she is slowly learning to appreciate it. Mom is learning the difficult lesson that "less is more." She is also learning the preciousness in "being able to do instead of not being able do at all." I am very proud of her.
Mom goes back into the hospital on April 9th for her 3rd Chemo Consolidation. She will be in the hospital for a week. She then will have appointments daily, as the previous consolidations, as an outpatient. She will receive her Neupogen injections, blood drawings, IV infusions and follow up appointments with her doctors for the remainder of April.
Kimmy and I will be flying to Rochester a week after Mom gets out of the hospital. Unfortunately, we are not able to leave early do to my personal and medical responsibilities. We arrive in Rochester on April 20th in the early morning. We are so looking forward to being home with the family. Soon we will be able to enjoy Mom and Poppie 24/7 once again. Skype is great to have daily, but it does not give the "touch" value.
Oh, speaking of SKYPE. As you know I bring my laptop everywhere for Mom and Poppie to share with Kimmy, Shayna Punum and I. Brian came out for a visit in SD. I was able to get him a gig to put on a Professional Magic Show. I set up SKYPE and Mom and Poppie saw the entire show, spoke with many friends and strangers in the audience and had a ball for several hours with us. By the way, Brian truly brought "The House Down." Brian not only WOWED everyone with his show, but he was asked to do another show in a few months in a club here in San Diego's downtown Gas Lamp. I and Kimmy were so incredibly proud of him. It was great having him stay with us for a short two weeks. We look foward to his next visit.
OK, enough for now. If anything changes with Mom I will blog immediately.
Love and hugs to everyone,
Karen
Mom continues to be challenged to maintain a balance with a positive attitude and take control personality over her AML. Thursday, April 1st, Mom went in for another Bone Biopsy. With excitement from her Oncology team, they were able to obtain enough "liquid" and bone fragments to test. This is the first time in six months they could obtain both to test. Yes, this fueled Mom and Poppies hopes to once again begin living their life and traveling together and with loved ones.
Mom continues to suffer from fatigue with physical exertion which frustrates her greatly. She battles her desire to get on her treadmill for her 6 miles, but instead walks for 3-5 minutes on her treadmill. She craves to complete projects in one step. Yes, this consists of cleaning, dusting and detailing her entire house or clearing and then replanting her entire garden to just name a few things. It angers her that her energy and muscle fatigue drops within 10-15 minutes. She is learning that is OK, to return to a project many times. After all, it will still be there the way she left it when she returns it, wink.
Mom and I have been sharing the many lessons in life that I have adopted or weaved into my daily living. Her forced life change, for now, saddens her greatly. We chat a bit and she soon becomes grateful she for all she is presently able to do. Though all she does is greatly shortened in time she is slowly learning to appreciate it. Mom is learning the difficult lesson that "less is more." She is also learning the preciousness in "being able to do instead of not being able do at all." I am very proud of her.
Mom goes back into the hospital on April 9th for her 3rd Chemo Consolidation. She will be in the hospital for a week. She then will have appointments daily, as the previous consolidations, as an outpatient. She will receive her Neupogen injections, blood drawings, IV infusions and follow up appointments with her doctors for the remainder of April.
Kimmy and I will be flying to Rochester a week after Mom gets out of the hospital. Unfortunately, we are not able to leave early do to my personal and medical responsibilities. We arrive in Rochester on April 20th in the early morning. We are so looking forward to being home with the family. Soon we will be able to enjoy Mom and Poppie 24/7 once again. Skype is great to have daily, but it does not give the "touch" value.
Oh, speaking of SKYPE. As you know I bring my laptop everywhere for Mom and Poppie to share with Kimmy, Shayna Punum and I. Brian came out for a visit in SD. I was able to get him a gig to put on a Professional Magic Show. I set up SKYPE and Mom and Poppie saw the entire show, spoke with many friends and strangers in the audience and had a ball for several hours with us. By the way, Brian truly brought "The House Down." Brian not only WOWED everyone with his show, but he was asked to do another show in a few months in a club here in San Diego's downtown Gas Lamp. I and Kimmy were so incredibly proud of him. It was great having him stay with us for a short two weeks. We look foward to his next visit.
OK, enough for now. If anything changes with Mom I will blog immediately.
Love and hugs to everyone,
Karen
Sunday, March 21, 2010
Nothing can keep Momma Ruthie Down
Last Tuesday Mom had gone in for her usual blood tests and nearing her last Neupogen injection. Well, she had been suffering from the onset with a few mouth sores. By the time she arrived at the hospital she had a fever and a another mouth sore. Mom was immediatley admitted into the hospital and begun treatment for both symptoms.
By the 12th hour of treatment, Mom's fever broke. By last Thursday she also had less mouth inflamation and began to feel her spunky self. Mom was discharged on Friday afternoon. She and all the staff were, yet again, so pleased and impressed with how well her body fights back. She is absolutely their star patient.
It was wonderful for those few days for Mom and Poppie to receive all the love and concern by the staff. This admittance was on the transplant floor since there was not any rooms available on "her" Oncology floor. Well, the staff on the transplant floor quickly adored Mom and adopted both she and Poppie. The Oncology staff continuously were visitng Mom as well knowing she was admitted. Yup, Mom had non-stop company. It is so heart warming to see Mom's magic continue to work. She brings so much joy and laughter to so many around her even when Mom is focusing on herself. We all know that all this love, attention and respect that she receives is what is fueling her to FIGHT her AML.
Mom had a quiet and pain and symptom free weekend. She continues to fatigue easily, but this is par for the course at this point.
I will email later in the week to give another update. If something comes up sooner, of course I will email sooner.
Hugs, Love and feel the best you can,
Karen
By the 12th hour of treatment, Mom's fever broke. By last Thursday she also had less mouth inflamation and began to feel her spunky self. Mom was discharged on Friday afternoon. She and all the staff were, yet again, so pleased and impressed with how well her body fights back. She is absolutely their star patient.
It was wonderful for those few days for Mom and Poppie to receive all the love and concern by the staff. This admittance was on the transplant floor since there was not any rooms available on "her" Oncology floor. Well, the staff on the transplant floor quickly adored Mom and adopted both she and Poppie. The Oncology staff continuously were visitng Mom as well knowing she was admitted. Yup, Mom had non-stop company. It is so heart warming to see Mom's magic continue to work. She brings so much joy and laughter to so many around her even when Mom is focusing on herself. We all know that all this love, attention and respect that she receives is what is fueling her to FIGHT her AML.
Mom had a quiet and pain and symptom free weekend. She continues to fatigue easily, but this is par for the course at this point.
I will email later in the week to give another update. If something comes up sooner, of course I will email sooner.
Hugs, Love and feel the best you can,
Karen
Tuesday, March 16, 2010
Tearful Tuesday
Mom's numbers have been dropping throughout the weekend. She received several transfusions and tires very easily. Yesterday, for the first time, mouth sores began. This morning she was exhausted and was experiencing more pain with discomfort talking. Poor thing. Poppie and I were teasing her that she better not speak as much and simply observe. As you know, this is more painful for her than actually speaking. Seriously, little Momma Ruthie is once again suffering. It is heart breaking.
It was very difficult leaving this morning for SD. Mom, I and Poppie found some comfort saying goodbye for now knowing Kimmy and I will be back in Rochester in about a month. The past 5 months have absolutely been a roller coaster of emotions, especially for me. I need not go into detail on that topic.
All I can say, is my highlights and focus in life right now is being with Kimmy, Shayna Punum, my family, a few close friends and especially Mom and Poppie. Mom and I repeatedly share how much we mean to each other, truly like and respect each other, and are thankful we have the time we have to create new wonderful memories together. OK, enough of that.
Today, Mom is receiving another transfusion and is at the hospital with Poppie for 3-4 hours. Poppie is biting at the bit to order a large pepperoni pizza while waiting for Mom. Mom is having him order something healthier, soup and a salad for example. Hey, it works for them, wink. They still are so cute and sometimes annoying to observe their attempts to control each other. After all, it is their way of flirting. I respect that, wink.
More to come later.
Hugs and love,
Karen
It was very difficult leaving this morning for SD. Mom, I and Poppie found some comfort saying goodbye for now knowing Kimmy and I will be back in Rochester in about a month. The past 5 months have absolutely been a roller coaster of emotions, especially for me. I need not go into detail on that topic.
All I can say, is my highlights and focus in life right now is being with Kimmy, Shayna Punum, my family, a few close friends and especially Mom and Poppie. Mom and I repeatedly share how much we mean to each other, truly like and respect each other, and are thankful we have the time we have to create new wonderful memories together. OK, enough of that.
Today, Mom is receiving another transfusion and is at the hospital with Poppie for 3-4 hours. Poppie is biting at the bit to order a large pepperoni pizza while waiting for Mom. Mom is having him order something healthier, soup and a salad for example. Hey, it works for them, wink. They still are so cute and sometimes annoying to observe their attempts to control each other. After all, it is their way of flirting. I respect that, wink.
More to come later.
Hugs and love,
Karen
Saturday, March 13, 2010
Difficult Facts to Hear
Mom's body continues the fight against her AML. Yesterday, Mom met with her Oncologist. Mom, Poppie and I had a heart to heart with her Oncologist regarding Mom's present and future status.
As you know, Mom has been responding better than expected with each Chemo treatment. Mom continues to pleasantly surprise the Oncology Team with how strong she has rebounded from each treatment. Her Oncologist stated that Mom is responding "as a young person not as a Senior." Mom's numbers have risen at a normal rate, her body has developed its own defenses within the expected time frame and the blood tests have shown Mom Leukemic blasts are under the 5% range. This means Mom is in the closest "remission" possible for her AML. This put a big smile on Mom's face and Poppies.
We then began to discuss what follows after this 3rd Chemo Induction which will occur sometime in April. The Oncologist expressed, Mom, then will receive her 4th and last Chemo Induction sometime in May or early June. After the 4th Chemo Induction, Mom will have her Hickman removed from her chest.
The 4th Chemo Induction will conclude the Chemo treatments for Mom's disease intervention. If she is able to stay under the 5% blasts she is considered in a remission for AML. Unfortunately, there is a small percentage of Leukemic cells that the Doctors are not able to detect. There will always be some Leukemic cells present. Yes, this is the difficult news. Mom and Poppie thought she would eventually be at 0% with no Leukemic cells left in her body. The fear, anxiousness and powerlessness engulfed Mom's face as well as Poppies when hearing this news. The unknown to when the AML may return is extremely frightening. It may come back quietly or in full vengeance.
Yes, I have spent the past 24 hours discussing this with Mom and Poppie. Through our conversations I hope to assist them to be able to digest the reality of Mom's disease. I shared this news with Kimmy, Brian, Reece, Mike and Cindy. I continue to speak with Mom and Poppie on the importance and ways to begin to embrace "what is" and ways to welcome everyday a feel good experience and find pleasure in creating new fond memories. Our goal as a family is to plan some outings, a trip back to San Diego, and to plan another cruise. After all, Life is to be fully experienced and enjoyed when given the slightest opportunity.
Thank you for all your love, support and prayers. It has and DOES mean so much.
Hugs and sleep well,
Karen
As you know, Mom has been responding better than expected with each Chemo treatment. Mom continues to pleasantly surprise the Oncology Team with how strong she has rebounded from each treatment. Her Oncologist stated that Mom is responding "as a young person not as a Senior." Mom's numbers have risen at a normal rate, her body has developed its own defenses within the expected time frame and the blood tests have shown Mom Leukemic blasts are under the 5% range. This means Mom is in the closest "remission" possible for her AML. This put a big smile on Mom's face and Poppies.
We then began to discuss what follows after this 3rd Chemo Induction which will occur sometime in April. The Oncologist expressed, Mom, then will receive her 4th and last Chemo Induction sometime in May or early June. After the 4th Chemo Induction, Mom will have her Hickman removed from her chest.
The 4th Chemo Induction will conclude the Chemo treatments for Mom's disease intervention. If she is able to stay under the 5% blasts she is considered in a remission for AML. Unfortunately, there is a small percentage of Leukemic cells that the Doctors are not able to detect. There will always be some Leukemic cells present. Yes, this is the difficult news. Mom and Poppie thought she would eventually be at 0% with no Leukemic cells left in her body. The fear, anxiousness and powerlessness engulfed Mom's face as well as Poppies when hearing this news. The unknown to when the AML may return is extremely frightening. It may come back quietly or in full vengeance.
Yes, I have spent the past 24 hours discussing this with Mom and Poppie. Through our conversations I hope to assist them to be able to digest the reality of Mom's disease. I shared this news with Kimmy, Brian, Reece, Mike and Cindy. I continue to speak with Mom and Poppie on the importance and ways to begin to embrace "what is" and ways to welcome everyday a feel good experience and find pleasure in creating new fond memories. Our goal as a family is to plan some outings, a trip back to San Diego, and to plan another cruise. After all, Life is to be fully experienced and enjoyed when given the slightest opportunity.
Thank you for all your love, support and prayers. It has and DOES mean so much.
Hugs and sleep well,
Karen
Wednesday, March 10, 2010
Mom continues to shine
The past several days Mom emotionally, physically and symptom wise is doing well. She continues to only suffer from fatigue. This is most noticeable when she attempts to clean and maintain her "show room" home. We are taking advantage that her energy is pretty good the past week. Every few hours we go for a walk, exercise to music, play boards games, and yes cook up a storm in the kitchen.
Mom's numbers are beginning to drop and we expect her IV transfusions to begin by this Friday. Mom visits the hospital daily for blood drawings, Hickman flushing, Neupogen injection and yes for her daily weigh in. It is so cute to see how anxious she gets when she has to step on the hospital scale. Actually, she is pleased she is holding her weight gain which is a good sign that the treatments are working. Mom's hair stubble's are now growing and she looks adorable.
Mom, I and the family are in a good routine with her schedule now. Brian, Mike and Reece check in daily on Mom and Poppie. It is such treat to have all of us get together so often. In a weird way, we thank Mom for this.
More to come later,
Karen
Mom's numbers are beginning to drop and we expect her IV transfusions to begin by this Friday. Mom visits the hospital daily for blood drawings, Hickman flushing, Neupogen injection and yes for her daily weigh in. It is so cute to see how anxious she gets when she has to step on the hospital scale. Actually, she is pleased she is holding her weight gain which is a good sign that the treatments are working. Mom's hair stubble's are now growing and she looks adorable.
Mom, I and the family are in a good routine with her schedule now. Brian, Mike and Reece check in daily on Mom and Poppie. It is such treat to have all of us get together so often. In a weird way, we thank Mom for this.
More to come later,
Karen
Friday, March 5, 2010
Reunions are Wonderful
Friday, Poppie picked me up at the airport in the late morning. Unfortunately, Kimmy was not able to join me on this trip. Next month Kimmy and I will be returning together. Mom greeted me with a big hug and non stop kisses. Poppie, Brian, Mikie and I visited for several hours with Mom. I met Mom's roommate, Dawn, this stay in the hospital. They were closer than "dorm room" mates. Mom and Dawn quickly became
close friends and exchanged numbers.
Friday and Saturday, Dawn, her husband and all of us never drew the room divider. The seating arrangement in their "dorm room" was kept in a large half moon. Yup, it was a party in there. The staff periodically came into the room to see what all the chatter and laughter was all about. Many of the staff simply felt left out. The only thing missing was the pizza delivery guy showing up.
One Nurse came in to flush Mom's Hickman, test her neurological and brain function status and administer her next chemo treatment. Mom had gotten her Nurse, Ruben, to play "patty-cake" with her to ensure her coordination was excellent. Well, it became such a competition of speed that the other floor staff came by to see what the noise was all about. They were in utter shock that Mom had gotten the head Nurse, whom is pretty quiet and shy, to play with her and laugh uncontrollably. It was so cute to watch. It really is wonderful how Mom is able to create a safe space for so many others let their inner child out and enjoy.
Early this morning at 5am, Mom received her last of the 6 Chemo treatments. Mom is in very good spirits and prays she has no symptoms other than fatigue as her numbers are expected to begin dropping again. Mom is doing very well, despite that this Chemo treatment is a higher dosage than the previous month. Since Mom's numbers will soon be dropping, tomorrow she is back on her meds for anti-viral, anti-fungal, and many more. Tomorrow, Mom will begin her routine of going to the hospital every day for treatment and observation. She will have her Hickman flushed, blood drawn, all vitals checked, and will receive, if needed an IV to support her system where ever she is low in.
Mom, Poppie and I just returned home. Yup, Mom was discharged today. The staff, as well as Mom, were very sad to say good-bye for now. Mom, comforted herself and the staff, that she will be back in April and that she will visit periodically in the next few weeks. Kind of strange that she and they are looking forward for her to return for a weeks visit in April.
Mom has one heck of a social life when on the Oncology unit. All day and late into the night she has a lot of staff visiting. They seek Mom out for her advice, suggestions and her opinions on many topics. They also come in to share jokes and to simply hang out with her. This she surely does not get when in her own home. I see I am up for a challenge to keep her so entertained when at home, wink.
Today, Mom, Poppie and I are settling back into being home together. Yes, Mom immediately when walking over the thresh hold into her home, began to assess and then detail the kitchen, put her things away, and straighten up where ever she saw needed her touch. It really is very cute how she springs right back into her routine. Well, at a much slower pace of course. Non the less, Mom soon accomplished getting "her" house back into show house standard once again.
More to follow as the days pass.
We trust this blog post finds you feeling the best you can feel.
Lots of Love and warmth your way,
Karen
close friends and exchanged numbers.
Friday and Saturday, Dawn, her husband and all of us never drew the room divider. The seating arrangement in their "dorm room" was kept in a large half moon. Yup, it was a party in there. The staff periodically came into the room to see what all the chatter and laughter was all about. Many of the staff simply felt left out. The only thing missing was the pizza delivery guy showing up.
One Nurse came in to flush Mom's Hickman, test her neurological and brain function status and administer her next chemo treatment. Mom had gotten her Nurse, Ruben, to play "patty-cake" with her to ensure her coordination was excellent. Well, it became such a competition of speed that the other floor staff came by to see what the noise was all about. They were in utter shock that Mom had gotten the head Nurse, whom is pretty quiet and shy, to play with her and laugh uncontrollably. It was so cute to watch. It really is wonderful how Mom is able to create a safe space for so many others let their inner child out and enjoy.
Early this morning at 5am, Mom received her last of the 6 Chemo treatments. Mom is in very good spirits and prays she has no symptoms other than fatigue as her numbers are expected to begin dropping again. Mom is doing very well, despite that this Chemo treatment is a higher dosage than the previous month. Since Mom's numbers will soon be dropping, tomorrow she is back on her meds for anti-viral, anti-fungal, and many more. Tomorrow, Mom will begin her routine of going to the hospital every day for treatment and observation. She will have her Hickman flushed, blood drawn, all vitals checked, and will receive, if needed an IV to support her system where ever she is low in.
Mom, Poppie and I just returned home. Yup, Mom was discharged today. The staff, as well as Mom, were very sad to say good-bye for now. Mom, comforted herself and the staff, that she will be back in April and that she will visit periodically in the next few weeks. Kind of strange that she and they are looking forward for her to return for a weeks visit in April.
Mom has one heck of a social life when on the Oncology unit. All day and late into the night she has a lot of staff visiting. They seek Mom out for her advice, suggestions and her opinions on many topics. They also come in to share jokes and to simply hang out with her. This she surely does not get when in her own home. I see I am up for a challenge to keep her so entertained when at home, wink.
Today, Mom, Poppie and I are settling back into being home together. Yes, Mom immediately when walking over the thresh hold into her home, began to assess and then detail the kitchen, put her things away, and straighten up where ever she saw needed her touch. It really is very cute how she springs right back into her routine. Well, at a much slower pace of course. Non the less, Mom soon accomplished getting "her" house back into show house standard once again.
More to follow as the days pass.
We trust this blog post finds you feeling the best you can feel.
Lots of Love and warmth your way,
Karen
Tuesday, March 2, 2010
Round 4 Chemo Began Today
The past two weeks has been a melting pot of emotions for Mom. This morning and especially while driving to the hosp Mom felt a deep sadness, frustration and anger about this "new lifestyle" she has been dealt. Mom, once on the Oncology unit soon began to forget why she was actually there. She and Poppie were greeted with many smiles and hugs by all the staff.
Poppie and Mom quickly shifted gears and got pulled in with all the warmth and love from their newest members of our family. Yes,the Oncology unit staff have adopted them as Mom and Poppie have adopted the staff. It is unbelievable that Mom has known the Oncology team since the end of October 2009. Time is flying by.
Brian arrived around dinner time. He stayed for several hours. Poppie was with Mom from admittance, 1:00pm and left for home around 7pm. I spoke with Mom around 9pm her time. She sounded relaxed and settled in. She is emotionally strong for this next Chemo induction.
More to come tomorrow.
All our appreciation for your love and support,
Karen
Poppie and Mom quickly shifted gears and got pulled in with all the warmth and love from their newest members of our family. Yes,the Oncology unit staff have adopted them as Mom and Poppie have adopted the staff. It is unbelievable that Mom has known the Oncology team since the end of October 2009. Time is flying by.
Brian arrived around dinner time. He stayed for several hours. Poppie was with Mom from admittance, 1:00pm and left for home around 7pm. I spoke with Mom around 9pm her time. She sounded relaxed and settled in. She is emotionally strong for this next Chemo induction.
More to come tomorrow.
All our appreciation for your love and support,
Karen
Tuesday, February 23, 2010
Round 4 Chemo Next Tuesday
Mom's spirit and fighting focus continues. She, like our Olympic Athletes, will not quit until they obtain becoming THE Worlds BEST! In Mom's case maintaining to break through the unbelievable, continue to be an ANOMALY and to enter a 100 percent REMISSION will be her Gold Medal!
Mom had great news from her Eye Dr. this week. Her eyes show NO changes! This is fantastic, especially with the strength of Chemo she received and 3 rounds since the end of October 2009. Mom continues to maintain on her own to fight off infections. She is in no discomfort. She only fights the quick onset of fatigue. This alone frustrates her greatly. Poppie is being a trooper to keep her distracted though. They get out and take drives, he prepares variety of meals, and they hang out and watch movies and the Olympics together. It is wonderful they have each other going on 57 years.
Mom, impatiently is awaiting her admission for round 4 Chemo next Tuesday, March 2nd. She will be admitted for another Consolidation procedure. She is fighting to be positive. She, Poppie and I decided this treatment I will fly back to Rochester for. I leave on March 4th. Yup, the dynamic trio will be back together in person soon. We need to see each other at this point.
Have a great week and I will be posting on March 2nd.
Hugs and Love to all,
Karen
Mom had great news from her Eye Dr. this week. Her eyes show NO changes! This is fantastic, especially with the strength of Chemo she received and 3 rounds since the end of October 2009. Mom continues to maintain on her own to fight off infections. She is in no discomfort. She only fights the quick onset of fatigue. This alone frustrates her greatly. Poppie is being a trooper to keep her distracted though. They get out and take drives, he prepares variety of meals, and they hang out and watch movies and the Olympics together. It is wonderful they have each other going on 57 years.
Mom, impatiently is awaiting her admission for round 4 Chemo next Tuesday, March 2nd. She will be admitted for another Consolidation procedure. She is fighting to be positive. She, Poppie and I decided this treatment I will fly back to Rochester for. I leave on March 4th. Yup, the dynamic trio will be back together in person soon. We need to see each other at this point.
Have a great week and I will be posting on March 2nd.
Hugs and Love to all,
Karen
Monday, February 15, 2010
Gearing Up for Round 4 of Chemo
Mom met with her Oncologist this morning. Unfortunately, Mom is not in remission yet. Her doctor encouraged Mom and Poppie not to be concerned. Mom's body is producing enough defenses without needing additional support from her medication. Mom's numbers are presently high enough to schedule her next chemo round. This chemo will be a bit stronger than her last treatment. Mom's response was "one way I am glad so that all the cancer cells hopefully will die but on the other hand, I hope I don’t have a reaction to the new level of chemo." The unknown is so difficult for her. She so wants to "grab the bull by the horn" and get into remission.
Mom will be admitted into the hospital on March 2nd. This, again is called a consolidation treatment. Mom will receive 6 Chemo treatments over a 6 day period. If Mom does not show any signs of infections nor unusual symptoms she again becomes a 7 day a week out patient for the following 24 days.
Mom is very pleased at this point. She is off all her medications as of today. She no longer has to coordinate her daily schedule to take her Cipro 500 mg tab (antibiotic bacterial) nor her Valtrex 500 mg (anti viral) nor her Fluconazole 200mg (anti fungal). The most exciting aspect is that Mom does not need to go into the hospital daily for her Neupogen injections. For the next two weeks, Mom will go to the hospital on Mondays and Thursdays to have her blood drawn and check her Hickman.
I will be flying back to Rochester the first week of March. The distance continues to be a challenge not being able to see, touch and spoil Mom and Poppie through this experience. We have decided monthly visits for about 10 days will be our plan at this point.
Again, thank you for all your support, love, and prayers,
Karen
Mom will be admitted into the hospital on March 2nd. This, again is called a consolidation treatment. Mom will receive 6 Chemo treatments over a 6 day period. If Mom does not show any signs of infections nor unusual symptoms she again becomes a 7 day a week out patient for the following 24 days.
Mom is very pleased at this point. She is off all her medications as of today. She no longer has to coordinate her daily schedule to take her Cipro 500 mg tab (antibiotic bacterial) nor her Valtrex 500 mg (anti viral) nor her Fluconazole 200mg (anti fungal). The most exciting aspect is that Mom does not need to go into the hospital daily for her Neupogen injections. For the next two weeks, Mom will go to the hospital on Mondays and Thursdays to have her blood drawn and check her Hickman.
I will be flying back to Rochester the first week of March. The distance continues to be a challenge not being able to see, touch and spoil Mom and Poppie through this experience. We have decided monthly visits for about 10 days will be our plan at this point.
Again, thank you for all your support, love, and prayers,
Karen
Saturday, February 13, 2010
Mom focuses on her new routine
Hello and sorry for such a long break with the blog. Mom the past several weeks has been fighting to get into remission. She is in a personal battle staying positive with her new regime in life. Poppie has been very supportive and by her side daily. Brian and Mike speak to her daily and throw a visit or more in weekly. Kimmy, Shayna Punum and I continue to speak daily and are so thankful for having Skype.
As you know, Mom is an outpatient at this point. Mom goes in daily for her Neupogen injections,several times a week has her blood drawn, and receives IV injections when needed. Unfortunately, Mom's body is not producing enough red blood cells nor platelets on its own yet. Mom has had to have several IV's of blood and platelets the past few weeks. This past week Mom received both IV's Tuesday and Friday. Poppie goes with Mom every day to the hospital and sits with her throughout her entire treatment and then her appointments with her Oncologist. They spend several hours watching TV, reading, eating snacks with drink options (Poppies favorite part)and dozing off together. At least they still have each other to lean on.
This coming week we will be told when Mom's next Chemo treatment will be. Mom will be admitted into the hospital as this previous one for 6 -7 days. Then, she is to repeat the plan as this treatment. Returning to the hospital daily for her Neupogen, blood tests and then IV's when needed.
I will keep you posted as we hear of her next adventure with her AML. Do keep sending strong prayers. Yesterday, Mom entered the phase that her numbers are the lowest and she is most vulnerable for infections. Fingers crossed that she sails through the next 10 days with no symptoms.
Lots of hugs to you. I will post again after next weeks news and or if something comes up.
Karen
As you know, Mom is an outpatient at this point. Mom goes in daily for her Neupogen injections,several times a week has her blood drawn, and receives IV injections when needed. Unfortunately, Mom's body is not producing enough red blood cells nor platelets on its own yet. Mom has had to have several IV's of blood and platelets the past few weeks. This past week Mom received both IV's Tuesday and Friday. Poppie goes with Mom every day to the hospital and sits with her throughout her entire treatment and then her appointments with her Oncologist. They spend several hours watching TV, reading, eating snacks with drink options (Poppies favorite part)and dozing off together. At least they still have each other to lean on.
This coming week we will be told when Mom's next Chemo treatment will be. Mom will be admitted into the hospital as this previous one for 6 -7 days. Then, she is to repeat the plan as this treatment. Returning to the hospital daily for her Neupogen, blood tests and then IV's when needed.
I will keep you posted as we hear of her next adventure with her AML. Do keep sending strong prayers. Yesterday, Mom entered the phase that her numbers are the lowest and she is most vulnerable for infections. Fingers crossed that she sails through the next 10 days with no symptoms.
Lots of hugs to you. I will post again after next weeks news and or if something comes up.
Karen
Thursday, February 4, 2010
Home, Happy and Re-Grouping
Yesterday was a bit stressful pre-discharge. Mom found another skin bump located on her lymph below her ear. Her doctors reassured her not to worry and they would check it on Friday when she comes in for her Neupogen injection,various other blood drawings and her Hickman flushing. This is protocol to wait at least 24 hours to see if changes occur. If the area in question shows improvements the patient does not need any tests.
Mom and Poppie got home late afternoon yesterday. To Mom's surprise the house looked very good. Yup, Poppie is stepping up to the plate to keep the house organized and clean. The laundry was piled high waiting for Mom so "she should have something to do when she got home," wink. Mom dove right in and got all her medications in order and then settled in and watched a movie with Poppie.
Mom today is doing pretty well. Emotionally, this NEW lifestyle is bumming her out. It is very challenging for her to stay positive and play the "waiting" game. She and I spend our time over the phone talking about the positive things going on around her, helping her feel the empowerment that she does hold in her health care, and the gratefulness for the support from so many people who love and respect her.
Tomorrow starts her new journey to being an outpatient EVERYDAY. Yes, this will be for the next several weeks. She is not happy about that being her purpose to awaken everyday. I shared with her to try to think of it as having to go to work everyday, but at least the hours are less than a full day of work. It is tricky to keep her energy and mental strength focused on being in control and welcoming her new lifestyle. She knows that I focus daily with all my skeletal and Crohn's and Colitis hick-ups that present itself. I learned the key is to weave "the kick-ups" into what I want to do each day. Yes, some days are easier than others, but I am in control. It does all, "suck" but everything is manageable if pain is not involved. She too can do this!
I will keep you posted if anything new unfolds. Next Friday, February 12th, Mom has a follow up appointment with her Oncologist to see what the next plan will be. I will post again after that visit. Remember, NO posting means Mom is doing well and there are no new developments to be concerned about.
It is difficult not being home with Mom and Poppie through this entirety. I and or Kimmy will be looking to visit Rochester at the end of February if all goes well on both our ends. Mom, the past several phone calls, has sounded a bit weaker emotionally, frustrated and angry. When I was home this was sneaking up on her but she was able to shake it quicker with me around. Kimmy and I feel she could use a boost of my pain in the tuchas optimism and outlook on enjoying everyday for all it offers.
THANK YOU, as always, for your unlimited support and love,
Karen
Mom and Poppie got home late afternoon yesterday. To Mom's surprise the house looked very good. Yup, Poppie is stepping up to the plate to keep the house organized and clean. The laundry was piled high waiting for Mom so "she should have something to do when she got home," wink. Mom dove right in and got all her medications in order and then settled in and watched a movie with Poppie.
Mom today is doing pretty well. Emotionally, this NEW lifestyle is bumming her out. It is very challenging for her to stay positive and play the "waiting" game. She and I spend our time over the phone talking about the positive things going on around her, helping her feel the empowerment that she does hold in her health care, and the gratefulness for the support from so many people who love and respect her.
Tomorrow starts her new journey to being an outpatient EVERYDAY. Yes, this will be for the next several weeks. She is not happy about that being her purpose to awaken everyday. I shared with her to try to think of it as having to go to work everyday, but at least the hours are less than a full day of work. It is tricky to keep her energy and mental strength focused on being in control and welcoming her new lifestyle. She knows that I focus daily with all my skeletal and Crohn's and Colitis hick-ups that present itself. I learned the key is to weave "the kick-ups" into what I want to do each day. Yes, some days are easier than others, but I am in control. It does all, "suck" but everything is manageable if pain is not involved. She too can do this!
I will keep you posted if anything new unfolds. Next Friday, February 12th, Mom has a follow up appointment with her Oncologist to see what the next plan will be. I will post again after that visit. Remember, NO posting means Mom is doing well and there are no new developments to be concerned about.
It is difficult not being home with Mom and Poppie through this entirety. I and or Kimmy will be looking to visit Rochester at the end of February if all goes well on both our ends. Mom, the past several phone calls, has sounded a bit weaker emotionally, frustrated and angry. When I was home this was sneaking up on her but she was able to shake it quicker with me around. Kimmy and I feel she could use a boost of my pain in the tuchas optimism and outlook on enjoying everyday for all it offers.
THANK YOU, as always, for your unlimited support and love,
Karen
Tuesday, February 2, 2010
Laughter and Smiles Continue
Mom has one more day of consolidation. She is expected to be discharged from the hospital Wednesday late afternoon. Mom will follow her treatments 7 days a week as an outpatient for the following 3 weeks. Mom is responding well to the Chemo treatment. She continues to happily surprise her medical team with her progress. She continues to be asystemmatic and maintains good spirits.
Despite all that is being presented to Mom, she continues to engage with others, stimulates their zest for living and maintains a happy heart. Momma Ruthie continues to focus on being a strong "Warrior" and control the "worrier" side of her personality.
This newest found way of thinking has brought an abundance of others to be by Momma Ruthie's side. It is wonderful to see the love, support and caring from so many friends, family and professional relationships pouring in since Mom's diagnosis. She is going on with AML a little over three months now. Mom has already touched so many hearts beyond her immediate circle.
Moms relationships with the Oncology Team of Doctors, Nurses, Technicians, Physical Therapist, Hospitality Services "Food" to Housekeeping have all grown to a type of friendship at Strong Memorial Hospital. Poppie is now bringing in cards and letters written to Mom from various hospital staff. The message is always expressing how much Mom has touched each individual and they each start with Mom or Grandma. Yes, Momma Ruthie continues to inspire and bring a lot of love and affection to others in the mist of fighting for herself. Our Energizer Momma Ruthie is still doing what she is meant to be doing. I am not surprised, wink.
Again, thank you for all your prayers, love and support. It has been extremely appreciated and continues to be.
Hugs and good health to you,
Karen
Despite all that is being presented to Mom, she continues to engage with others, stimulates their zest for living and maintains a happy heart. Momma Ruthie continues to focus on being a strong "Warrior" and control the "worrier" side of her personality.
This newest found way of thinking has brought an abundance of others to be by Momma Ruthie's side. It is wonderful to see the love, support and caring from so many friends, family and professional relationships pouring in since Mom's diagnosis. She is going on with AML a little over three months now. Mom has already touched so many hearts beyond her immediate circle.
Moms relationships with the Oncology Team of Doctors, Nurses, Technicians, Physical Therapist, Hospitality Services "Food" to Housekeeping have all grown to a type of friendship at Strong Memorial Hospital. Poppie is now bringing in cards and letters written to Mom from various hospital staff. The message is always expressing how much Mom has touched each individual and they each start with Mom or Grandma. Yes, Momma Ruthie continues to inspire and bring a lot of love and affection to others in the mist of fighting for herself. Our Energizer Momma Ruthie is still doing what she is meant to be doing. I am not surprised, wink.
Again, thank you for all your prayers, love and support. It has been extremely appreciated and continues to be.
Hugs and good health to you,
Karen
Sunday, January 31, 2010
Mom is anxious to return home
Mom is doing well. She is a asymptomatic at this point with her Chemo treatments. Her Doctors continue to be impressed by Mom's physical, emotional and mental strength at this point. Mom's energy, attitude and humor is all present and shared with all.
Mom, though she is sharing her hospital room, is enjoying having the extra company. Her roommate has a lot of company throughout the day and they visit with Mom as well. It was funny to hear Mom say they are a loud family. I think she has forgotten her roots. I know I have not, wink. Anyway, Brian and Poppie continue to visit Mom in the evenings for several hours. Mike and Cindy drive into the city to see Mom when possible. Mike does speak with Mom daily to check in and chat about "life." Mom, now has mastered using Skype on the laptop and calls every few hours to check in or we call her.
Overall, Mom is fighting hard in many ways to resume her life as it presents itself. She has allowed herself to see, feel and experience what ever presents itself to her with a strong mind. I am so very proud of her. She is a true warrior and now a bit less of a worrier.
Mom will be attending a dinner party with Kimmy and I in San Diego this evening. Yes, I now bring my laptop everywhere so Mom is able to share and vicariously get out and about.
Hugs and Love,
Karen
Mom, though she is sharing her hospital room, is enjoying having the extra company. Her roommate has a lot of company throughout the day and they visit with Mom as well. It was funny to hear Mom say they are a loud family. I think she has forgotten her roots. I know I have not, wink. Anyway, Brian and Poppie continue to visit Mom in the evenings for several hours. Mike and Cindy drive into the city to see Mom when possible. Mike does speak with Mom daily to check in and chat about "life." Mom, now has mastered using Skype on the laptop and calls every few hours to check in or we call her.
Overall, Mom is fighting hard in many ways to resume her life as it presents itself. She has allowed herself to see, feel and experience what ever presents itself to her with a strong mind. I am so very proud of her. She is a true warrior and now a bit less of a worrier.
Mom will be attending a dinner party with Kimmy and I in San Diego this evening. Yes, I now bring my laptop everywhere so Mom is able to share and vicariously get out and about.
Hugs and Love,
Karen
Saturday, January 30, 2010
Trying to Stay Positive
Mom was admitted into Strong Memorial Hospital yesterday for her 3rd round of Chemo treatment. Yes, I am in San Diego attending to my own medical, personal and professional responsibilities. It is very difficult for me not to be at Mom's side. She and I refer to my absence as being bitter sweet. If I could only clone myself everyone would be much happier.
Mom is being strong and is trying to maintain a positive attitude. She has accepted that fighting to get her AML into remission and then keeping it there is simply going to be her life here on in. Yes, Mom has windows of anger attached with deep sadness, but she no longer stays in that mental space very long. She and I speak in the morning, the afternoon and then the evening to ensure her emotional calmness. It also helps me to feel I am still able to support her though from 3000 miles away.
Yesterday, Brian and Poppie had visited Mom for several hours in the evening. Brian, brought in his video cam on his laptop so Mom, Kimmy and I are able to see and talk as much as possible. Since the end of October, that has been how we kept in touch with Kimmy when she was back in SD. Mom really enjoys watching Shayna Punum playing in our back yard, seeing the San Diego sunshine and our tropical backyard theme with palm trees, bamboo walls, water falls etc.
This morning Mom received her second round of Chemo IV. She is doing well. She is not experiencing any adverse side effects. She is being check several times a day by her nurses and visits by her Oncology team.
Mom enjoyed this evening with us on Skype. Mom was so excited to have the Oncology Team and Staff say hello on Skype. It really made Kimmy and I feel as if we were there with Mom in the hospital room. It is so nice to see the person I am speaking with. Mom was pretty tired by 8:30pm East Coast time. We all said good night and we would chat on Sunday.
Three cheers to Momma Ruthie's strength and desire to overcome this horrible disease.
All my warmth and love,
Karen
Mom is being strong and is trying to maintain a positive attitude. She has accepted that fighting to get her AML into remission and then keeping it there is simply going to be her life here on in. Yes, Mom has windows of anger attached with deep sadness, but she no longer stays in that mental space very long. She and I speak in the morning, the afternoon and then the evening to ensure her emotional calmness. It also helps me to feel I am still able to support her though from 3000 miles away.
Yesterday, Brian and Poppie had visited Mom for several hours in the evening. Brian, brought in his video cam on his laptop so Mom, Kimmy and I are able to see and talk as much as possible. Since the end of October, that has been how we kept in touch with Kimmy when she was back in SD. Mom really enjoys watching Shayna Punum playing in our back yard, seeing the San Diego sunshine and our tropical backyard theme with palm trees, bamboo walls, water falls etc.
This morning Mom received her second round of Chemo IV. She is doing well. She is not experiencing any adverse side effects. She is being check several times a day by her nurses and visits by her Oncology team.
Mom enjoyed this evening with us on Skype. Mom was so excited to have the Oncology Team and Staff say hello on Skype. It really made Kimmy and I feel as if we were there with Mom in the hospital room. It is so nice to see the person I am speaking with. Mom was pretty tired by 8:30pm East Coast time. We all said good night and we would chat on Sunday.
Three cheers to Momma Ruthie's strength and desire to overcome this horrible disease.
All my warmth and love,
Karen
Tuesday, January 26, 2010
Bone Biopsy Results
Mom's positive thinking is paying off. This afternoon, Mom and Poppie waited with anticipation for her Oncologist to share last weeks bone biopsy results. Mom continues to put smiles on her Doctors faces. Her results are showing that her body is fighting hard. She is at 4% range with blasts (white cells). Anything under 5% is good. This means Mom has a good chance to get into remission after her 3rd round of Chemo.
This Friday or Monday Mom is expected to be admitted into the hospital for what is called a Consolidation Period of Chemo treatment. This is for 6 days of Chemo and then the patient is sent home. Yes, if the patient develops a fever or other complicating outcomes, the patient will be re-admitted into the hospital immediately for treatment and observation.
Here is the process of Consolidation. After the 6 days of receiving Chemo the patient is sent home. Monday and Thursday's the patient has an In service Nurse drawing blood and checking all vitals and present condition of the patient. Tuesday and Friday's the patient goes back to the hospital for any IV transfusions that may be needed according to the previous day results.
I will add more as the specific days unfold.
Today is a new path for more good news to follow as her treatment begins. Keep your positive thinking, healing energy, and prayers flowing. I know, Mom will be enjoying life to its fullest, traveling and enjoying with friends and family in all settings in months to come.
I will post again when Mom is admitted back into the hospital.
All Our Warmth and Love,
Momma Ruthie, Poppie, Mike, Cindy, Brian, Reece, Kimmy and I
This Friday or Monday Mom is expected to be admitted into the hospital for what is called a Consolidation Period of Chemo treatment. This is for 6 days of Chemo and then the patient is sent home. Yes, if the patient develops a fever or other complicating outcomes, the patient will be re-admitted into the hospital immediately for treatment and observation.
Here is the process of Consolidation. After the 6 days of receiving Chemo the patient is sent home. Monday and Thursday's the patient has an In service Nurse drawing blood and checking all vitals and present condition of the patient. Tuesday and Friday's the patient goes back to the hospital for any IV transfusions that may be needed according to the previous day results.
I will add more as the specific days unfold.
Today is a new path for more good news to follow as her treatment begins. Keep your positive thinking, healing energy, and prayers flowing. I know, Mom will be enjoying life to its fullest, traveling and enjoying with friends and family in all settings in months to come.
I will post again when Mom is admitted back into the hospital.
All Our Warmth and Love,
Momma Ruthie, Poppie, Mike, Cindy, Brian, Reece, Kimmy and I
Friday, January 22, 2010
Mom's finding her way
Mom and I stayed up together on Wednsday night till our eyes simply had to close. We both felt me leaving was "bitter sweet." Though I am able to return at any time, she wants me to focus on my health, family, profession and personal needs. I agree, but it is so difficult to leave. Saying "See you later" was extremely difficult for Mom and I yesterday. She has a lot of wonderful support around her. She simply needs to reach out and ask for it. Example, massaging her, hanging out to watch a movie, doing her exercises with her, chatting about the bizarre topics, playing games, sharing and enjoying various foods, and much more.
Mom is doing pretty well. She is anxious to receive the results from the previous Bone Bipopsy. She is also having trepidation regarding her 3rd round of Chemo. She so badly wants this to be the last treatment that throws her into REMISSION! She has so many interests and traveling which she wants to do.
I will write in the blog after we are informed about her Bone Biopsy results next Tuesday, January 26th. Until then, thumbs up to Mom for beinga able to handel the strongest Chemo Treatment. Yes, this a treatment that is often given to no one older than 55 years old and is the last prior to receiving a bone marrow transplant. Unfortunelty, a bone marrow transplant Dr.'s informed us they still do not perform on individuals older than 60.
Well, have a beautiful weekend.
All my Love and gratitude for all your support,
Karen
Mom is doing pretty well. She is anxious to receive the results from the previous Bone Bipopsy. She is also having trepidation regarding her 3rd round of Chemo. She so badly wants this to be the last treatment that throws her into REMISSION! She has so many interests and traveling which she wants to do.
I will write in the blog after we are informed about her Bone Biopsy results next Tuesday, January 26th. Until then, thumbs up to Mom for beinga able to handel the strongest Chemo Treatment. Yes, this a treatment that is often given to no one older than 55 years old and is the last prior to receiving a bone marrow transplant. Unfortunelty, a bone marrow transplant Dr.'s informed us they still do not perform on individuals older than 60.
Well, have a beautiful weekend.
All my Love and gratitude for all your support,
Karen
Wednesday, January 20, 2010
Emotionally Feeling Slightly Weakend
Today was a difficult day for Mom to awaken to. She so badly wants to awaken from this terrible dream of being diagnosed with AML. The mental exhaustion for her trying to stay "positive" catches up with her from time to time. I am very proud to share with you how well she is able to snap herself out of her natural desire to be negative and pessimistic. She now is able to gather her thoughts and feelings and redirect her self talk to embrace and control her path towards getting into remission.
Mom was a star today entering the procedure room for her 3rd Bone Biopsy. A few tears of fear of the unknown did creep up and out for a short time. She allowed herself to "feel" and then began to allow the unknown to present itself. Mom was prepared to embrace the new information. She realized the procedures and tests are performed to simply assist her towards and into remission.
Mom's positive thinking brought good news today. Post the Bone Biopsy we were informed the Doctor, for the first time, was able to extract a small amount of marrow, yes that is "liquid." They also took two more bone chips to analyse. Mom, was not in any discomfort post the procedure. She simply was tired and hungry.
As I mentioned yesterday, on January 26th Mom has her follow up appointment with her Oncologist regarding the Bone Biopsy results. January 29th, Mom is re-admitted for another Chemo induction called a consolidation period. We all are confident Mom will respond as well with this Chemo treatment and better as the last.
Tomorrow, I must return back to San Diego to address my medical, professional, and personal responsibilities. If Mom takes a u-turn for the worse, which I know is an extremely slim chance, I and Kimmy will return to Rochester immediately. Yes, leaving Mom's side is extremely difficult for she and I. We decided to try to pull an all nighter. You would think being glued to the hip for over three weeks we would run out of things to talk about or want space from each other. Well, NO! Poppie, Brian, Mike, Cindy, Reece, and our cousins will all be continuing to support Mom as they have since November.
This evening Brian surprised Mom and the rest of us with her favorite Chinese food. We all indulged, enjoyed sharing stories and laughed a lot together. I will continue to share Mom's updates while in San Diego. The information will be through the eyes of Mom and the family. I will miss being on site, in person and being able to hold and care for little Momma Ruthie.
Again, thank you for all your love, warmth, healing energy and prayers.
Lets give another Big Cheer for Mom to SHINE through this 3rd Chemo treatment and enter REMISSION!
All Our Warmth and Love,
Momma Ruthie, Poppie, Mike, Cindy, Brian, Reece, Karen and Kimmy
Karen
Mom was a star today entering the procedure room for her 3rd Bone Biopsy. A few tears of fear of the unknown did creep up and out for a short time. She allowed herself to "feel" and then began to allow the unknown to present itself. Mom was prepared to embrace the new information. She realized the procedures and tests are performed to simply assist her towards and into remission.
Mom's positive thinking brought good news today. Post the Bone Biopsy we were informed the Doctor, for the first time, was able to extract a small amount of marrow, yes that is "liquid." They also took two more bone chips to analyse. Mom, was not in any discomfort post the procedure. She simply was tired and hungry.
As I mentioned yesterday, on January 26th Mom has her follow up appointment with her Oncologist regarding the Bone Biopsy results. January 29th, Mom is re-admitted for another Chemo induction called a consolidation period. We all are confident Mom will respond as well with this Chemo treatment and better as the last.
Tomorrow, I must return back to San Diego to address my medical, professional, and personal responsibilities. If Mom takes a u-turn for the worse, which I know is an extremely slim chance, I and Kimmy will return to Rochester immediately. Yes, leaving Mom's side is extremely difficult for she and I. We decided to try to pull an all nighter. You would think being glued to the hip for over three weeks we would run out of things to talk about or want space from each other. Well, NO! Poppie, Brian, Mike, Cindy, Reece, and our cousins will all be continuing to support Mom as they have since November.
This evening Brian surprised Mom and the rest of us with her favorite Chinese food. We all indulged, enjoyed sharing stories and laughed a lot together. I will continue to share Mom's updates while in San Diego. The information will be through the eyes of Mom and the family. I will miss being on site, in person and being able to hold and care for little Momma Ruthie.
Again, thank you for all your love, warmth, healing energy and prayers.
Lets give another Big Cheer for Mom to SHINE through this 3rd Chemo treatment and enter REMISSION!
All Our Warmth and Love,
Momma Ruthie, Poppie, Mike, Cindy, Brian, Reece, Karen and Kimmy
Karen
Tuesday, January 19, 2010
Mom is still in the game
Mom had her Oncology appointment today. She met with two Oncologists and a Nurse. All three of them expressed how pleased and astonished to how well Mom's body has and is taking the previous 2 Chemo treatments. Mom is not in remission yet. We all know she will be there soon, wink. She is soon to step into round 3 of Chemo treatment.
Mom continues to fight head on with her Leukemia. She does not have any pain, discomforts, fevers, nausea, headaches, nor additional skin outbreaks or lesions. Mom only has to battle fatigue after slight-moderate exertion. Mom continues to focus on Poppie's health and her own exercise regime.
Mom's entire system is holding its own and fighting at this point. Her numbers are good though low in some areas. She is showing that her body is producing all that is needed to fight against the AML. Her blood at this point is not showing any Leukemic cells. Prior to Round 3 of Chemo, Mom must complete the following:
Tomorrow, January 19th, Mom will be heading in for her 3rd Bone Biopsy. This time, she is being sent to Radiology. Here, she will be sedated and not receive a local of Lidocane as in the past two procedures. The Doctor will be using a special machine that will be able to explore and hopefully be able to gather more information. Yes, again we hope Mom's body is able to produce "liquid" to be extracted for testing. We will see.
.
Mom, continues to have her Visiting Nurse weekly to have her blood drawn. On January 26th Mom returns for a follow up regarding her Bone Biopsy with her Oncologist. She will receive the findings on this day. On January 29th Mom begins her 3rd Chemo treatment. Note, the previous two "Inductions of Chemo" were for an expected 30 day stay in the hospital. This induction is referred to as "Consolidation Chemo Treatment." This is for 6 days of Chemo and then the patient is sent home. Yes, if the patient develops a fever or other complicating outcomes, the patient will be re-admitted into the hospital immediately for treatment and observation.
Here is the process of Consolidation. After the 6 days of receiving Chemo the patient is sent home. Monday and Thursday's the patient has an In service Nurse drawing blood and checking all vitals and present condition of the patient. Tuesday and Friday's the patient goes back to the hospital for any IV transfusions that may be needed according to the previous day results.
I will add more as the specific days unfold.
Please continue to send your healing energy towards our Energizer Momma Ruthie.
All our Hugs and Love,
Karen
Mom continues to fight head on with her Leukemia. She does not have any pain, discomforts, fevers, nausea, headaches, nor additional skin outbreaks or lesions. Mom only has to battle fatigue after slight-moderate exertion. Mom continues to focus on Poppie's health and her own exercise regime.
Mom's entire system is holding its own and fighting at this point. Her numbers are good though low in some areas. She is showing that her body is producing all that is needed to fight against the AML. Her blood at this point is not showing any Leukemic cells. Prior to Round 3 of Chemo, Mom must complete the following:
Tomorrow, January 19th, Mom will be heading in for her 3rd Bone Biopsy. This time, she is being sent to Radiology. Here, she will be sedated and not receive a local of Lidocane as in the past two procedures. The Doctor will be using a special machine that will be able to explore and hopefully be able to gather more information. Yes, again we hope Mom's body is able to produce "liquid" to be extracted for testing. We will see.
.
Mom, continues to have her Visiting Nurse weekly to have her blood drawn. On January 26th Mom returns for a follow up regarding her Bone Biopsy with her Oncologist. She will receive the findings on this day. On January 29th Mom begins her 3rd Chemo treatment. Note, the previous two "Inductions of Chemo" were for an expected 30 day stay in the hospital. This induction is referred to as "Consolidation Chemo Treatment." This is for 6 days of Chemo and then the patient is sent home. Yes, if the patient develops a fever or other complicating outcomes, the patient will be re-admitted into the hospital immediately for treatment and observation.
Here is the process of Consolidation. After the 6 days of receiving Chemo the patient is sent home. Monday and Thursday's the patient has an In service Nurse drawing blood and checking all vitals and present condition of the patient. Tuesday and Friday's the patient goes back to the hospital for any IV transfusions that may be needed according to the previous day results.
I will add more as the specific days unfold.
Please continue to send your healing energy towards our Energizer Momma Ruthie.
All our Hugs and Love,
Karen
Monday, January 18, 2010
Tomorrow is the BIG DAY
Mom is anxious regarding meeting with her Oncologist for her appointment tomorrow. She will have more blood drawn and will be given her results from her reports on her present status of health. We will be presented with her next set of options for care.
I will keep you posted in tomorrows blog.
Mom and the rest of us had a wonderful long weekend. The days consisted of taking car trip tours around to see gorgeous sites, we hung out at home, we watched movies, went through family pictures, cooked some creative meals and chatted up a storm. Sunday, Mom and I hung out, played scrabble with Poppie and watched the 4:30pm football game. Yup, Mom smiled ear to ear when the Jests beat the "Choking Chargers." Mom showed great sportsman conduct towards me. Actually, we both we sad the Chargers, once again, BLEW IT! We still had fun together.
Well, please hug yourself from us. We truly appreciate your love and support the past several months.
Momma Ruthie, Poppie, Mike, Cindy, Brian, Reece, Kimmy and I xoxo
I will keep you posted in tomorrows blog.
Mom and the rest of us had a wonderful long weekend. The days consisted of taking car trip tours around to see gorgeous sites, we hung out at home, we watched movies, went through family pictures, cooked some creative meals and chatted up a storm. Sunday, Mom and I hung out, played scrabble with Poppie and watched the 4:30pm football game. Yup, Mom smiled ear to ear when the Jests beat the "Choking Chargers." Mom showed great sportsman conduct towards me. Actually, we both we sad the Chargers, once again, BLEW IT! We still had fun together.
Well, please hug yourself from us. We truly appreciate your love and support the past several months.
Momma Ruthie, Poppie, Mike, Cindy, Brian, Reece, Kimmy and I xoxo
Saturday, January 16, 2010
Mom is feeling "normal"
The past three days Mom has been feeling almost "normal." She is back to herself minus her decreased endurance of energy. She continues to have her playful outlook and desire to engage in anything. We have been watching home videos, exercising, playing with several new wigs, and taking outings in the car.
Today, Mom, Poppie, Brian and I spent the day at Mike and Cindy's place in Naples. Mike and Cindy have a beautiful home set on 25 acres with a gorgeous panoramic view. It was a beautiful day. The weather was in the mid 40's with a light breeze, the sun was shining, the deer where out and all, but I, was happy to see the snow melting. I still would fully enjoy many feet high of fresh snow. Yes, after 20 years in San Diego, I have become a typical West coaster. "Let it Snow, Let it Snow, Let it Snow."
We spent the better part of the morning into the afternoon on Skype with Kimmy and Shayna Punum. Mom, and the rest of us, have great pleasure watching Shayna Punum and Kimmy playing. Overall, Skype seems to decrease the absence of someone in person. The 7000 miles a part is not felt as much being able to view and talk with each other.
Tomorrow Sunday, will be a kick back day. Yes, it is Football Sunday. Poppie will spend the day reading and probably running errands. Reece will be working. Mike and Cindy will be cuddled up watching the games at their place. Brian will be swinging by Mom and Poppies to say hello. Mom and I will be glued to the TV to watch the Chargers and the Jet game. Hmmm, who will win, wink. Go Chargers!
Lots of Hugs and the best health possible,
Karen
Today, Mom, Poppie, Brian and I spent the day at Mike and Cindy's place in Naples. Mike and Cindy have a beautiful home set on 25 acres with a gorgeous panoramic view. It was a beautiful day. The weather was in the mid 40's with a light breeze, the sun was shining, the deer where out and all, but I, was happy to see the snow melting. I still would fully enjoy many feet high of fresh snow. Yes, after 20 years in San Diego, I have become a typical West coaster. "Let it Snow, Let it Snow, Let it Snow."
We spent the better part of the morning into the afternoon on Skype with Kimmy and Shayna Punum. Mom, and the rest of us, have great pleasure watching Shayna Punum and Kimmy playing. Overall, Skype seems to decrease the absence of someone in person. The 7000 miles a part is not felt as much being able to view and talk with each other.
Tomorrow Sunday, will be a kick back day. Yes, it is Football Sunday. Poppie will spend the day reading and probably running errands. Reece will be working. Mike and Cindy will be cuddled up watching the games at their place. Brian will be swinging by Mom and Poppies to say hello. Mom and I will be glued to the TV to watch the Chargers and the Jet game. Hmmm, who will win, wink. Go Chargers!
Lots of Hugs and the best health possible,
Karen
Thursday, January 14, 2010
2nd Day Home and Happy
Mom continues to feel happy and spunky that she is back in her home.
Mom and I spent yesterday morning attending to her hygiene needs. She was in heaven being back in her own shower again. Mom continues to enjoy being being able to take whatever food of choice at any time of the day and night. Mom spent the day finding her rhythm again. She enjoyed roaming around the house making sure all is in its correct place. She, best of all, enjoyed not being interrupted by having to have her vitals taken, to have to take medications, to have to order food, to have housekeeping make noises while she was napping or sleeping.
Yesterday, Mike came in the city for a long visit with Mom. This kicked her day off well. Mom continued to have a great day. Poppie allowed her to do as she wished with him. She told him what he could and could not eat and made sure he relaxed with her. The spent several hours kicked back in bed with together. They both had there feet up on pillows, their feet and legs in their compression stockings, watched movies together and napped on and off together. Mom and I exercised a bit and then cuddled up and watched several other movies into the late night.
This morning, Mom has her visiting Nurse coming over. More to come as the day unfolds. I must run to get Mom ready for her Nurse.
Hugs to all,
Karen
Mom and I spent yesterday morning attending to her hygiene needs. She was in heaven being back in her own shower again. Mom continues to enjoy being being able to take whatever food of choice at any time of the day and night. Mom spent the day finding her rhythm again. She enjoyed roaming around the house making sure all is in its correct place. She, best of all, enjoyed not being interrupted by having to have her vitals taken, to have to take medications, to have to order food, to have housekeeping make noises while she was napping or sleeping.
Yesterday, Mike came in the city for a long visit with Mom. This kicked her day off well. Mom continued to have a great day. Poppie allowed her to do as she wished with him. She told him what he could and could not eat and made sure he relaxed with her. The spent several hours kicked back in bed with together. They both had there feet up on pillows, their feet and legs in their compression stockings, watched movies together and napped on and off together. Mom and I exercised a bit and then cuddled up and watched several other movies into the late night.
This morning, Mom has her visiting Nurse coming over. More to come as the day unfolds. I must run to get Mom ready for her Nurse.
Hugs to all,
Karen
Tuesday, January 12, 2010
Bitter Sweet with Discharge Today
Mom, Poppie and I just got home. She is settling in and resting. Mom has been so excited to get home. Her energy, strength and mental state is outstanding. Her medical status is wonderful. She was discharged without having to fill any prescriptions this time. Her immune system is working strong on its own. Yes, she continues to amaze the medical staff.
It was amazing to see so many Doctors, Nurses, Technicians, Food Service staff came to Mom to say good-bye and good luck. Several of the Nurses and Technicians wanted Mom's number to call and say hello. Many of the staff expressed how much they were going to miss their conversations with her and simply her self motivating outlook on getting into remission. As we were leaving, some of the staff walked us out. It was very heart warming.
Tuesday, January 19th, Mom has an appointment with her primary Oncologist. She will get her blood drawn and receive her new treatment plan. We will be informed when she will receive her next bone biopsy. I will keep you posted as we find out.
Again thank you for all the support. Please continue to send your prayers for Mom to have a good bone biopsy. We trust this biopsy the Doctor is able to collect fluid to test. We also pray she will soon get into remission.
Lots of love and hugs,
Karen
It was amazing to see so many Doctors, Nurses, Technicians, Food Service staff came to Mom to say good-bye and good luck. Several of the Nurses and Technicians wanted Mom's number to call and say hello. Many of the staff expressed how much they were going to miss their conversations with her and simply her self motivating outlook on getting into remission. As we were leaving, some of the staff walked us out. It was very heart warming.
Tuesday, January 19th, Mom has an appointment with her primary Oncologist. She will get her blood drawn and receive her new treatment plan. We will be informed when she will receive her next bone biopsy. I will keep you posted as we find out.
Again thank you for all the support. Please continue to send your prayers for Mom to have a good bone biopsy. We trust this biopsy the Doctor is able to collect fluid to test. We also pray she will soon get into remission.
Lots of love and hugs,
Karen
Monday, January 11, 2010
Marvelous Monday
This morning Mom again surprises her Doctors. Her numbers continue to rise, her energy & endurance continue to improve and she is being discharged tomorrow afternoon. Her discharge Nurse has already put the process in motion.
Mom is no longer on IV antibiotics. Tonight she will receive her last injection of Neupogen. Her "bumps" have decreased in size, color and in tenderness. She has not had a fever for 48 hours.
Mom and her staff have permanent smiles and exude uncontrollable excitement for her being able to return home. Poppie and I brought in two big barrels of different snacks for the staff. This is Mom's little way of expressing her warmest thank you for everyone taking wonderful care of her.
Mom and I spent the afternoon chatting, what's new, taking short walks around the Oncology floor, visiting with all the staff and watching DVD movies on my laptop. Today was her first day she felt able to focus and was fully relaxed.
This evening, Brian, Poppie and I shared in celebrating Mom's "Last Supper" with her in the hospital. We all spent several hours talking about various topics, taking walks, and yes talking about planning a Panama Canal Cruise. At least gathering information so when she enters remission we can head out ASAP. This has been a dream cruise they have spoken about for years.
Mom was fading and we took off for home around 8:30pm. We all want a good night sleep for the big day tomorrow. Poppie and I will be at the hospital around 9am to await the discharge together and speak with her Medical team for the next plan of treatment care.
To all a good night and happy dreams,
Hugs,
Karen
Mom is no longer on IV antibiotics. Tonight she will receive her last injection of Neupogen. Her "bumps" have decreased in size, color and in tenderness. She has not had a fever for 48 hours.
Mom and her staff have permanent smiles and exude uncontrollable excitement for her being able to return home. Poppie and I brought in two big barrels of different snacks for the staff. This is Mom's little way of expressing her warmest thank you for everyone taking wonderful care of her.
Mom and I spent the afternoon chatting, what's new, taking short walks around the Oncology floor, visiting with all the staff and watching DVD movies on my laptop. Today was her first day she felt able to focus and was fully relaxed.
This evening, Brian, Poppie and I shared in celebrating Mom's "Last Supper" with her in the hospital. We all spent several hours talking about various topics, taking walks, and yes talking about planning a Panama Canal Cruise. At least gathering information so when she enters remission we can head out ASAP. This has been a dream cruise they have spoken about for years.
Mom was fading and we took off for home around 8:30pm. We all want a good night sleep for the big day tomorrow. Poppie and I will be at the hospital around 9am to await the discharge together and speak with her Medical team for the next plan of treatment care.
To all a good night and happy dreams,
Hugs,
Karen
Sunday, January 10, 2010
Sunday as it "should be"
This morning Mom received wonderful news. Her cat scans all came back negative. Also, the bumps that had surfaced the past few days began to decrease in size. We will be informed tomorrow if the Doctors want to follow up with any further tests regarding to the bumps. Mom received several IV's of antibiotics, an IV of blood. This evening she had her Neupogen Injection and lots of attention from all the staff. It is wonderful to see so many of the staff caring for Mom as their own Mom or Gramma.
All day, Mom was in a good mood though she exhibited limited energy. She had a strong appetite for all three meals. Mom walked several times in the day with me. Each walk was only a few minutes in result of being winded quickly. It was adorable to see Mom and Poppie walk around the Nurses station holding hands this evening. Poppie was as red as young man on his first date. It was so cute to hear the staff comment with endearing statements and see the beaming smiles as Mom and Poppie continued to circle around the station.
Mom started to doze on and off starting around 7:30pm. Brian, Poppie and I gave Mom a kiss and said we would see her tomorrow. Mom quickly grabbed her face mask, wrapped her shawl around herself and walked the three of us down the hallway towards the elevators. This is a routine for Mom when we leave and she is feeling up to it.
Well, we all pray that tomorrow brings only good news and Mom continues to gain her strength.
Sleep well,
Karen
All day, Mom was in a good mood though she exhibited limited energy. She had a strong appetite for all three meals. Mom walked several times in the day with me. Each walk was only a few minutes in result of being winded quickly. It was adorable to see Mom and Poppie walk around the Nurses station holding hands this evening. Poppie was as red as young man on his first date. It was so cute to hear the staff comment with endearing statements and see the beaming smiles as Mom and Poppie continued to circle around the station.
Mom started to doze on and off starting around 7:30pm. Brian, Poppie and I gave Mom a kiss and said we would see her tomorrow. Mom quickly grabbed her face mask, wrapped her shawl around herself and walked the three of us down the hallway towards the elevators. This is a routine for Mom when we leave and she is feeling up to it.
Well, we all pray that tomorrow brings only good news and Mom continues to gain her strength.
Sleep well,
Karen
Saturday, January 9, 2010
Roller Coaster of Emotions
This morning Mom awoke with pain under her chin and in her right calf. She explored her body and found a bump on right calf. She noticed with palpation and weight bearing she experiences pain and tenderness. She then explored her body and noticed a reddish bump on her left. She shared her new findings with her Nurse. He immediately contacted her Dr. and a series of tests where requested to be done this morning.
She had more blood drawn, she had a cat scan done (this included a contrast dye and a scan to see from above heart, chin, throat, sinuses, forehead, and crown of her head. Monday she will receive and ultrasound for her right calf.
This afternoon, Mom received an IV of fluids. Her heart rate was low and she was dehydrated from the past 72 hours of fever. She is in better spirits and actually walked a good 5 minutes. Her Dr.'s are not surprised she needed the fluid(antibiotic and then sodium chloride). They are concerned with the new findings, hence the tests being ordered.
Yes, today Mom is emotionally trying to gather herself and be in the present and wait for results. It is challenging to hurry up for tests and then wait. A positive today is that Mom slept through most of the night, her appetite is back and food tastes good. This alone is making her smile.
Unfortunately, we found another unknown bump with redness on her upper side of the thigh that looks like the left hip from this morning. She also is showing more unknown red spots on her legs. All is being watched closely. The Doctor at this point, gave Mom a complete body check. Nothing else was found on Mom, which relieved her.
Mom received her Neupogen injection and another IV of anti-biotic this evening. i gave Mom her nightly foot and leg massage. She seems to unwind and fall into a light sleep when I give her this. Poppie, Brian and I left Mom around 8:45pm tonight feeling relaxed emotionally and physically. She was actually ready to fall into bed and sleep.
She is looking forward to feeling much better tomorrow, getting more walking in and have no NEW surprises.
Lots of good health and warmth to you,
Karen
She had more blood drawn, she had a cat scan done (this included a contrast dye and a scan to see from above heart, chin, throat, sinuses, forehead, and crown of her head. Monday she will receive and ultrasound for her right calf.
This afternoon, Mom received an IV of fluids. Her heart rate was low and she was dehydrated from the past 72 hours of fever. She is in better spirits and actually walked a good 5 minutes. Her Dr.'s are not surprised she needed the fluid(antibiotic and then sodium chloride). They are concerned with the new findings, hence the tests being ordered.
Yes, today Mom is emotionally trying to gather herself and be in the present and wait for results. It is challenging to hurry up for tests and then wait. A positive today is that Mom slept through most of the night, her appetite is back and food tastes good. This alone is making her smile.
Unfortunately, we found another unknown bump with redness on her upper side of the thigh that looks like the left hip from this morning. She also is showing more unknown red spots on her legs. All is being watched closely. The Doctor at this point, gave Mom a complete body check. Nothing else was found on Mom, which relieved her.
Mom received her Neupogen injection and another IV of anti-biotic this evening. i gave Mom her nightly foot and leg massage. She seems to unwind and fall into a light sleep when I give her this. Poppie, Brian and I left Mom around 8:45pm tonight feeling relaxed emotionally and physically. She was actually ready to fall into bed and sleep.
She is looking forward to feeling much better tomorrow, getting more walking in and have no NEW surprises.
Lots of good health and warmth to you,
Karen
Friday, January 8, 2010
Day 17 and feeling exhausted
Mom at 4:30am awoke soaking with perspiration. Her fever had broke. She continues to receive an IV of antibiotics. She waits to hear about the results from the cultures taken. Mom did not need any transfusions today.
Mom has eaten very little for breakfast and lunch. She has not had the strength to walk today. She has been dozing on and off since the morning. Unfortunately, Mom has had a low grade fever since the later part of the morning.
This afternoon, Mike was able to have a nice long visit with Mom. Yes, this perked her right up. Poppie also has had a wonderful day sharing naps with Mom into the evening. Brian, as every night, showed up around 5:30pm for a nice visit. Mom, Poppie and I continue to be amazed with all the stories Brian has to share. Yes,they are his life stories. So many them are simply too funny. I love seeing Mom and Poppie have tears in their eyes from laughing.
Mom had a fever way into the evening. The Nurses took additional blood to culture, Mom had X-Rays of her chest, and then the Nurses settled Mom in for the night with another IV of antibiotics. I gave Mom another foot and leg massage. She always seems to doze off into a relaxing sleep. Shortly after, Brian, Poppie and I left so Mom can sleep and rest.
Have a beautiful weekend,
Karen
Mom has eaten very little for breakfast and lunch. She has not had the strength to walk today. She has been dozing on and off since the morning. Unfortunately, Mom has had a low grade fever since the later part of the morning.
This afternoon, Mike was able to have a nice long visit with Mom. Yes, this perked her right up. Poppie also has had a wonderful day sharing naps with Mom into the evening. Brian, as every night, showed up around 5:30pm for a nice visit. Mom, Poppie and I continue to be amazed with all the stories Brian has to share. Yes,they are his life stories. So many them are simply too funny. I love seeing Mom and Poppie have tears in their eyes from laughing.
Mom had a fever way into the evening. The Nurses took additional blood to culture, Mom had X-Rays of her chest, and then the Nurses settled Mom in for the night with another IV of antibiotics. I gave Mom another foot and leg massage. She always seems to doze off into a relaxing sleep. Shortly after, Brian, Poppie and I left so Mom can sleep and rest.
Have a beautiful weekend,
Karen
Thursday, January 7, 2010
Day 16 Not such a good day
Mom around 1:30 am had a low grade fever. Throughout the early am she was feeling the onset of mild joint acheiness, mild nausea, sinus pressure, and pretty fatigued. This am around 8:30 am all symptoms remained and increased slightly. She barely ate her breakfast (scrambled eggs, English muffin and tea) and could not get the energy up to walk. I gave Mom another foot and leg massage and she fell right into a deep sleep.
Mom continued to stay in bed and rest till 2:30pm. She was running a 101 fever. She received an IV of red blood cells, an IV of platelets, and and IV of more aggressive antibiotics. Her appetite is not present. I was able to get her to eat a small baked potato, some chicken soup and finish another hot tea and yes, she is also drinking water.
At 3:15pm, Mom and I took a tour around the nurses station. All the staff smiled and were calling Mom's name out with encouragement that she get herself up to walk. It was very heart warming to see and feel the love so many new people in Mom's life hold for her. Mom settled back into bed exhausted. Poppie arrived at 3:30pm. after a few minutes of conversation, Mom and Poppie took a nap until 5:15pm. It was cute to see they still are napping together and snoring in harmony.
Brian had arrived with Mom's favorite Chinese ribs in hand. Poppie and I were beaming and Mom was struggling to find an appetite. Mom with resistance, did take a rib and gobbled it up with a big smile. We all hung out and chatted and shared stories till about 7:30pm. Mom had dozed off again and we three decided to pack our stuff up and head out. We left Mom feeling only a queasy stomach. She, thankfully, had no fever, no bodily aches, no headache and was ready for a good night sleep.
Mom is excited for tomorrow. Though Mike calls everyday to speak with Mom, he has not been able to get to the hospital for a visit. Tomorrow he is able to drive into Rochester and spend time with her. It will be nice for all of us to be together with Mom tomorrow.
Sleep well and pleasant dreams,
Karen
Mom continued to stay in bed and rest till 2:30pm. She was running a 101 fever. She received an IV of red blood cells, an IV of platelets, and and IV of more aggressive antibiotics. Her appetite is not present. I was able to get her to eat a small baked potato, some chicken soup and finish another hot tea and yes, she is also drinking water.
At 3:15pm, Mom and I took a tour around the nurses station. All the staff smiled and were calling Mom's name out with encouragement that she get herself up to walk. It was very heart warming to see and feel the love so many new people in Mom's life hold for her. Mom settled back into bed exhausted. Poppie arrived at 3:30pm. after a few minutes of conversation, Mom and Poppie took a nap until 5:15pm. It was cute to see they still are napping together and snoring in harmony.
Brian had arrived with Mom's favorite Chinese ribs in hand. Poppie and I were beaming and Mom was struggling to find an appetite. Mom with resistance, did take a rib and gobbled it up with a big smile. We all hung out and chatted and shared stories till about 7:30pm. Mom had dozed off again and we three decided to pack our stuff up and head out. We left Mom feeling only a queasy stomach. She, thankfully, had no fever, no bodily aches, no headache and was ready for a good night sleep.
Mom is excited for tomorrow. Though Mike calls everyday to speak with Mom, he has not been able to get to the hospital for a visit. Tomorrow he is able to drive into Rochester and spend time with her. It will be nice for all of us to be together with Mom tomorrow.
Sleep well and pleasant dreams,
Karen
Wednesday, January 6, 2010
Day 15 is a Good Day
Mom continues to be primarily positive emotionally and is focused on doing all she can do to get into remission. Daily, Mom visits her anger and fear of dealing with having AML. She is working hard to "feel" and then allow herself to find comfort in taking one day at a time. She is eating well, walking a mile plus a day, and taking many naps.
Today, Mom did not need any transfusions, she received her second injection of Neupogen (stimulates the production of white blood cells), her numbers show slight increase from yesterday, and she is still receiving antibiotics to prevent infections.
Mom, Brian, Poppie and I enjoyed our visit tremendously tonight. Brian was on a roll tonight sharing stories that made us laugh and had us in amazement. He really has a lot of adventurous things he has done in his lifetime. Mom loved the stories and we all loved getting to know another side of Brian.
I just finished giving Mom a foot and leg massage. She is all tucked into bed and is in a deep sleep. I am spending the night with her. Yup, a slumber party at her hospital "dorm" room. Tomorrow will be more exercise, massages, eating, walking, sharing stories and visiting with the family.
To all a good night. Sleep Well,
Karen
Today, Mom did not need any transfusions, she received her second injection of Neupogen (stimulates the production of white blood cells), her numbers show slight increase from yesterday, and she is still receiving antibiotics to prevent infections.
Mom, Brian, Poppie and I enjoyed our visit tremendously tonight. Brian was on a roll tonight sharing stories that made us laugh and had us in amazement. He really has a lot of adventurous things he has done in his lifetime. Mom loved the stories and we all loved getting to know another side of Brian.
I just finished giving Mom a foot and leg massage. She is all tucked into bed and is in a deep sleep. I am spending the night with her. Yup, a slumber party at her hospital "dorm" room. Tomorrow will be more exercise, massages, eating, walking, sharing stories and visiting with the family.
To all a good night. Sleep Well,
Karen
Tuesday, January 5, 2010
Hope is back and Mom is smiling
Mom awoke feeling pretty good today with a strong outlook. She continues to eat well, walk many times in a day, and loves to share with me about her childhood stories. Mom experienced a little spa day by me today. Tomorrow will be her massage. Her head leukemia bumps are completely gone. The 2 biopsy's on her head are a good 80% healed. She exhibits no pain nor discomfort.
Early afternoon one of Mom's Doctors on her team came by to inform her that she is at her low point in numbers. The Dr. complimented Mom on how well she has and is responding to the advanced Chemo treatment. Her doctor also informed her at this time the blood tests are showing NO blast cells (NO leukemic cells)are in her blood. Yes, this means there is presently NO cancer cells showing up. Mom shrieked with excitement and big smiles.
Mom received her first of several injections of Neupogen this evening. She will receive an injection daily for the next week. Neupogen assists to elevate Mom's numbers. We hope to see in 7-10 days her numbers show a considerable increase. Mom then can rely on her own system to fight off bacteria, fungal and viral infections. She then can home safely. After her numbers reach a certain level she then will be heading back for another bone marrow biopsy.
Mom was tired and ready to get some shut eye by 8:00pm. Brian and I tucked her in and shortly left there after.
I will add more tomorrow. Enjoy "hump" day.
Lots of Hugs and Good Health,
Karen
Early afternoon one of Mom's Doctors on her team came by to inform her that she is at her low point in numbers. The Dr. complimented Mom on how well she has and is responding to the advanced Chemo treatment. Her doctor also informed her at this time the blood tests are showing NO blast cells (NO leukemic cells)are in her blood. Yes, this means there is presently NO cancer cells showing up. Mom shrieked with excitement and big smiles.
Mom received her first of several injections of Neupogen this evening. She will receive an injection daily for the next week. Neupogen assists to elevate Mom's numbers. We hope to see in 7-10 days her numbers show a considerable increase. Mom then can rely on her own system to fight off bacteria, fungal and viral infections. She then can home safely. After her numbers reach a certain level she then will be heading back for another bone marrow biopsy.
Mom was tired and ready to get some shut eye by 8:00pm. Brian and I tucked her in and shortly left there after.
I will add more tomorrow. Enjoy "hump" day.
Lots of Hugs and Good Health,
Karen
Monday, January 4, 2010
An Emotional Day
Mom was informed that her bone biopsy will be postponed. Her Dr. prefers to have her numbers start to climb. As you know, it is difficult for Mom to switch gears after she sets something in her mind. She understands why, but now she needs to rethink her game plan once again. Today, she is sad that she will never have her old life back being "healthy."
Mom is on day 13 with her Chemo. Her body continues to be responding very well. Her numbers are continueing to drop. Around day 20 to day 22 her numbers are expected to be at their lowest level. It is here where her numbers are expected to rise. At this point, Mom will be re-evaluated to take her off antibiotics to prevent infections. Her body at this point will be avle to fight fungal and bacteria infections on its own. Mom remains in the hopsital to be monitored.
Reece came to visit today for a good hour and half. Brian and Poppie came for a good portion of the night. They both show up every evening around dinner time. Poppie still says the hopsital food is a five star restauarnt. THey both took off around 8pm. Mom and I after walking them to the elevators took another 20 minute walk and then did some upper body exercises. I like to hang out with Mom till she falls asleep. She rests best having company into the night.
Have a great evening and a wonderful day tomorrow.
Hugs from the Baskin's
Mom is on day 13 with her Chemo. Her body continues to be responding very well. Her numbers are continueing to drop. Around day 20 to day 22 her numbers are expected to be at their lowest level. It is here where her numbers are expected to rise. At this point, Mom will be re-evaluated to take her off antibiotics to prevent infections. Her body at this point will be avle to fight fungal and bacteria infections on its own. Mom remains in the hopsital to be monitored.
Reece came to visit today for a good hour and half. Brian and Poppie came for a good portion of the night. They both show up every evening around dinner time. Poppie still says the hopsital food is a five star restauarnt. THey both took off around 8pm. Mom and I after walking them to the elevators took another 20 minute walk and then did some upper body exercises. I like to hang out with Mom till she falls asleep. She rests best having company into the night.
Have a great evening and a wonderful day tomorrow.
Hugs from the Baskin's
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