Yesterday was a bit stressful pre-discharge. Mom found another skin bump located on her lymph below her ear. Her doctors reassured her not to worry and they would check it on Friday when she comes in for her Neupogen injection,various other blood drawings and her Hickman flushing. This is protocol to wait at least 24 hours to see if changes occur. If the area in question shows improvements the patient does not need any tests.
Mom and Poppie got home late afternoon yesterday. To Mom's surprise the house looked very good. Yup, Poppie is stepping up to the plate to keep the house organized and clean. The laundry was piled high waiting for Mom so "she should have something to do when she got home," wink. Mom dove right in and got all her medications in order and then settled in and watched a movie with Poppie.
Mom today is doing pretty well. Emotionally, this NEW lifestyle is bumming her out. It is very challenging for her to stay positive and play the "waiting" game. She and I spend our time over the phone talking about the positive things going on around her, helping her feel the empowerment that she does hold in her health care, and the gratefulness for the support from so many people who love and respect her.
Tomorrow starts her new journey to being an outpatient EVERYDAY. Yes, this will be for the next several weeks. She is not happy about that being her purpose to awaken everyday. I shared with her to try to think of it as having to go to work everyday, but at least the hours are less than a full day of work. It is tricky to keep her energy and mental strength focused on being in control and welcoming her new lifestyle. She knows that I focus daily with all my skeletal and Crohn's and Colitis hick-ups that present itself. I learned the key is to weave "the kick-ups" into what I want to do each day. Yes, some days are easier than others, but I am in control. It does all, "suck" but everything is manageable if pain is not involved. She too can do this!
I will keep you posted if anything new unfolds. Next Friday, February 12th, Mom has a follow up appointment with her Oncologist to see what the next plan will be. I will post again after that visit. Remember, NO posting means Mom is doing well and there are no new developments to be concerned about.
It is difficult not being home with Mom and Poppie through this entirety. I and or Kimmy will be looking to visit Rochester at the end of February if all goes well on both our ends. Mom, the past several phone calls, has sounded a bit weaker emotionally, frustrated and angry. When I was home this was sneaking up on her but she was able to shake it quicker with me around. Kimmy and I feel she could use a boost of my pain in the tuchas optimism and outlook on enjoying everyday for all it offers.
THANK YOU, as always, for your unlimited support and love,
Karen
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